Nicolas Farina1, Thomas E Page2, Stephanie Daley1, Anna Brown2, Ann Bowling3, Thurstine Basset4, Gill Livingston5, Martin Knapp6, Joanna Murray7, Sube Banerjee8. 1. Centre for Dementia Studies, Brighton and Sussex Medical School, Brighton, UK. 2. School of Psychology, University of Kent, Canterbury, UK. 3. Health Sciences, University of Southampton, Southampton, UK. 4. Lived Experience Advisory Panel, Sussex Partnership NHS Foundation Trust, Hove, UK. 5. Division of Psychiatry, University College London, London, UK. 6. Department of Social Policy, London School of Economics, London, UK. 7. Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK. 8. Centre for Dementia Studies, Brighton and Sussex Medical School, Brighton, UK. Electronic address: s.banerjee@bsms.ac.uk.
Abstract
INTRODUCTION: Family carers of people with dementia are their most important support in practical, personal, and economic terms. Carers are vital to maintaining the quality of life (QOL) of people with dementia. This review aims to identify factors related to the QOL of family carers of people with dementia. METHODS: Searches on terms including "carers," "dementia," "family," and "quality of life" in research databases. Findings were synthesized inductively, grouping factors associated with carer QOL into themes. RESULTS: A total of 909 abstracts were identified. Following screening, lateral searches, and quality appraisal, 41 studies (n = 5539) were included for synthesis. A total of 10 themes were identified: demographics; carer-patient relationship; dementia characteristics; demands of caring; carer health; carer emotional well-being; support received; carer independence; carer self-efficacy; and future. DISCUSSION: The quality and level of evidence supporting each theme varied. We need further research on what factors predict carer QOL in dementia and how to measure it.
INTRODUCTION: Family carers of people with dementia are their most important support in practical, personal, and economic terms. Carers are vital to maintaining the quality of life (QOL) of people with dementia. This review aims to identify factors related to the QOL of family carers of people with dementia. METHODS: Searches on terms including "carers," "dementia," "family," and "quality of life" in research databases. Findings were synthesized inductively, grouping factors associated with carer QOL into themes. RESULTS: A total of 909 abstracts were identified. Following screening, lateral searches, and quality appraisal, 41 studies (n = 5539) were included for synthesis. A total of 10 themes were identified: demographics; carer-patient relationship; dementia characteristics; demands of caring; carer health; carer emotional well-being; support received; carer independence; carer self-efficacy; and future. DISCUSSION: The quality and level of evidence supporting each theme varied. We need further research on what factors predict carer QOL in dementia and how to measure it.
Authors: Linda Clare; Laura D Gamble; Anthony Martyr; Serena Sabatini; Sharon M Nelis; Catherine Quinn; Claire Pentecost; Christina Victor; Roy W Jones; Ian R Jones; Martin Knapp; Rachael Litherland; Robin G Morris; Jennifer M Rusted; Jeanette M Thom; Rachel Collins; Catherine Henderson; Fiona E Matthews Journal: J Gerontol B Psychol Sci Soc Sci Date: 2022-10-06 Impact factor: 4.942
Authors: Chern Yi Marybeth Chang; Waqaar Baber; Tom Dening; Jennifer Yates Journal: Int J Environ Res Public Health Date: 2021-06-11 Impact factor: 3.390