Literature DB >> 28177149

Relational citizenship: supporting embodied selfhood and relationality in dementia care.

Pia Kontos1,2, Karen-Lee Miller1, Alexis P Kontos3.   

Abstract

We draw on findings from a mixed-method study of specialised red-nosed elder-clowns in a long-term care facility to advance a model of 'relational citizenship' for individuals with dementia. Relational citizenship foregrounds the reciprocal nature of engagement and the centrality of capacities, senses, and experiences of bodies to the exercise of human agency and interconnectedness. We critically examine elder-clown strategies and techniques to illustrate how relational citizenship can be supported and undermined at the micro level of direct care through a focus on embodied expressions of creativity and sexuality. We identify links between aesthetic enrichment and relational practices in art, music and imagination. Relational citizenship offers an important rethinking of notions of selfhood, entitlement, and reciprocity that are central to a sociology of dementia, and it also provides new ethical grounds to explore how residents' creative and sexual expression can be cultivated in the context of long-term care.
© 2017 Foundation for the Sociology of Health & Illness.

Entities:  

Keywords:  dementia/Alzheimer's; embodiment; ethics/bioethics; long-term care; sexuality

Mesh:

Year:  2017        PMID: 28177149     DOI: 10.1111/1467-9566.12453

Source DB:  PubMed          Journal:  Sociol Health Illn        ISSN: 0141-9889


  17 in total

1.  The "Violent Resident": A Critical Exploration of the Ethics of Resident-to-Resident Aggression.

Authors:  Alisa Grigorovich; Pia Kontos; Alexis P Kontos
Journal:  J Bioeth Inq       Date:  2019-02-11       Impact factor: 1.352

2.  Advancing an Ethic of Embodied Relational Sexuality to Guide Decision-Making in Dementia Care.

Authors:  Alisa Grigorovich; Pia Kontos
Journal:  Gerontologist       Date:  2018-03-19

Review 3.  Peer support for people living with rare or young onset dementia: An integrative review.

Authors:  Mary Pat Sullivan; Veronika Williams; Adetola Grillo; Roberta McKee-Jackson; Paul M Camic; Gill Windle; Joshua Stott; Emily Brotherhood; Sebastian J Crutch
Journal:  Dementia (London)       Date:  2022-09-16

4.  The Precarity of Older Adults Living Alone With Cognitive Impairment.

Authors:  Elena Portacolone; Robert L Rubinstein; Kenneth E Covinsky; Jodi Halpern; Julene K Johnson
Journal:  Gerontologist       Date:  2019-03-14

5.  Co-creativity, well-being and agency: A case study analysis of a co-creative arts group for people with dementia.

Authors:  Hannah Zeilig; Victoria Tischler; Millie van der Byl Williams; Julian West; Sarah Strohmaier
Journal:  J Aging Stud       Date:  2019-03-27

6.  Generativity in Creative Storytelling: Evidence From a Dementia Care Community.

Authors:  Seoyoun Kim; Kyong Hee Chee; Olga Gerhart
Journal:  Innov Aging       Date:  2020-03-28

7.  Assisted Living Residents With Dementia: Being Out in the World and Negotiating Connections.

Authors:  Joy M Ciofi; Candace L Kemp; Alexis A Bender
Journal:  Gerontologist       Date:  2022-02-09

8.  Sustaining care for a parent with dementia: an indefinite and intertwined process.

Authors:  Amy S Hwang; Lena Rosenberg; Pia Kontos; Jill I Cameron; Alex Mihailidis; Louise Nygård
Journal:  Int J Qual Stud Health Well-being       Date:  2017

9.  Preparatory planning framework for Created Out of Mind: Shaping perceptions of dementia through art and science.

Authors:  Emilie Brotherhood; Philip Ball; Paul M Camic; Caroline Evans; Nick Fox; Charlie Murphy; Fergus Walsh; Julian West; Gill Windle; Sarah Billiald; Nicholas Firth; Emma Harding; Charles Harrison; Catherine Holloway; Susanna Howard; Roberta McKee-Jackson; Esther Jones; Janette Junghaus; Harriet Martin; Kailey Nolan; Bridie Rollins; Lillian Shapiro; Lionel Shapiro; Jane Twigg; Janneke van Leeuwen; Jill Walton; Jason Warren; Selina Wray; Keir Yong; Hannah Zeilig; Sebastian Crutch
Journal:  Wellcome Open Res       Date:  2017-11-06

10.  Conceptualising and Understanding Artistic Creativity in the Dementias: Interdisciplinary Approaches to Research and Practise.

Authors:  Paul M Camic; Sebastian J Crutch; Charlie Murphy; Nicholas C Firth; Emma Harding; Charles R Harrison; Susannah Howard; Sarah Strohmaier; Janneke Van Leewen; Julian West; Gill Windle; Selina Wray; Hannah Zeilig
Journal:  Front Psychol       Date:  2018-10-03
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