Literature DB >> 27699628

Issues Arising in Psychological Consultations to Help Parents Talk to Minor and Young Adult Children about their Cancer Genetic Test Result: a Guide to Providers.

Andrea Farkas Patenaude1,2,3, Katherine A Schneider4.   

Abstract

The defining difference between genetic and traditional medicine is that genetic findings have implications not just for the patient, but also for their relatives. Discussion of a test result between parent and child is both a transformative and a translational moment in the life of a family. Parents report wanting help in talking to their children. The challenge for genetic counselors and other providers is to be able to recognize which issues are at the core of parental distress and be able to offer recommendations to empower and support parents. The complexity of potential genetic findings, including variants of uncertain significance (VUS) and incidental findings have vastly increased, requiring considerable explanation and leaving less time for discussion of emotional issues. While the nature of the testing (single gene to multigene panel and genomic testing) is dramatically changing, the nature of parent concerns remains remarkably constant. Families differ in many respects, so no "recipe" suffices to answer parents' questions about how this important task should be approached in each family. Successful consultation to parents requires true counseling, matching parents' fears and questions with information, exploration and advice specific to their concerns, their circumstances and strengths.

Entities:  

Keywords:  Counseling; Family communication; Genetic testing; Psychological consultation

Mesh:

Year:  2016        PMID: 27699628     DOI: 10.1007/s10897-016-0010-6

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  30 in total

1.  The evolution of cancer risk assessment in the era of next generation sequencing.

Authors:  Heather Fecteau; Kristen J Vogel; Kristen Hanson; Shannon Morrill-Cornelius
Journal:  J Genet Couns       Date:  2014-04-24       Impact factor: 2.537

Review 2.  Genetics, genomics, and cancer risk assessment: State of the Art and Future Directions in the Era of Personalized Medicine.

Authors:  Jeffrey N Weitzel; Kathleen R Blazer; Deborah J MacDonald; Julie O Culver; Kenneth Offit
Journal:  CA Cancer J Clin       Date:  2011-08-19       Impact factor: 508.702

3.  Matching health messages to monitor-blunter coping styles to motivate screening mammography.

Authors:  Pamela Williams-Piehota; Judith Pizarro; Tamera R Schneider; Linda Mowad; Peter Salovey
Journal:  Health Psychol       Date:  2005-01       Impact factor: 4.267

4.  Learning of your parent's BRCA mutation during adolescence or early adulthood: a study of offspring experiences.

Authors:  Angela R Bradbury; Linda Patrick-Miller; Kimberly Pawlowski; Comfort N Ibe; Shelly A Cummings; Fay Hlubocky; Olufunmilayo I Olopade; Christopher K Daugherty
Journal:  Psychooncology       Date:  2009-02       Impact factor: 3.894

5.  We are talking, but are they listening? Communication patterns in families with a history of breast/ovarian cancer (HBOC).

Authors:  Regina Kenen; Audrey Arden-Jones; Rosalind Eeles
Journal:  Psychooncology       Date:  2004-05       Impact factor: 3.894

6.  Information needs of mothers regarding communicating BRCA1/2 cancer genetic test results to their children.

Authors:  Kenneth P Tercyak; Beth N Peshkin; Tiffani A Demarco; Andrea Farkas Patenaude; Katherine A Schneider; Judy E Garber; Heiddis B Valdimarsdottir; Marc D Schwartz
Journal:  Genet Test       Date:  2007

7.  How often do BRCA mutation carriers tell their young children of the family's risk for cancer? A study of parental disclosure of BRCA mutations to minors and young adults.

Authors:  Angela R Bradbury; James J Dignam; Comfort N Ibe; Sogyong L Auh; Fay J Hlubocky; Shelly A Cummings; Melody White; Olufunmilayo I Olopade; Christopher K Daugherty
Journal:  J Clin Oncol       Date:  2007-08-20       Impact factor: 44.544

8.  BRCA1/2 predictive testing and gender: uptake, motivation and psychological characteristics.

Authors:  L Denayer; A Boogaerts; K Philippe; E Legius; G Evers-Kiebooms
Journal:  Genet Couns       Date:  2009

9.  "Am I my genes?": Questions of identity among individuals confronting genetic disease.

Authors:  Robert Klitzman
Journal:  Genet Med       Date:  2009-12       Impact factor: 8.822

10.  Breast Cancer Risk Perceptions among Relatives of Women with Uninformative Negative BRCA1/2 Test Results: The Moderating Effect of the Amount of Shared Information.

Authors:  Deborah O Himes; Margaret F Clayton; Gary W Donaldson; Lee Ellington; Saundra S Buys; Anita Y Kinney
Journal:  J Genet Couns       Date:  2015-08-07       Impact factor: 2.537

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  5 in total

1.  Special Issue Introduction: Dealing with Psychological and Social Complexity in Genetic Counseling.

Authors:  Luba Djurdjinovic; June A Peters
Journal:  J Genet Couns       Date:  2017-03-07       Impact factor: 2.537

Review 2.  Family Communication, Risk Perception and Cancer Knowledge of Young Adults from BRCA1/2 Families: a Systematic Review.

Authors:  Alison L Young; Phyllis N Butow; Janine Vetsch; Veronica F Quinn; Andrea F Patenaude; Katherine M Tucker; Claire E Wakefield
Journal:  J Genet Couns       Date:  2017-06-30       Impact factor: 2.537

3.  The Influence of Adolescence on Parents' Perspectives of Testing and Discussing Inherited Cancer Predisposition.

Authors:  Corinna L Schultz; Melissa A Alderfer; Robert B Lindell; Zachary McClain; Kristin Zelley; Kim E Nichols; Carol A Ford
Journal:  J Genet Couns       Date:  2018-06-16       Impact factor: 2.537

4.  Talking with Children About Adult-Onset Hereditary Cancer Risk: A Developmental Approach for Parents.

Authors:  Allison Werner-Lin; Shana L Merrill; Amanda C Brandt; Rachel E Barnett; Ellen T Matloff
Journal:  J Genet Couns       Date:  2018-01-30       Impact factor: 2.537

5.  Impact of a Genetic Evaluation Initiative to Increase Access to Genetic Services for Adolescent and Young Adults at a Tertiary Cancer Hospital.

Authors:  Sukh Makhnoon; Jessica Corredor; Banu Arun; Donna Bell; Angela Yarbrough; John Andrew Livingston; Susan K Peterson; Michael Roth
Journal:  J Adolesc Young Adult Oncol       Date:  2020-08-19       Impact factor: 1.757

  5 in total

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