Literature DB >> 28263408

Cultural competency of a mobile, customized patient education tool for improving potential kidney transplant recipients' knowledge and decision-making.

David A Axelrod1,2, Crystal S Kynard-Amerson3, David Wojciechowski4, Marie Jacobs4, Krista L Lentine2,5, Mark Schnitzler2,5, John D Peipert3, Amy D Waterman3.   

Abstract

Patients considering renal transplantation face an increasingly complex array of choices as a result of the revised kidney transplant allocation system. Decision aids have been shown to improve patient decision-making through the provision of detailed, relevant, individualized clinical data. A mobile iOS-based application (app) including animated patient education and individualized risk-adjusted outcomes following kidney transplants with varying donor characteristics and DSA waiting times was piloted in two large US transplant programs with a diverse group of renal transplant candidates (N = 81). The majority (86%) of patients felt that the app improved their knowledge and was culturally appropriate for their race/ethnicity (67%-85%). Patients scored significantly higher on transplant knowledge testing (9.1/20 to 13.8/20, P < .001) after viewing the app, including patients with low health literacy (8.0 to 13.0, P < .001). Overall knowledge of and interest in living and deceased donor kidney transplantation increased. This pilot project confirmed the benefit and cultural acceptability of this educational tool, and further refinement will explore how to better communicate the risks and benefits of nonstandard donors.
© 2017 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd.

Entities:  

Keywords:  zzm321990EPTSzzm321990; zzm321990KPDIzzm321990; kidney transplant; living donor; outcomes research; patient education

Mesh:

Year:  2017        PMID: 28263408     DOI: 10.1111/ctr.12944

Source DB:  PubMed          Journal:  Clin Transplant        ISSN: 0902-0063            Impact factor:   2.863


  14 in total

1.  Decision aids to increase living donor kidney transplantation.

Authors:  Jennifer C Gander; Elisa J Gordon; Rachel E Patzer
Journal:  Curr Transplant Rep       Date:  2017-02-09

2.  Unexpected Race and Ethnicity Differences in the US National Veterans Affairs Kidney Transplant Program.

Authors:  Larissa Myaskovsky; Kellee Kendall; Xingyuan Li; Chung-Chou H Chang; John R Pleis; Emilee Croswell; C Graham Ford; Galen E Switzer; Anthony Langone; Anuja Mittal-Henkle; Somnath Saha; Christie P Thomas; Jareen Adams Flohr; Mohan Ramkumar; Mary Amanda Dew
Journal:  Transplantation       Date:  2019-12       Impact factor: 4.939

3.  Impact of US Public Health Service increased risk deceased donor designation on organ utilization.

Authors:  Mathew R P Sapiano; Jefferson M Jones; James Bowman; Marilyn E Levi; Sridhar V Basavaraju
Journal:  Am J Transplant       Date:  2019-05-03       Impact factor: 8.086

4.  Shared decision-making in advanced kidney disease: a scoping review.

Authors:  Noel Engels; Gretchen N de Graav; Paul van der Nat; Marinus van den Dorpel; Anne M Stiggelbout; Willem Jan Bos
Journal:  BMJ Open       Date:  2022-09-21       Impact factor: 3.006

5.  Educational Animations to Inform Transplant Candidates About Deceased Donor Kidney Options: An Efficacy Randomized Trial.

Authors:  Liise K Kayler; Beth A Dolph; Chelsea N Cleveland; Maria M Keller; Thomas H Feeley
Journal:  Transplant Direct       Date:  2020-06-23

6.  Strategies for Increasing Knowledge, Communication, and Access to Living Donor Transplantation: an Evidence Review to Inform Patient Education.

Authors:  Heather F Hunt; James R Rodrigue; Mary Amanda Dew; Randolph L Schaffer; Macey L Henderson; Randee Bloom; Patrick Kacani; Pono Shim; Lee Bolton; William Sanchez; Krista L Lentine
Journal:  Curr Transplant Rep       Date:  2018-02-05

7.  Social Determinants of Health and Race Disparities in Kidney Transplant.

Authors:  Hannah Wesselman; Christopher Graham Ford; Yuridia Leyva; Xingyuan Li; Chung-Chou H Chang; Mary Amanda Dew; Kellee Kendall; Emilee Croswell; John R Pleis; Yue Harn Ng; Mark L Unruh; Ron Shapiro; Larissa Myaskovsky
Journal:  Clin J Am Soc Nephrol       Date:  2021-01-28       Impact factor: 8.237

8.  How to tackle health literacy problems in chronic kidney disease patients? A systematic review to identify promising intervention targets and strategies.

Authors:  Marco D Boonstra; Sijmen A Reijneveld; Elisabeth M Foitzik; Ralf Westerhuis; Gerjan Navis; Andrea F de Winter
Journal:  Nephrol Dial Transplant       Date:  2020-12-22       Impact factor: 5.992

9.  Thematic analysis of the medical records of patients evaluated for kidney transplant who did not receive a kidney.

Authors:  Catherine R Butler; Janelle S Taylor; Peter P Reese; Ann M O'Hare
Journal:  BMC Nephrol       Date:  2020-07-25       Impact factor: 2.388

Review 10.  A Scoping Review on How to Make Hospitals health Literate Healthcare Organizations.

Authors:  Patrizio Zanobini; Chiara Lorini; Alberto Baldasseroni; Claudia Dellisanti; Guglielmo Bonaccorsi
Journal:  Int J Environ Res Public Health       Date:  2020-02-06       Impact factor: 3.390

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