Literature DB >> 28102483

Integrating Patient Concerns into Parkinson's Disease Management.

Shen-Yang Lim1,2, Ai Huey Tan3,4, Susan H Fox5, Andrew H Evans6, Soon Chai Low3.   

Abstract

Parkinson's disease (PD) is a complex motor and non-motor disorder and management is often challenging. In this review, we explore emerging approaches to improve the care of patients, drawing from the literature regarding patient-centred care, patient and caregiver perspectives and priorities, gaps in knowledge among patients and caregivers and the need for accurate information, individual variability in disease manifestations, prognostication of disease course, new developments in health technologies and personalized medicine, specialty care, pharmacological and non-pharmacological management, financial burden, lifestyle and work-related issues, support groups and palliative care.

Entities:  

Keywords:  Caregiver burden; Economic burden; Knowledge and awareness; Mobile health technology; Natural history; Non-motor symptoms; Parkinson’s disease; Patient perspective; Patient satisfaction; Patient-centred care; Personalized medicine; Quality of life; Sensors; Specialty care; Telehealth; Telemedicine; Work

Mesh：

Year:  2017        PMID： 28102483     DOI： 10.1007/s11910-017-0717-2

Source DB:  PubMed          Journal:  Curr Neurol Neurosci Rep        ISSN： 1528-4042            Impact factor:   5.081


  122 in total

Review 1.  The Movement Disorder Society Evidence-Based Medicine Review Update: Treatments for the motor symptoms of Parkinson's disease.

Authors:  Susan H Fox; Regina Katzenschlager; Shen-Yang Lim; Bernard Ravina; Klaus Seppi; Miguel Coelho; Werner Poewe; Olivier Rascol; Christopher G Goetz; Cristina Sampaio
Journal:  Mov Disord       Date:  2011-10       Impact factor: 10.338

2.  Parkinson's disease symptoms: the patient's perspective.

Authors:  Marios Politis; Kit Wu; Sophie Molloy; Peter G Bain; K Ray Chaudhuri; Paola Piccini
Journal:  Mov Disord       Date:  2010-08-15       Impact factor: 10.338

3.  Generalist plus specialist palliative care--creating a more sustainable model.

Authors:  Timothy E Quill; Amy P Abernethy
Journal:  N Engl J Med       Date:  2013-03-06       Impact factor: 91.245

4.  Revolutionising management of chronic disease: the ParkinsonNet approach.

Authors:  Bastiaan R Bloem; Marten Munneke
Journal:  BMJ       Date:  2014-03-19

5.  Psychosocial factors in Parkinson's disease.

Authors:  B MacCarthy; R Brown
Journal:  Br J Clin Psychol       Date:  1989-02

6.  Mental symptoms in Parkinson's disease are important contributors to caregiver distress.

Authors:  D Aarsland; J P Larsen; K Karlsen; N G Lim; E Tandberg
Journal:  Int J Geriatr Psychiatry       Date:  1999-10       Impact factor: 3.485

Review 7.  The Parkinson Progression Marker Initiative (PPMI).

Authors: 
Journal:  Prog Neurobiol       Date:  2011-09-14       Impact factor: 10.885

8.  Trial of CBT for impulse control behaviors affecting Parkinson patients and their caregivers.

Authors:  David Okai; Sally Askey-Jones; Michael Samuel; Sean S O'Sullivan; K Ray Chaudhuri; Anne Martin; Joel Mack; Richard G Brown; Anthony S David
Journal:  Neurology       Date:  2013-01-16       Impact factor: 9.910

9.  Getting it right: why bother with patient-centred care?

Authors:  Adrian E Bauman; H John Fardy; Peter G Harris
Journal:  Med J Aust       Date:  2003-09-01       Impact factor: 7.738

Review 10.  Induced pluripotent stem cells in Parkinson's disease: scientific and clinical challenges.

Authors:  Bin Xiao; Huck Hui Ng; Ryosuke Takahashi; Eng-King Tan
Journal:  J Neurol Neurosurg Psychiatry       Date:  2016-02-01       Impact factor: 10.154
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  9 in total

Review 1.  The impact of Tai Chi and Qigong mind-body exercises on motor and non-motor function and quality of life in Parkinson's disease: A systematic review and meta-analysis.

Authors:  R Song; W Grabowska; M Park; K Osypiuk; G P Vergara-Diaz; P Bonato; J M Hausdorff; M Fox; L R Sudarsky; E Macklin; P M Wayne
Journal:  Parkinsonism Relat Disord       Date:  2017-05-25       Impact factor: 4.891

Review 2.  Which type of mind-body exercise is most effective in improving functional performance and quality of life in patients with Parkinson's disease? A systematic review with network meta-analysis.

Authors:  Rustem Mustafaoglu; Ishtiaq Ahmed; Marco Y C Pang
Journal:  Acta Neurol Belg       Date:  2022-09-02       Impact factor: 2.471

3.  Living with Long term condition Scale: A pilot validation study of a new person centred tool in the UK.

Authors:  Leire Ambrosio; Kelly Hislop-Lennie; Hannah Barker; David Culliford; Mari Carmen Portillo
Journal:  Nurs Open       Date:  2021-03-15

4.  The Parkinson Care Advocate: Integrating Care Delivery.

Authors:  Leonard L Sokol; Debbie Shapiro; Michael J Young; Adina H Wise; Uri P Hadelsberg; Yakir Kaufman; Alberto J Espay; Aristide Merola
Journal:  Front Neurol       Date:  2017-07-27       Impact factor: 4.003

5.  Improving patient-centred care for persons with Parkinson's: Qualitative interviews with care partners about their engagement in discussions of "off" periods.

Authors:  Tara Rastgardani; Melissa J Armstrong; Connie Marras; Anna R Gagliardi
Journal:  Health Expect       Date:  2019-04-12       Impact factor: 3.377

6.  Impact of disease stage and age at Parkinson's onset on patients' primary concerns: Insights for targeted management.

Authors:  Roongroj Bhidayasiri; Thanatat Boonmongkol; Yuwadee Thongchuam; Saisamorn Phumphid; Nitinan Kantachadvanich; Pattamon Panyakaew; Priya Jagota; Rachaneewan Plengsri; Marisa Chokpatcharavate; Onanong Phokaewvarangkul
Journal:  PLoS One       Date:  2020-12-02       Impact factor: 3.240

7.  Co-designing a digital companion with people living with Parkinson's to support self-care in a personalized way: The eCARE-PD Study.

Authors:  Sylvie Grosjean; Jean-Luc Ciocca; Amélie Gauthier-Beaupré; Emely Poitras; David Grimes; Tiago Mestre
Journal:  Digit Health       Date:  2022-02-25

8.  Parkinson's Disease in the Middle East, North Africa, and South Asia: Consensus from the International Parkinson and Movement Disorder Society Task Force for the Middle East.

Authors:  Hanan Khalil; Lana M Chahine; Junaid Siddiqui; Mehri Salari; Shaimaa El-Jaafary; Zakiyah Aldaajani; Mishal Abu Al-Melh; Tareq Mohammad Mohammad; Muneer Abu Snineh; Nadir A Syed; Mohit Bhatt; Mohammad Ahsan Habib; Majed Habahbeh; Samer D Tabbal; Beomseok Jeon; Jawad A Bajwa
Journal:  J Parkinsons Dis       Date:  2020       Impact factor: 5.568

Review 9.  Translational Informatics for Parkinson's Disease: from Big Biomedical Data to Small Actionable Alterations.

Authors:  Bairong Shen; Yuxin Lin; Cheng Bi; Shengrong Zhou; Zhongchen Bai; Guangmin Zheng; Jing Zhou
Journal:  Genomics Proteomics Bioinformatics       Date:  2019-11-28       Impact factor: 7.691
  9 in total

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