Literature DB >> 27157344

Theory and Practice of Pediatric Bioethics.

Lainie Friedman Ross.   

Abstract

This article examines two typical bioethics frameworks: the "Four Principles" by Beauchamp and Childress, and the "Four Boxes" by Jonsen, Siegler, and Winslade. I show how they are inadequate to address the ethical issues raised by pediatrics, in part because they do not pay adequate attention to families. I then consider an alternate framework proposed by Buchanan and Brock that focuses on four questions that must be addressed for the patient who lacks decisional capacity. This model also does not give adequate respect for the family, particularly the intimate family. I then describe my own framework, which provides answers to Buchanan and Brock's four questions in a way that is consistent with the intimate family and its need for protection from state intervention.

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Year:  2016        PMID: 27157344     DOI: 10.1353/pbm.2016.0008

Source DB:  PubMed          Journal:  Perspect Biol Med        ISSN: 0031-5982            Impact factor:   1.416


  6 in total

1.  Beyond Bioethics: A Child Rights-Based Approach to Complex Medical Decision-Making.

Authors:  Katherine Wade; Irene Melamed; Jeffrey Goldhagen
Journal:  Perspect Biol Med       Date:  2016       Impact factor: 1.416

2.  Is decision-making capacity an "essentially contested" concept in pediatrics?

Authors:  Eva De Clercq; Katharina Ruhe; Michel Rost; Bernice Elger
Journal:  Med Health Care Philos       Date:  2017-09

3.  'Best interests' in paediatric intensive care: an empirical ethics study.

Authors:  Giles Birchley; Rachael Gooberman-Hill; Zuzana Deans; James Fraser; Richard Huxtable
Journal:  Arch Dis Child       Date:  2017-04-13       Impact factor: 3.791

4.  Rethinking the "open future" argument against predictive genetic testing of children.

Authors:  Jeremy R Garrett; John D Lantos; Leslie G Biesecker; Janet E Childerhose; Wendy K Chung; Ingrid A Holm; Barbara A Koenig; Jean E McEwen; Benjamin S Wilfond; Kyle Brothers
Journal:  Genet Med       Date:  2019-03-21       Impact factor: 8.822

5.  Charlie Gard and the weight of parental rights to seek experimental treatment.

Authors:  Giles Birchley
Journal:  J Med Ethics       Date:  2018-05-17       Impact factor: 5.926

6.  Combining the best interest standard with shared decision-making in paediatrics-introducing the shared optimum approach based on a qualitative study.

Authors:  Jürg Caspar Streuli; James Anderson; Sierra Alef-Defoe; Eva Bergsträsser; Jovana Jucker; Stephanie Meyer; Sophia Chaksad-Weiland; Effy Vayena
Journal:  Eur J Pediatr       Date:  2020-08-18       Impact factor: 3.183

  6 in total

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