Literature DB >> 28373799

Adaptation to Turkish and Reliability Study of the Revised Amyotrophic Lateral Sclerosis Functional Rating Scale (ALSFRS-R).

Filiz Koç1, Mehmet Balal1, Turgay Demir1, Z Nazan Alparslan2, Yakup Sarica1.   

Abstract

INTRODUCTION: Amyotrophic lateral sclerosis (ALS) is a fatal disease characterized by progressive degeneration of the motor neurons. It is difficult to define the severity of the clinical findings of this destructive disease owing to its rapid progression, which presents serious alterations in a short time even in the same patient. The present study was designed to evaulate the validity of the Turkish version of the Revised Amyotrophic Lateral Sclerosis Functional Rating Scale (ALSFRS-R), which has been used in various countries for measuring the functional status of ALS patients.
METHODS: The ALSFRS-R scores of 41 ALS patients (24 male), in any stages of illness, were simultaneously assessed by two physicians. The functional status of the patients (motor system, bulbar, and pulmonary functions) was evaluated under 12 titles. In every subtitle, the functional status was evaluated as 0 for the worst functional status and 4 for the best functional status. The mean differentials for both subtitles and global scores and the 95% confidence bounds of these means were detected. The coherence was defined as the states in which the coefficient is above 0.80 and is statistically significant.
RESULTS: From the data obtained, the correlation between the two physicians was found to be statistically significant (p=0.000) in terms of the means of both subtitles and total scores.
CONCLUSION: It was shown in the present study that in the clinical follow-up of the disease, the Turkish version of ALSFRS-R is a simple, reliable, and easily applicable.

Entities:  

Keywords:  ALS; ALSFRS-R; Turkish version; functional status

Year:  2016        PMID: 28373799      PMCID: PMC5378217          DOI: 10.5152/npa.2016.11334

Source DB:  PubMed          Journal:  Noro Psikiyatr Ars        ISSN: 1300-0667            Impact factor:   1.339


  20 in total

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2.  Spinal cord neurofibrillary tangles of Guamanian amyotrophic lateral sclerosis and parkinsonism-dementia complex: an immunohistochemical study.

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4.  El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis. Subcommittee on Motor Neuron Diseases/Amyotrophic Lateral Sclerosis of the World Federation of Neurology Research Group on Neuromuscular Diseases and the El Escorial "Clinical limits of amyotrophic lateral sclerosis" workshop contributors.

Authors:  B R Brooks
Journal:  J Neurol Sci       Date:  1994-07       Impact factor: 3.181

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6.  A preliminary evaluation of a prospective study of pulmonary function studies and symptoms of hypoventilation in ALS/MND patients.

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Review 7.  Amyotrophic lateral sclerosis.

Authors:  J D Mitchell; G D Borasio
Journal:  Lancet       Date:  2007-06-16       Impact factor: 79.321

8.  The amyotrophic lateral sclerosis functional rating scale predicts survival time in amyotrophic lateral sclerosis patients on invasive mechanical ventilation.

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Journal:  Neuroepidemiology       Date:  1989       Impact factor: 3.282

Review 10.  The genetics of motor neuron diseases.

Authors:  Denise A Figlewicz; Richard W Orrell
Journal:  Amyotroph Lateral Scler Other Motor Neuron Disord       Date:  2003-12
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  3 in total

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2.  Validity and reliability of the Turkish version of "the Dyspnea-ALS-Scale (DALS-15)".

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3.  Assessment of the factorial validity and reliability of the ALSFRS-R: a revision of its measurement model.

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  3 in total

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