Literature DB >> 28445103

Whose Data Are They Anyway? Can a Patient Perspective Advance the Data-Sharing Debate?

Charlotte J Haug1.   

Abstract

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Year:  2017        PMID： 28445103     DOI： 10.1056/NEJMp1704485

Source DB:  PubMed          Journal:  N Engl J Med        ISSN： 0028-4793            Impact factor:   91.245


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  14 in total

1.  Clinical Trial Data Sharing: The Time Is Now.

Authors:  Josephine P Briggs; Paul M Palevsky
Journal:  J Am Soc Nephrol       Date:  2019-08-13       Impact factor: 10.121

2.  Clinical trials in radiology and data sharing: results from a survey of the European Society of Radiology (ESR) research committee.

Authors:  Maria Bosserdt; Bernd Hamm; Marc Dewey
Journal:  Eur Radiol       Date:  2019-02-27       Impact factor: 5.315

3.  Clinical Trial Participants' Views of the Risks and Benefits of Data Sharing.

Authors:  Michelle M Mello; Van Lieou; Steven N Goodman
Journal:  N Engl J Med       Date:  2018-06-07       Impact factor: 91.245

4.  Contemporary strategies to improve clinical trial design for critical care research: insights from the First Critical Care Clinical Trialists Workshop.

Authors:  Michael O Harhay; Jonathan D Casey; Marina Clement; Sean P Collins; Étienne Gayat; Michelle Ng Gong; Samir Jaber; Pierre-François Laterre; John C Marshall; Michael A Matthay; Rhonda E Monroe; Todd W Rice; Eileen Rubin; Wesley H Self; Alexandre Mebazaa
Journal:  Intensive Care Med       Date:  2020-02-18       Impact factor: 17.440

5.  Susan G. Komen Big Data for Breast Cancer Initiative: How Patient Advocacy Organizations Can Facilitate Using Big Data to Improve Patient Outcomes.

Authors:  Jerome Jourquin; Stephanie Birkey Reffey; Cheryl Jernigan; Mia Levy; Glendon Zinser; Kimberly Sabelko; Jennifer Pietenpol; George Sledge
Journal:  JCO Precis Oncol       Date:  2019-09-12

Review 6.  Data sharing and reanalysis of randomized controlled trials in leading biomedical journals with a full data sharing policy: survey of studies published in The BMJ and PLOS Medicine.

Authors:  Florian Naudet; Charlotte Sakarovitch; Perrine Janiaud; Ioana Cristea; Daniele Fanelli; David Moher; John P A Ioannidis
Journal:  BMJ       Date:  2018-02-13

7.  Sharing individual participant data from clinical studies: a cross-sectional online survey among Italian patient and citizen groups.

Authors:  Cinzia Colombo; Anna Roberto; Karmela Krleza-Jeric; Elena Parmelli; Rita Banzi
Journal:  BMJ Open       Date:  2019-02-19       Impact factor: 2.692

8.  A decade of Genome Medicine: toward precision medicine.

Authors:  Rabia Begum
Journal:  Genome Med       Date:  2019-02-28       Impact factor: 11.117

9.  Sharing and reuse of individual participant data from clinical trials: principles and recommendations.

Authors:  Christian Ohmann; Rita Banzi; Steve Canham; Serena Battaglia; Mihaela Matei; Christopher Ariyo; Lauren Becnel; Barbara Bierer; Sarion Bowers; Luca Clivio; Monica Dias; Christiane Druml; Hélène Faure; Martin Fenner; Jose Galvez; Davina Ghersi; Christian Gluud; Trish Groves; Paul Houston; Ghassan Karam; Dipak Kalra; Rachel L Knowles; Karmela Krleža-Jerić; Christine Kubiak; Wolfgang Kuchinke; Rebecca Kush; Ari Lukkarinen; Pedro Silverio Marques; Andrew Newbigging; Jennifer O'Callaghan; Philippe Ravaud; Irene Schlünder; Daniel Shanahan; Helmut Sitter; Dylan Spalding; Catrin Tudur-Smith; Peter van Reusel; Evert-Ben van Veen; Gerben Rienk Visser; Julia Wilson; Jacques Demotes-Mainard
Journal:  BMJ Open       Date:  2017-12-14       Impact factor: 2.692

10.  Including all voices in international data-sharing governance.

Authors:  Jane Kaye; Sharon F Terry; Eric Juengst; Sarah Coy; Jennifer R Harris; Don Chalmers; Edward S Dove; Isabelle Budin-Ljøsne; Clement Adebamowo; Emilomo Ogbe; Louise Bezuidenhout; Michael Morrison; Joel T Minion; Madeleine J Murtagh; Jusaku Minari; Harriet Teare; Rosario Isasi; Kazuto Kato; Emmanuelle Rial-Sebbag; Patricia Marshall; Barbara Koenig; Anne Cambon-Thomsen
Journal:  Hum Genomics       Date:  2018-03-07       Impact factor: 4.639
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