Literature DB >> 28074605

Eye-tracking-based assessment suggests preserved well-being in locked-in patients.

Katharina Linse1, Wolfgang Rüger2, Markus Joos2, Henning Schmitz-Peiffer1, Alexander Storch1,3,4, Andreas Hermann1,3.   

Abstract

We assessed quality of life (QoL) and psychological well-being in patients with amyotrophic lateral sclerosis-induced locked-in state and their next of kin in a fully unbiased manner using eye-tracking computer systems. Eleven of 30 screened patients and 9 next of kin completed study procedures. Patients reported good QoL, which appeared to be at the cost of the QoL of their next of kin. Next of kin rated their own or patients' QoL similarly, but they identified different areas as important as compared with patients. Our results are of importance for the discussion of end-of-life decisions and the evaluation of patients' presumed wishes as well as for psychosocial interventions. Ann Neurol 2017;81:310-315.
© 2017 American Neurological Association.

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Mesh：

Year:  2017        PMID： 28074605     DOI： 10.1002/ana.24871

Source DB:  PubMed          Journal:  Ann Neurol        ISSN： 0364-5134            Impact factor:   10.422


  10 in total

1.  Converse well-being of locked-in patients and caregivers.

Authors:  Simone Renault; Amar Dhand
Journal:  Ann Neurol       Date:  2017-09       Impact factor: 10.422

2.  An observational study on quality of life and preferences to sustain life in locked-in state.

Authors:  Magdalena Kuzma-Kozakiewicz; Peter M Andersen; Katarzyna Ciecwierska; Cynthia Vázquez; Olga Helczyk; Markus Loose; Ingo Uttner; Albert C Ludolph; Dorothée Lulé
Journal:  Neurology       Date:  2019-08-07       Impact factor: 9.910

3.  Disease progression but not physical state per se determines mental wellbeing in ALS.

Authors:  Cynthia R Vázquez Medrano; Helena E A Aho-Özhan; Ulrike Weiland; Ingo Uttner; Albert C Ludolph; Dorothée Lulé
Journal:  J Neurol       Date:  2020-07-08       Impact factor: 4.849

Review 4.  New technologies and Amyotrophic Lateral Sclerosis - Which step forward rushed by the COVID-19 pandemic?

Authors:  Susana Pinto; Stefano Quintarelli; Vincenzo Silani
Journal:  J Neurol Sci       Date:  2020-08-05       Impact factor: 3.181

5.  A Nation-Wide, Multi-Center Study on the Quality of Life of ALS Patients in Germany.

Authors:  Tara Peseschkian; Isabell Cordts; René Günther; Benjamin Stolte; Daniel Zeller; Carsten Schröter; Ute Weyen; Martin Regensburger; Joachim Wolf; Ilka Schneider; Andreas Hermann; Moritz Metelmann; Zacharias Kohl; Ralf A Linker; Jan Christoph Koch; Boriana Büchner; Ulrike Weiland; Erik Schönfelder; Felix Heinrich; Alma Osmanovic; Thomas Klopstock; Johannes Dorst; Albert C Ludolph; Matthias Boentert; Tim Hagenacker; Marcus Deschauer; Paul Lingor; Susanne Petri; Olivia Schreiber-Katz
Journal:  Brain Sci       Date:  2021-03-14

6.  Quality of life and mental health in the locked-in-state-differences between patients with amyotrophic lateral sclerosis and their next of kin.

Authors:  Elisa Aust; Katharina Linse; Sven-Thomas Graupner; Markus Joos; Daniel Liebscher; Julian Grosskreutz; Johannes Prudlo; Thomas Meyer; René Günther; Sebastian Pannasch; Andreas Hermann
Journal:  J Neurol       Date:  2022-07-06       Impact factor: 6.682

7.  Exploratory evaluation of an eye-tracking system in patients with advanced spinal muscular atrophy type I receiving nusinersen.

Authors:  Yukako Yae; Kotaro Yuge; Toshiyuki Maeda; Fumio Ichinose; Muneaki Matsuo; Osamu Kobayashi; Kazuo Okanari; Yusei Baba; Chihiro Yonee; Shinsuke Maruyama; Minoru Shibata; Tatsuya Fujii; Madoka Chinen; Yushiro Yamashita
Journal:  Front Neurol       Date:  2022-09-30       Impact factor: 4.086

8.  Independent home use of a brain-computer interface by people with amyotrophic lateral sclerosis.

Authors:  Jonathan R Wolpaw; Richard S Bedlack; Domenic J Reda; Robert J Ringer; Patricia G Banks; Theresa M Vaughan; Susan M Heckman; Lynn M McCane; Charles S Carmack; Stefan Winden; Dennis J McFarland; Eric W Sellers; Hairong Shi; Tamara Paine; Donald S Higgins; Albert C Lo; Huned S Patwa; Katherine J Hill; Grant D Huang; Robert L Ruff
Journal:  Neurology       Date:  2018-06-27       Impact factor: 11.800

Review 9.  Communication Matters-Pitfalls and Promise of Hightech Communication Devices in Palliative Care of Severely Physically Disabled Patients With Amyotrophic Lateral Sclerosis.

Authors:  Katharina Linse; Elisa Aust; Markus Joos; Andreas Hermann
Journal:  Front Neurol       Date:  2018-07-27       Impact factor: 4.003

10.  The Dynamics of Attention Shifts Among Concurrent Speech in a Naturalistic Multi-speaker Virtual Environment.

Authors:  Keren Shavit-Cohen; Elana Zion Golumbic
Journal:  Front Hum Neurosci       Date:  2019-11-08       Impact factor: 3.169
  10 in total

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