Literature DB >> 27863233

Are Data Sharing and Privacy Protection Mutually Exclusive?

Yann Joly1, Stephanie O M Dyke2, Bartha M Knoppers2, Tomi Pastinen3.   

Abstract

We review emerging strategies to protect the privacy of research participants in international epigenome research: open consent, genome donation, registered access, automated procedures, and privacy-enhancing technologies.
Copyright © 2016 Elsevier Inc. All rights reserved.

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Mesh：

Year:  2016        PMID： 27863233     DOI： 10.1016/j.cell.2016.11.004

Source DB:  PubMed          Journal:  Cell        ISSN： 0092-8674            Impact factor:   41.582


  17 in total

1.  Data Sanitization to Reduce Private Information Leakage from Functional Genomics.

Authors:  Gamze Gürsoy; Prashant Emani; Charlotte M Brannon; Otto A Jolanki; Arif Harmanci; J Seth Strattan; J Michael Cherry; Andrew D Miranker; Mark Gerstein
Journal:  Cell       Date:  2020-11-12       Impact factor: 41.582

Review 2.  Functional genomics data: privacy risk assessment and technological mitigation.

Authors:  Gamze Gürsoy; Tianxiao Li; Susanna Liu; Eric Ni; Charlotte M Brannon; Mark B Gerstein
Journal:  Nat Rev Genet       Date:  2021-11-10       Impact factor: 53.242

3.  Sharing and Safeguarding Pediatric Data.

Authors:  Dimitri Patrinos; Bartha Maria Knoppers; David P Laplante; Noriyeh Rahbari; Ashley Wazana
Journal:  Front Genet       Date:  2022-06-20       Impact factor: 4.772

Review 4.  Data Sharing: Convert Challenges into Opportunities.

Authors:  Ana Sofia Figueiredo
Journal:  Front Public Health       Date:  2017-12-04

5.  Sharing longitudinal, non-biological birth cohort data: a cross-sectional analysis of parent consent preferences.

Authors:  Kiran Pohar Manhas; Shawn X Dodd; Stacey Page; Nicole Letourneau; Carol E Adair; Xinjie Cui; Suzanne C Tough
Journal:  BMC Med Inform Decis Mak       Date:  2018-11-12       Impact factor: 2.796

6.  Genetic Risk Scores for Diabetes Diagnosis and Precision Medicine.

Authors:  Miriam S Udler; Mark I McCarthy; Jose C Florez; Anubha Mahajan
Journal:  Endocr Rev       Date:  2019-12-01       Impact factor: 19.871

7.  Implementing the FAIR Data Principles in precision oncology: review of supporting initiatives.

Authors:  Charles Vesteghem; Rasmus Froberg Brøndum; Mads Sønderkær; Mia Sommer; Alexander Schmitz; Julie Støve Bødker; Karen Dybkær; Tarec Christoffer El-Galaly; Martin Bøgsted
Journal:  Brief Bioinform       Date:  2020-05-21       Impact factor: 11.622

Review 8.  Responsible, practical genomic data sharing that accelerates research.

Authors:  James Brian Byrd; Anna C Greene; Deepashree Venkatesh Prasad; Xiaoqian Jiang; Casey S Greene
Journal:  Nat Rev Genet       Date:  2020-07-21       Impact factor: 53.242

9.  Analysis of sensitive information leakage in functional genomics signal profiles through genomic deletions.

Authors:  Arif Harmanci; Mark Gerstein
Journal:  Nat Commun       Date:  2018-06-22       Impact factor: 14.919

10.  Issues and Challenges Associated with Data-Sharing in LMICs: Perspectives of Researchers in Thailand.

Authors:  Jaranit Kaewkungwal; Pornpimon Adams; Jetsumon Sattabongkot; Reidar K Lie; David Wendler
Journal:  Am J Trop Med Hyg       Date:  2020-05-07       Impact factor: 2.345
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