INTRODUCTION: Cancer is a leading cause of death in the United States. Although treatments have improved, patients and caregivers continue to report significant gaps in their care. The objective of this study was to examine the views of patients and caregivers on their experiences with current cancer care delivery and identify key strategies to improve the delivery of care. METHODS AND MATERIALS: Semistructured interviews were conducted with 75 patients and 45 caregivers across the United States. The interviews were recorded, transcribed, and analyzed using constant comparative method of qualitative analysis. RESULTS: Participants reported multiple gaps in care delivery, including barriers in health communication with health care providers, lack of elucidation of care goals, lack of care coordination, and challenges in accessing care. Participants identified that greater use of nonphysician providers and alternative formats, such as telephone-based care and home and community-based care, would narrow these gaps. CONCLUSION: Understanding patients' and caregivers' experiences with gaps in cancer care delivery can inform cancer care delivery redesign efforts and lead to targeted interventions that result in patient-centered and family-oriented care.
INTRODUCTION: Cancer is a leading cause of death in the United States. Although treatments have improved, patients and caregivers continue to report significant gaps in their care. The objective of this study was to examine the views of patients and caregivers on their experiences with current cancer care delivery and identify key strategies to improve the delivery of care. METHODS AND MATERIALS: Semistructured interviews were conducted with 75 patients and 45 caregivers across the United States. The interviews were recorded, transcribed, and analyzed using constant comparative method of qualitative analysis. RESULTS: Participants reported multiple gaps in care delivery, including barriers in health communication with health care providers, lack of elucidation of care goals, lack of care coordination, and challenges in accessing care. Participants identified that greater use of nonphysician providers and alternative formats, such as telephone-based care and home and community-based care, would narrow these gaps. CONCLUSION: Understanding patients' and caregivers' experiences with gaps in cancer care delivery can inform cancer care delivery redesign efforts and lead to targeted interventions that result in patient-centered and family-oriented care.
Authors: Kristen J Wells; John S Luque; Branko Miladinovic; Natalia Vargas; Yasmin Asvat; Richard G Roetzheim; Ambuj Kumar Journal: Cancer Epidemiol Biomarkers Prev Date: 2011-06-08 Impact factor: 4.254
Authors: J C Weeks; E F Cook; S J O'Day; L M Peterson; N Wenger; D Reding; F E Harrell; P Kussin; N V Dawson; A F Connors; J Lynn; R S Phillips Journal: JAMA Date: 1998-06-03 Impact factor: 56.272
Authors: Kerri-Anne R Mitchell; Kelly J Brassil; Serena A Rodriguez; Edward Tsai; Kayo Fujimoto; Kate J Krause; L Aubree Shay; Andrew E Springer Journal: Psychooncology Date: 2020-08-23 Impact factor: 3.894
Authors: Angela M Stover; Benjamin Y Urick; Allison M Deal; Randall Teal; Maihan B Vu; Jessica Carda-Auten; Jennifer Jansen; Arlene E Chung; Antonia V Bennett; Anne Chiang; Charles Cleeland; Yehuda Deutsch; Edmund Tai; Dylan Zylla; Loretta A Williams; Collette Pitzen; Claire Snyder; Bryce Reeve; Tenbroeck Smith; Kristen McNiff; David Cella; Michael N Neuss; Robert Miller; Thomas M Atkinson; Patricia A Spears; Mary Lou Smith; Cindy Geoghegan; Ethan M Basch Journal: JCO Oncol Pract Date: 2020-02-19
Authors: Manali I Patel; Vandana Sundaram; Manisha Desai; Vyjeyanthi S Periyakoil; James S Kahn; Jay Bhattacharya; Steven M Asch; Arnold Milstein; M Kate Bundorf Journal: JAMA Oncol Date: 2018-10-01 Impact factor: 31.777
Authors: Kerri-Anne R Mitchell; Kelly J Brassil; Kayo Fujimoto; Bryan M Fellman; Laura Aubree Shay; Andrew E Springer Journal: Value Health Date: 2019-12-09 Impact factor: 5.725