Literature DB >> 27830281

A family information brochure and dedicated website to improve the ICU experience for patients' relatives: an Italian multicenter before-and-after study.

Giovanni Mistraletti1,2, Michele Umbrello3, Elena Silvia Mantovani3, Benedetta Moroni4, Paolo Formenti3, Paolo Spanu3, Stefania Anania3, Elisa Andrighi3, Alessandra Di Carlo3, Federica Martinetti3, Irene Vecchi3, Alessandra Palo5, Cristina Pinna6, Riccarda Russo7, Silvia Francesconi8, Federico Valdambrini9, Enrica Ferretti10, Giulio Radeschi11, Edda Bosco12, Paolo Malacarne13, Gaetano Iapichino4,3.   

Abstract

PURPOSE: Good communication between ICU staff and patients' relatives may reduce the occurrence of post-traumatic stress disorder, anxiety or depression, and dissatisfaction with clinicians. An information brochure and website to meet relatives' needs were designed to explain in technical yet simple terms what happens during and after an ICU stay, to legitimize emotions such as fear, apprehension, and suffering, and to improve cooperation with relatives without increasing staff workload. The main outcomes were improved understanding of prognosis and procedures, and decrease of relatives' anxiety, depression, and stress symptoms.
METHODS: In this prospective multicenter before-and-after study, a self-administered questionnaire was used to investigate relatives' understanding of prognosis, treatments, and organ dysfunction, families' satisfaction, and symptoms of anxiety, depression, and post-traumatic stress.
RESULTS: A total of 551 relatives received questionnaires in nine Italian ICUs; 332 (60%) responded, 144 before and 179 after implementation of the brochure and website. Of the 179 relatives who responded after, 131 (73%) stated they had read the brochure and 34 (19%) reported viewing the website. The intervention was associated with increased correct understanding of the prognosis (from 69 to 84%, p = 0.04) and the therapeutic procedures (from 17 to 28%, p = 0.03). Multivariable analysis, together with non-modifiable factors (relative's gender, education level, relationship to patient, and patient status at ICU discharge), showed the intervention to be significantly associated with a lower incidence of post-traumatic stress symptoms (Poisson coefficient = -0.29, 95% CI -0.52/-0.07). The intervention had no effect on the prevalence of symptoms of anxiety and depression.
CONCLUSION: An information brochure and website designed to meet relatives' needs improved family members' comprehension and reduced their prevalence of stress symptoms.

Entities:  

Keywords:  Communication strategies; Critically ill patients; ICU families; Post-traumatic stress disorder; Website

Mesh:

Year:  2016        PMID: 27830281     DOI: 10.1007/s00134-016-4592-0

Source DB:  PubMed          Journal:  Intensive Care Med        ISSN: 0342-4642            Impact factor:   17.440


  41 in total

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Authors:  Gunther Eysenbach; John Powell; Oliver Kuss; Eun-Ryoung Sa
Journal:  JAMA       Date:  2002 May 22-29       Impact factor: 56.272

2.  Barbara's story: a thematic analysis of a relative's reflection of being in the intensive care unit.

Authors:  Martin Christensen; Barbara Probst
Journal:  Nurs Crit Care       Date:  2014-12-08       Impact factor: 2.325

3.  Risk of post-traumatic stress symptoms in family members of intensive care unit patients.

Authors:  Elie Azoulay; Frédéric Pochard; Nancy Kentish-Barnes; Sylvie Chevret; Jérôme Aboab; Christophe Adrie; Djilali Annane; Gérard Bleichner; Pierre Edouard Bollaert; Michael Darmon; Thomas Fassier; Richard Galliot; Maité Garrouste-Orgeas; Cyril Goulenok; Dany Goldgran-Toledano; Jan Hayon; Mercé Jourdain; Michel Kaidomar; Christian Laplace; Jérôme Larché; Jérôme Liotier; Laurent Papazian; Catherine Poisson; Jean Reignier; Fayçal Saidi; Benoît Schlemmer
Journal:  Am J Respir Crit Care Med       Date:  2005-01-21       Impact factor: 21.405

4.  Short-term psychological impact on family members of intensive care unit patients.

Authors:  Thomas Paparrigopoulos; Antigoni Melissaki; Anna Efthymiou; Hara Tsekou; Chrysoula Vadala; Georgia Kribeni; Elias Pavlou; Constantin Soldatos
Journal:  J Psychosom Res       Date:  2006-11       Impact factor: 3.006

Review 5.  Long-term complications of critical care.

Authors:  Sanjay V Desai; Tyler J Law; Dale M Needham
Journal:  Crit Care Med       Date:  2011-02       Impact factor: 7.598

6.  Relatives' experiences in intensive care--finding a place in a world of uncertainty.

Authors:  Anne Sophie Agård; Ingegerd Harder
Journal:  Intensive Crit Care Nurs       Date:  2007-01-17       Impact factor: 3.072

7.  Symptom experiences of family members of intensive care unit patients at high risk for dying.

Authors:  Jennifer L McAdam; Kathleen A Dracup; Douglas B White; Dorothy K Fontaine; Kathleen A Puntillo
Journal:  Crit Care Med       Date:  2010-04       Impact factor: 7.598

8.  Junior versus senior physicians for informing families of intensive care unit patients.

Authors:  Delphine Moreau; Dany Goldgran-Toledano; Corinne Alberti; Mercé Jourdain; Christophe Adrie; Djilali Annane; Maité Garrouste-Orgeas; Jean-Yves Lefrant; Laurent Papazian; Philippe Quinio; Frédéric Pochard; Elie Azoulay
Journal:  Am J Respir Crit Care Med       Date:  2003-12-04       Impact factor: 21.405

Review 9.  Patient satisfaction: Implications and predictors of success.

Authors:  Eric D Shirley; James O Sanders
Journal:  J Bone Joint Surg Am       Date:  2013-05-15       Impact factor: 5.284

10.  Enteral vs. intravenous ICU sedation management: study protocol for a randomized controlled trial.

Authors:  Giovanni Mistraletti; Elena S Mantovani; Paolo Cadringher; Barbara Cerri; Davide Corbella; Michele Umbrello; Stefania Anania; Elisa Andrighi; Serena Barello; Alessandra Di Carlo; Federica Martinetti; Paolo Formenti; Paolo Spanu; Gaetano Iapichino
Journal:  Trials       Date:  2013-04-03       Impact factor: 2.279

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  14 in total

1.  ICU experience for patients' relatives: is information all that matters? : Discussion on "A family information brochure and dedicated website to improve the ICU experience for patients' relatives: an Italian multicenter before-and-after study".

Authors:  Vaitsa Giannouli; Giovanni Mistraletti; Michele Umbrello
Journal:  Intensive Care Med       Date:  2017-02-24       Impact factor: 17.440

2.  Provided information and parents' comprehension at the time of admission of their child in pediatric intensive care unit.

Authors:  Agathe Béranger; Charlotte Pierron; Laure de Saint Blanquat; Naïm Bouazza; Sandrine Jean; Hélène Chappuy
Journal:  Eur J Pediatr       Date:  2017-12-21       Impact factor: 3.183

3.  Focus on ethics and palliative care in the intensive care unit.

Authors:  Katherine R Courtright; Dominique D Benoit; J Randall Curtis
Journal:  Intensive Care Med       Date:  2019-03-25       Impact factor: 17.440

4.  Information or education interventions for adult intensive care unit (ICU) patients and their carers.

Authors:  Sharon R Lewis; Michael W Pritchard; Oliver J Schofield-Robinson; David Jw Evans; Phil Alderson; Andrew F Smith
Journal:  Cochrane Database Syst Rev       Date:  2018-10-13

5.  Evaluation of a strategy for enrolling the families of critically ill patients in research using limited human resources.

Authors:  Alison E Turnbull; Mohamed D Hashem; Anahita Rabiee; An To; Caroline M Chessare; Dale M Needham
Journal:  PLoS One       Date:  2017-05-25       Impact factor: 3.240

6.  How COVID-19 pandemic changed our communication with families: losing nonverbal cues.

Authors:  Annachiara Marra; Pasquale Buonanno; Maria Vargas; Carmine Iacovazzo; Eugene Wesley Ely; Giuseppe Servillo
Journal:  Crit Care       Date:  2020-06-05       Impact factor: 9.097

7.  Prioritizing information topics for relatives of critically ill patients : Cross-sectional survey among intensive care unit relatives and professionals.

Authors:  Magdalena Hoffmann; Anna K Holl; Harald Burgsteiner; Philipp Eller; Thomas R Pieber; Karin Amrein
Journal:  Wien Klin Wochenschr       Date:  2018-08-09       Impact factor: 1.704

8.  Validation and Analysis of the European Quality Questionnaire in Italian Language.

Authors:  Leopoldo M Amendola; Alessandro Galazzi; Irene Zainaghi; Ivan Cortinovis; Anna Zolin; Rik T Gerritsen; Ileana Adamini; Maura Lusignani; Dario Laquintana
Journal:  Int J Environ Res Public Health       Date:  2020-11-28       Impact factor: 3.390

Review 9.  [Online information for relatives of critically ill patients : Pilot test of the usability of an ICU families website].

Authors:  M Hoffmann; M Taibinger; A K Holl; H Burgsteiner; T R Pieber; P Eller; G Sendlhofer; K Amrein
Journal:  Med Klin Intensivmed Notfmed       Date:  2018-08-06       Impact factor: 0.840

10.  A brief intervention for preparing ICU families to be proxies: A phase I study.

Authors:  Alison E Turnbull; Caroline M Chessare; Rachel K Coffin; Dale M Needham
Journal:  PLoS One       Date:  2017-10-02       Impact factor: 3.240

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