Christina Sillman1, Joanne Morin2, Corina Thomet3, Deena Barber4, Yoshiko Mizuno5, Hsiao-Ling Yang6, Theresa Malpas7, Serena Francesca Flocco8, Clare Finlay9, Chi-Wen Chen10, Yvonne Balon11, Susan M Fernandes12. 1. Lucile Packard Children's Hospital Stanford, Palo Alto, CA, United States. Electronic address: CSillman@stanfordhealthcare.org. 2. University of Ottawa Heart Institute, Ottawa, Ontario, Canada. 3. Center for Congenital Heart Disease, Inselspital, Bern University Hospital, Bern, Switzerland. 4. Akron Children's Hospital, Akron, OH, United States. 5. Chiba Cardiovascular Center, Japan. 6. National Taiwan University, Taipei, Taiwan. 7. The Prince Charles Hospital, Adult Congenital Heart Disease Service, Brisbane, Australia. 8. Pediatric and Adult Congenital Heart Centre, IRCCS Policlinico San Donato, San Donato Milanese (MI), Italy. 9. Royal Brompton Hospital, London, United Kingdom. 10. National Yang-Ming University, Taipei, Taiwan. 11. Peter Lougheed Hospital, Calgary, Alberta, Canada. 12. Stanford University, Palo Alto, CA, Departments of Pediatrics and Medicine and Divisions of Pediatric Cardiology and Cardiovascular Medicine, United States.
Abstract
BACKGROUND: Founded in 1992, the International Society for Adult Congenital Heart Disease (ISACHD) is the leading global organization of professionals dedicated to pursuing excellence in the care of adults with congenital heart disease (CHD) worldwide. Among ISACHD's objectives is to "promote a holistic team-based approach to the care of the adult with CHD that is comprehensive, patient-centered, and interdisciplinary" (http://www.isachd.org). This emphasis on team-based care reflects the fact that adults with CHD constitute a heterogeneous population with a wide spectrum of disease complexity, frequent association with other organ involvement, and varied co-morbidities and psychosocial issues. METHODS: Recognizing the vital role of the adult CHD (ACHD) nurse coordinator (ACHD-NC) in optimizing team-based care, ISACHD established a task force to elucidate and provide guidance on the roles and responsibilities of the ACHD-NC. Acknowledging that nursing roles can vary widely from region to region based on factors such as credentials, scopes of practice, regulations, and local culture and tradition, an international panel was assembled with experts from North America, Europe, East Asia, and Oceania. The writing committee was tasked with reviewing key aspects of the ACHD-NC's role in team-based ACHD care. RESULTS/ CONCLUSION: The resulting ISACHD position statement addresses the ACHD-NC's role and skills required in organizing, coordinating, and facilitating the care of adults with CHD, holistic assessment of the ACHD patient, patient education and counseling, and support for self-care management and self-advocacy. Crown
BACKGROUND: Founded in 1992, the International Society for Adult Congenital Heart Disease (ISACHD) is the leading global organization of professionals dedicated to pursuing excellence in the care of adults with congenital heart disease (CHD) worldwide. Among ISACHD's objectives is to "promote a holistic team-based approach to the care of the adult with CHD that is comprehensive, patient-centered, and interdisciplinary" (http://www.isachd.org). This emphasis on team-based care reflects the fact that adults with CHD constitute a heterogeneous population with a wide spectrum of disease complexity, frequent association with other organ involvement, and varied co-morbidities and psychosocial issues. METHODS: Recognizing the vital role of the adult CHD (ACHD) nurse coordinator (ACHD-NC) in optimizing team-based care, ISACHD established a task force to elucidate and provide guidance on the roles and responsibilities of the ACHD-NC. Acknowledging that nursing roles can vary widely from region to region based on factors such as credentials, scopes of practice, regulations, and local culture and tradition, an international panel was assembled with experts from North America, Europe, East Asia, and Oceania. The writing committee was tasked with reviewing key aspects of the ACHD-NC's role in team-based ACHD care. RESULTS/ CONCLUSION: The resulting ISACHD position statement addresses the ACHD-NC's role and skills required in organizing, coordinating, and facilitating the care of adults with CHD, holistic assessment of the ACHD patient, patient education and counseling, and support for self-care management and self-advocacy. Crown
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