Literature DB >> 27878604

[Paediatric palliative care (PPC) - a particular challenge : Tasks, aims and specifics].

Boris Zernikow1, Barbara Gertz2, Carola Hasan2.   

Abstract

In Germany, there are about 50,000 children, adolescents and young adults with life threatening or life limiting conditions, who will likely die due to their illness before reaching the age of 40. In recent years prevalence has increased significantly.The aim of paediatric palliative care (PPC) is to optimize quality of life for the child, adolescent or young adult and its whole family. Whenever possible the patient should be treated at home.The very complex and rare diseases as well as the patients' wide range of age and developmental stage are particularly challenging within PPC. Many PPC patients have cognitive disabilities and are not able to communicate verbally. In contrast to adult palliative care, PPC is often delivered for many years.To date, families with a child suffering from a life limiting condition have access to several care systems; however most of them are still financed by donations. One of PPC's most important tasks is the implementation of individual case management to find the right mix of care provision, its flexible adaption on changing needs and the appropriate intensity of care.Specific education and training courses in the field of PPC are still rare. There is a single chair for childrens' pain therapy and paediatric palliative care at Witten/Herdecke University in Germany. In addition, quality-checked multiprofessional PPC courses for the additional "palliative health care professional" designation based on the Dattelner Curriculum are offered at several institutions.

Entities:  

Keywords:  Adolescents; Children; Healthcare structures; Life-limiting diseases; Palliative care

Mesh:

Year:  2017        PMID: 27878604     DOI: 10.1007/s00103-016-2479-4

Source DB:  PubMed          Journal:  Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz        ISSN: 1436-9990            Impact factor:   1.513


  5 in total

1.  Study protocol: evaluation of specialized outpatient palliative care (SOPC) in the German state of Hesse (ELSAH study) - work package II: palliative care for pediatric patients.

Authors:  Lisa-R Ulrich; Dania Gruber; Michaela Hach; Stefan Boesner; Joerg Haasenritter; Katrin Kuss; Hannah Seipp; Ferdinand M Gerlach; Antje Erler
Journal:  BMC Palliat Care       Date:  2018-01-05       Impact factor: 3.234

2.  A Sleep Questionnaire for Children with Severe Psychomotor Impairment (SNAKE)-Concordance with a Global Rating of Sleep Quality.

Authors:  Larissa Alice Dreier; Boris Zernikow; Markus Blankenburg; Julia Wager
Journal:  Children (Basel)       Date:  2018-02-01

3.  Planning for Implementation Success of an Electronic Cross-Facility Health Record for Pediatric Palliative Care Using the Consolidated Framework for Implementation Research (CFIR).

Authors:  Theresa Sophie Busse; Sven Kernebeck; Larissa Alice Dreier; Dorothee Meyer; Daniel Zenz; Peter Haas; Boris Zernikow; Jan Peter Ehlers
Journal:  Int J Environ Res Public Health       Date:  2022-01-01       Impact factor: 3.390

4.  Care practices of specialized outpatient pediatric palliative care teams in collaboration with parents: Results of participatory observations.

Authors:  Dania Schuetze; Cornelia Ploeger; Michaela Hach; Hannah Seipp; Katrin Kuss; Stefan Bösner; Ferdinand M Gerlach; Marjan van den Akker; Antje Erler; Jennifer Engler
Journal:  Palliat Med       Date:  2021-12-20       Impact factor: 4.762

5.  [Specialized outpatient palliative care for children, adolescents, and their families-the special needs of the target group. Results of the ELSAH study].

Authors:  Jennifer Engler; Dania Schütze; Michaela Hach; Cornelia Ploeger; Fabian Engler; Antje Erler
Journal:  Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz       Date:  2022-02-02       Impact factor: 1.513

  5 in total

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