Sapna Kaul1, Rochelle R Smits-Seemann2, Eduardo R Zamora3, Holly Spraker-Perlman4,5, Kevin J Boyle6, Anne C Kirchhoff2,5. 1. 1 Department of Preventive Medicine and Community Health, University of Texas Medical Branch , Galveston, Texas. 2. 2 Huntsman Cancer Institute, University of Utah , Salt Lake City, Utah. 3. 3 Utah Department of Health , Salt Lake City, Utah. 4. 4 Primary Children's Hospital, University of Utah , Salt Lake City, Utah. 5. 5 Department of Pediatrics, University of Utah , Salt Lake City, Utah. 6. 6 Program in Real Estate, Virginia Tech , Blacksburg, Virginia.
Abstract
PURPOSE: Examine whether survivors of adolescent and young adult (AYA) cancer value recommended post-treatment care using focus groups and a willingness to pay (WTP) survey. WTP, a measure of value, indicates the dollar amount individuals are willing to pay to use a service. METHODS: Participants were recruited through the Utah Cancer Registry. N = 28 survivors diagnosed with cancer at ages 15-39 and currently aged ≥18 participated in focus groups, and N = 4 in phone interviews (participation rate = 50%). All participants responded to a demographic survey and WTP questions based on one-time and monthly payments for annual visits. Focus group participants responded to an open-ended question on the value of follow-up care. Interval regressions identified factors associated with WTP. Qualitative analysis summarized themes for the open-ended question. RESULTS: Focus group participants reported valuing follow-up care as it brings peace of mind and helps them manage their health. Yet, 38% reported not having a cancer-related visit in the previous year. Only 27% and 43% of survivors agreed to pay any one-time and monthly payments, respectively. The monthly payment mean WTP was $41 (95% confidence interval [CI]: 31-84), equating to $494 annually, which is greater than the mean WTP for one-time payment ($362, 95% CI: 293-432, p < 0.001), suggesting that survivors may prefer monthly payments. Several factors, including being female and in better health, predicted higher WTP. CONCLUSION: Many AYA cancer survivors report not visiting their doctors annually for post-treatment care despite verbally valuing care. Models that demonstrate high quality and distribute costs over time should be evaluated to encourage survivors to receive recommended care.
PURPOSE: Examine whether survivors of adolescent and young adult (AYA) cancer value recommended post-treatment care using focus groups and a willingness to pay (WTP) survey. WTP, a measure of value, indicates the dollar amount individuals are willing to pay to use a service. METHODS:Participants were recruited through the Utah Cancer Registry. N = 28 survivors diagnosed with cancer at ages 15-39 and currently aged ≥18 participated in focus groups, and N = 4 in phone interviews (participation rate = 50%). All participants responded to a demographic survey and WTP questions based on one-time and monthly payments for annual visits. Focus group participants responded to an open-ended question on the value of follow-up care. Interval regressions identified factors associated with WTP. Qualitative analysis summarized themes for the open-ended question. RESULTS: Focus group participants reported valuing follow-up care as it brings peace of mind and helps them manage their health. Yet, 38% reported not having a cancer-related visit in the previous year. Only 27% and 43% of survivors agreed to pay any one-time and monthly payments, respectively. The monthly payment mean WTP was $41 (95% confidence interval [CI]: 31-84), equating to $494 annually, which is greater than the mean WTP for one-time payment ($362, 95% CI: 293-432, p < 0.001), suggesting that survivors may prefer monthly payments. Several factors, including being female and in better health, predicted higher WTP. CONCLUSION: Many AYA cancer survivors report not visiting their doctors annually for post-treatment care despite verbally valuing care. Models that demonstrate high quality and distribute costs over time should be evaluated to encourage survivors to receive recommended care.
Entities:
Keywords:
adolescent and young adult; cancer; follow-up care; survivors; values; willingness to pay
Authors: M Ryan; D A Scott; C Reeves; A Bate; E R van Teijlingen; E M Russell; M Napper; C M Robb Journal: Health Technol Assess Date: 2001 Impact factor: 4.014
Authors: Peter F Coccia; Jessica Altman; Smita Bhatia; Scott C Borinstein; Joseph Flynn; Suzanne George; Robert Goldsby; Robert Hayashi; Mary S Huang; Rebecca H Johnson; Lynda Kwon Beaupin; Michael P Link; Kevin C Oeffinger; Kathleen M Orr; Alberto S Pappo; Damon Reed; Holly L Spraker; Deborah A Thomas; Margaret von Mehren; Daniel S Wechsler; Kimberly F Whelan; Bradley J Zebrack; Hema Sundar; Dorothy A Shead Journal: J Natl Compr Canc Netw Date: 2012-09 Impact factor: 11.908
Authors: Linda C Harlan; Charles F Lynch; Theresa H M Keegan; Ann S Hamilton; Xiao-Cheng Wu; Ikuko Kato; Michele M West; Rosemary D Cress; Stephen M Schwartz; Ashley W Smith; Dennis Deapen; Sonja M Stringer; Arnold L Potosky Journal: J Cancer Surviv Date: 2011-01-28 Impact factor: 4.442
Authors: Joemy M Ramsay; Karely Mann; Sapna Kaul; Eduardo R Zamora; Rochelle R Smits-Seemann; Anne C Kirchhoff Journal: J Adolesc Young Adult Oncol Date: 2018-01-18 Impact factor: 2.223
Authors: Hilary C Tanenbaum; Lanfang Xu; Erin E Hahn; Julie Wolfson; Smita Bhatia; Kim Cannavale; Robert Cooper; Chun Chao Journal: Prev Med Rep Date: 2020-12-01