Chloe Fletcher1, Ingrid Flight2, Janine Chapman1, Kate Fennell3, Carlene Wilson3. 1. Flinders Centre for Innovation in Cancer, School of Medicine, Flinders University, Adelaide, Australia. 2. Flinders Centre for Innovation in Cancer, School of Medicine, Flinders University, Adelaide, Australia. Electronic address: ingrid.flight@flinders.edu.au. 3. Flinders Centre for Innovation in Cancer, School of Medicine, Flinders University, Adelaide, Australia; Cancer Council SA, Adelaide, Australia.
Abstract
OBJECTIVE: To provide an updated synthesis of the literature that investigates the self-reported information needs of people diagnosed with cancer across the cancer continuum. METHODS: We conducted a scoping review of the literature published from August 2003 to June 2015 and expanded an existing typology summarizing the information needs of people diagnosed with cancer. RESULTS: The majority of the included studies (n=104) focused on questions relevant to the diagnosis/active treatment phase of the cancer continuum (52.9%) and thus the most frequently identified information needs related to this phase (33.4%). Information needs varied across the continuum and the results highlight the importance of recognising this fact. CONCLUSION: People diagnosed with cancer experience discrete information needs at different points from diagnosis to survival. Much of the research conducted in this area has focused on their information needs during the diagnosis and treatment of cancer, and literature relating to information needs following completion of treatment is sparse. PRACTICE IMPLICATIONS: Further research is needed to discern the specific nature of the treatment concerns and identify the information needs that survivors experience during recurrence of cancer, metastasis or changes in diagnosis, and the end of life phase of the cancer continuum.
OBJECTIVE: To provide an updated synthesis of the literature that investigates the self-reported information needs of people diagnosed with cancer across the cancer continuum. METHODS: We conducted a scoping review of the literature published from August 2003 to June 2015 and expanded an existing typology summarizing the information needs of people diagnosed with cancer. RESULTS: The majority of the included studies (n=104) focused on questions relevant to the diagnosis/active treatment phase of the cancer continuum (52.9%) and thus the most frequently identified information needs related to this phase (33.4%). Information needs varied across the continuum and the results highlight the importance of recognising this fact. CONCLUSION:People diagnosed with cancer experience discrete information needs at different points from diagnosis to survival. Much of the research conducted in this area has focused on their information needs during the diagnosis and treatment of cancer, and literature relating to information needs following completion of treatment is sparse. PRACTICE IMPLICATIONS: Further research is needed to discern the specific nature of the treatment concerns and identify the information needs that survivors experience during recurrence of cancer, metastasis or changes in diagnosis, and the end of life phase of the cancer continuum.
Authors: T G Smith; M E Dunn; K Y Levin; S P Tsakraklides; S A Mitchell; L V van de Poll-Franse; K C Ward; C L Wiggins; X C Wu; M Hurlbert; N K Aaronson Journal: Qual Life Res Date: 2019-08-09 Impact factor: 4.147
Authors: Jo Brett; Mary Boulton; Debbie Fenlon; Nick J Hulbert-Williams; Fiona M Walter; Peter Donnelly; Bernadette A Lavery; Adrienne Morgan; Carolyn Morris; Eila K Watson Journal: Patient Prefer Adherence Date: 2018-02-16 Impact factor: 2.711