Kerong Wang1, Wei-Ti Chen2, Lin Zhang3, MeiJuan Bao3, Hongxin Zhao4, Hongzhou Lu5. 1. HIV/AIDS Unit, Beijing Ditan Hospital, Capital Medical University, Beijing 100050, China. 2. School of Nursing, Yale University, Orange, CT 06477, USA. 3. Departemnt of Nursing, Shanghai Public Health Clinical Center, Shanghai 201508, China. 4. HIV/AIDS Unit, Beijing Ditan Hospital, Capital Medical University, Beijing 100050, China. Electronic address: 13911022130@163.com. 5. Departemnt of Nursing, Shanghai Public Health Clinical Center, Shanghai 201508, China. Electronic address: luhongzhou@fudan.edu.cn.
Abstract
AIMS: The aim is to explore perceived facilitators of and barriers to HIV self-management for HIV-positive Chinese women. BACKGROUND: Little is known about self-management among HIV-positive Chinese women in China. Understanding the experiences of this population is needed to promote self-management. METHODS: 27 in-depth interviews were conducted in Beijing and Shanghai. Facilitators included families being supportive after disclosure, patients learning how to live with HIV, antiretroviral therapy (ART) adherence, and rediscovering the meaning of life. Several barriers were also identified, including lack of support, stigma, fatigue, and financial difficulty. RESULTS: HIV disclosure is essential to obtaining necessary support. Ironically, disclosing to family members who stigmatize the disease may invite unwelcome responses. Helping HIV-positive women to decrease self-stigma and develop an effective way to disclose, if they choose to, is important. CONCLUSION: Future interventions should focus on disclosure strategies development and self-management to prevent isolation, enhance social support, and decrease self-stigma.
AIMS: The aim is to explore perceived facilitators of and barriers to HIV self-management for HIV-positive Chinese women. BACKGROUND: Little is known about self-management among HIV-positive Chinese women in China. Understanding the experiences of this population is needed to promote self-management. METHODS: 27 in-depth interviews were conducted in Beijing and Shanghai. Facilitators included families being supportive after disclosure, patients learning how to live with HIV, antiretroviral therapy (ART) adherence, and rediscovering the meaning of life. Several barriers were also identified, including lack of support, stigma, fatigue, and financial difficulty. RESULTS: HIV disclosure is essential to obtaining necessary support. Ironically, disclosing to family members who stigmatize the disease may invite unwelcome responses. Helping HIV-positive women to decrease self-stigma and develop an effective way to disclose, if they choose to, is important. CONCLUSION: Future interventions should focus on disclosure strategies development and self-management to prevent isolation, enhance social support, and decrease self-stigma.
Authors: Stephanie J C Taylor; Bridget Candy; Rosamund M Bryar; Jean Ramsay; Hubertus J M Vrijhoef; Glenda Esmond; Jadwiga A Wedzicha; Chris J Griffiths Journal: BMJ Date: 2005-08-10
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Authors: Lusungu Chirambo; Martha Valeta; Tifiness Mary Banda Kamanga; Alinane Linda Nyondo-Mipando Journal: BMC Public Health Date: 2019-10-28 Impact factor: 3.295