Literature DB >> 28382518

Is decision-making capacity an "essentially contested" concept in pediatrics?

Eva De Clercq1, Katharina Ruhe2, Michel Rost3, Bernice Elger3.   

Abstract

Key legislations in many countries emphasize the importance of involving children in decisions regarding their own health at a level commensurate with their age and capacities. Research is engaged in developing tools to assess capacity in children in order to facilitate their responsible involvement. These instruments, however, are usually based on the cognitive criteria for capacity assessment as defined by Appelbaum and Grisso and thus ill adapted to address the life-situation of children. The aim of this paper is to revisit and critically reflect upon the current definitions of decision-making capacity. For this purpose, we propose to see capacity through the lens of essential contestability as it warns us against any reification of what it means to have capacity. Currently, capacity is often perceived of as a mental or cognitive ability which somehow resides within the person, obscuring the fact that capacity is not just an objective property which can be assessed, but always operates within a dominant cultural framework that "creates" that same capacity and defines the threshold between capable and incapable in a specific situation. Defining capacity as an essentially contested concept means using it in a questioning mode and giving space to alternative interpretations that might inform and advance the debate surrounding decision-making.

Entities:  

Keywords:  Capacity; Children; Decision-making; Essentially contested concept; Pediatrics

Mesh:

Year:  2017        PMID: 28382518     DOI: 10.1007/s11019-017-9768-z

Source DB:  PubMed          Journal:  Med Health Care Philos        ISSN: 1386-7423


  40 in total

1.  Labeling patient (in)competence: a feminist analysis of medico-legal discourse.

Authors:  B Secker
Journal:  J Soc Philos       Date:  1999

2.  Pediatric oncologists' attitudes towards involving adolescents in decision-making concerning research participation.

Authors:  Martine C de Vries; Jan M Wit; Dirk P Engberts; Gertjan J L Kaspers; Evert van Leeuwen
Journal:  Pediatr Blood Cancer       Date:  2010-07-15       Impact factor: 3.167

3.  Accuracy of the MacArthur competence assessment tool for clinical research (MacCAT-CR) for measuring children's competence to consent to clinical research.

Authors:  Irma M Hein; Pieter W Troost; Robert Lindeboom; Marc A Benninga; C Michel Zwaan; Johannes B van Goudoever; Ramón J L Lindauer
Journal:  JAMA Pediatr       Date:  2014-12       Impact factor: 16.193

4.  Theory and Practice of Pediatric Bioethics.

Authors:  Lainie Friedman Ross
Journal:  Perspect Biol Med       Date:  2016       Impact factor: 1.416

5.  Children's participation in the decision-making process during hospitalization: an observational study.

Authors:  Ingrid Runeson; Inger Hallström; Gunnel Elander; Göran Hermerén
Journal:  Nurs Ethics       Date:  2002-11       Impact factor: 2.874

6.  Developing a new justification for assent.

Authors:  Amanda Sibley; Andrew J Pollard; Raymond Fitzpatrick; Mark Sheehan
Journal:  BMC Med Ethics       Date:  2016-01-12       Impact factor: 2.652

7.  Can procedural and substantive elements of decision-making be reconciled in assessments of mental capacity?

Authors:  Natalie F Banner
Journal:  Int J Law Context       Date:  2013-03

8.  Assessing children's competence to consent in research by a standardized tool: a validity study.

Authors:  Irma M Hein; Pieter W Troost; Robert Lindeboom; Martine C de Vries; C Michel Zwaan; Ramón J L Lindauer
Journal:  BMC Pediatr       Date:  2012-09-25       Impact factor: 2.125

9.  Key factors in children's competence to consent to clinical research.

Authors:  Irma M Hein; Pieter W Troost; Robert Lindeboom; Marc A Benninga; C Michel Zwaan; Johannes B van Goudoever; Ramón J L Lindauer
Journal:  BMC Med Ethics       Date:  2015-10-24       Impact factor: 2.652

10.  Child's objection to non-beneficial research: capacity and distress based models.

Authors:  Marcin Waligora; Joanna Różyńska; Jan Piasecki
Journal:  Med Health Care Philos       Date:  2016-03
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