Lise Bjerrum Thisted1,2, Vibeke Zoffmann3,4,5, Mette Linnet Olesen3,4,6. 1. Rigshospitalet, University Hospital of Copenhagen, Blegdamsvej, Copenhagen, Denmark. lise.bjerrum.thisted@regionh.dk. 2. Unit of Cancer Rehabilitation, Clinic of Oncology, Department 9601, Finsen Centre, Copenhagen, Denmark. lise.bjerrum.thisted@regionh.dk. 3. Rigshospitalet, University Hospital of Copenhagen, Blegdamsvej, Copenhagen, Denmark. 4. Department 7821, Research Unit for Womens and Childrens Health, Copenhagen, Denmark. 5. Department of Public Health, University of Copenhagen, Copenhagen, Denmark. 6. Department of Gynecology, Copenhagen, Denmark.
Abstract
PURPOSE: To explore how participants perceived a nurse-led, person-centered intervention, Guided Self-Determination Gynecological Cancer (GSD-GYN-C) and how participants felt it influenced the challenges they faced and their rehabilitation after gynecological cancer surgery. METHODS: Participants were invited from a previously conducted randomized trial where GSD-GYN-C improved physical quality of life in the intervention group. Ten semi-structured interviews were conducted, transcribed, and analyzed using thematic analysis. RESULTS: Three central themes were identified: (1) "labeled as the lucky ones," which describes a contrast between the women's perceived problems and the healthcare professionals' tendency to stress their luck in being treated early and cured with no particular problems in sight, leading to an unintended delay in their rehabilitation process; (2) "personal reflections pave the way for change," which shows how new problem-solving skills were mobilized when reflection sheets and dialogue on GSD-GYN-C provided new insight into their situation and the feeling of being taken seriously; and (3) "emerging relational competence," which describes the new skills the women developed in interacting with family, friends, colleagues, and healthcare professionals. CONCLUSIONS: As a supplement to usual care, GSD-GYN-C remedied a tendency among healthcare professionals to underestimate problems in the early stages of gynecological cancer, and GSD-GYN-C involved the women in their rehabilitation process characterized by active problem-solving in relationships with other people.
RCT Entities:
PURPOSE: To explore how participants perceived a nurse-led, person-centered intervention, Guided Self-Determination Gynecological Cancer (GSD-GYN-C) and how participants felt it influenced the challenges they faced and their rehabilitation after gynecological cancer surgery. METHODS:Participants were invited from a previously conducted randomized trial where GSD-GYN-C improved physical quality of life in the intervention group. Ten semi-structured interviews were conducted, transcribed, and analyzed using thematic analysis. RESULTS: Three central themes were identified: (1) "labeled as the lucky ones," which describes a contrast between the women's perceived problems and the healthcare professionals' tendency to stress their luck in being treated early and cured with no particular problems in sight, leading to an unintended delay in their rehabilitation process; (2) "personal reflections pave the way for change," which shows how new problem-solving skills were mobilized when reflection sheets and dialogue on GSD-GYN-C provided new insight into their situation and the feeling of being taken seriously; and (3) "emerging relational competence," which describes the new skills the women developed in interacting with family, friends, colleagues, and healthcare professionals. CONCLUSIONS: As a supplement to usual care, GSD-GYN-C remedied a tendency among healthcare professionals to underestimate problems in the early stages of gynecological cancer, and GSD-GYN-C involved the women in their rehabilitation process characterized by active problem-solving in relationships with other people.
Authors: Angela G E M de Boer; Taina Taskila; Anneli Ojajärvi; Frank J H van Dijk; Jos H A M Verbeek Journal: JAMA Date: 2009-02-18 Impact factor: 56.272
Authors: Saskia F A Duijts; Martine P van Egmond; Evelien Spelten; Peter van Muijen; Johannes R Anema; Allard J van der Beek Journal: Psychooncology Date: 2013-12-23 Impact factor: 3.894