| Literature DB >> 27697748 |
Courtney Rees Lyles1, Jill Y Allen, Dolly Poole, Lina Tieu, Michael H Kanter, Terhilda Garrido.
Abstract
BACKGROUND: Despite the widespread implementation of electronic health records (EHRs), there is growing evidence that racial/ethnic minority patients do not use portals as frequently as non-Hispanic whites to access their EHR information online. This differential portal use could be problematic for health care disparities since early evidence links portal use to better outcomes.Entities:
Keywords: African Americans; Hispanic Americans; electronic health record; qualitative research
Mesh:
Year: 2016 PMID: 27697748 PMCID: PMC5067358 DOI: 10.2196/jmir.5910
Source DB: PubMed Journal: J Med Internet Res ISSN: 1438-8871 Impact factor: 5.428
African American focus groups.
| Group 1, | Group 2, n=9 | Group 3, | Group 4, | Group 5, | Group 6, | |
| Location | Mid-Atlantic | Mid-Atlantic | Georgia | Georgia | Southern California | Southern California |
| Demographic/ Health focus | Older adults | Chronic illness | Chronic illness | Parents | Older adults | Parents |
| Household income, US $ | Any | ≤$40K or $41-80K | $41-80K or ≥$81K | ≤$40K or $41-80K | Any | $41-80K or ≥$81K |
| Age, years | 55+ | 35-59 | 35-59 | 30-44 | 60+ | 30-54 |
English-speaking Latino focus groups in Southern California.
| Group A, | Group B, | Group C, | Group D, | |
| Demographic/Health focus | Chronic illness | Parents | Chronic illness (2 or more) | Parents |
| Household income, US $ | Any | $41-80K or ≥$81K | Any | ≤$40K |
| Age, years | 35-59 | 24-34 | 35-54 | 24-39 |
| Older adults | Mix | No | Mix | No |
Participant demographics.
| African American, | Latino, | Total, | ||
| 24-39 | 21 | 57 | 35 | |
| 40-49 | 23 | 28 | 25 | |
| 50-74 | 56 | 15 | 40 | |
| Male | 31 | 54 | 40 | |
| Female | 69 | 46 | 60 | |
| ≤$40K | 37 | 57 | 45 | |
| $41-80 | 54 | 43 | 49 | |
| ≥$81K | 10 | 0 | 6 | |
| Less than high school | 2 | 6 | 3 | |
| High school degree | 26 | 54 | 38 | |
| Some college or 2-year college degree | 46 | 37 | 43 | |
| 4-year college degree | 13 | 3 | 9 | |
| Postgraduate degree | 12 | 0 | 7 | |
| Hypertension | 40 | 20 | 30 | |
| Diabetes | 23 | 40 | 30 | |
| Asthma | 17 | 0 | 10 | |
| Cancer | 4 | 0 | 2 | |
Additional themes outlining barriers to portal use.
| Theme | Latino/Hispanic | No. of comments | Black/African American | No. of comments |
| Not technically savvy | Compared to some of these kids, and all they do is live out of their computer, I don’t. I’m barely learning. (focus group C, Male) | 9 | Then you’ve got 100 passwords – you’ve got one for the bank, for the school, you’ve got the ABT, and you’ve got to be remembering all of this. (focus group 1, Female) | 15 |
| For me it’s taking the time to get into all this new technology. I’m old school. I’m not used to all that. (focus group 3, Male) | ||||
| I’m old school. I’m very computer illiterate. Somebody at work tells me “You have to do...” I’m like “Oh, can you do it for me? I don’t know what to do.” When it comes to sitting in front of a computer, I sit in front of a computer all day, but I just do input. (focus group A, Female) | I don’t go on the Internet. I don’t look for any medical anything on the Internet. (focus group 5, Male) | |||
| Concern portal would interfere with personal relationships | When you’re talking to a person, you can tell if that person cares about what you’re talking about. (focus group C, Male) | 11 | Let’s have something personal with the doctor. Everything else is automated and animated. (focus group 1, Male) | 16 |
| [On why it’s better to get results from doctor vs online:] He [my doctor] would explain it to me more in detail, and he keeps telling me over and over, every single visit, how I'm doing this bad. (focus group C, Male) | The trust factor is really important. (Female, focus group 5) | |||
| That [secure messaging] is not going to sub for having him [my doctor] look at me. (focus group 1, Female) | ||||
| Prefer talking to live person | I tried to use it to find things out, but at the same time, to me I feel like I need to talk to people. I can’t deal with computers, or stuff like that, because you’re not talking to a human person that can answer to you right there and things like that. (focus group C, Female) | 28 | I’d rather be called in for everything good or bad because if the only time you’re calling me in, is if something is wrong, I don’t really want to go. I’d rather go in for everything. (focus group 1, Male) | 34 |
| I just like a live person…Yes. A live person. Computers only do so much, and I like a live person just in case I have a question. Especially, like he said, you look at your results, what the hell do they mean? (focus group C, Male) | I want to hear the voice and know that they care. When you get test results, if there’s nothing wrong with you, they’ll be a letter. (focus group 4, Female) | |||
| Need help to register | When I went to the website, I was trying to sign in to all the process but for some reason it didn’t work. I gave up, I just contacted them. (focus group B, Male) | 14 | I didn’t understand anything [on kp.org]. They said put your name and your zip code – it was too much. (focus group 1, Female) | 11 |
| Think existing systems are working fine | Certain people, like myself, you stick to ways that work for you. (focus group B, Female) | 3 | I never have a problem with them. I don’t get sick that often, so I really don’t know if it works or it doesn’t work to be online or not. I don’t know if it would be a convenience for me or not. (focus group 4, Female) | 23 |
| kp.org needs to be simple to understand/use | If you go to kp.org there is information for either view, basic information, health information but I think what it is it’s a lot of reading and it’s overwhelming. (focus group A, Female) | 12 | [If I saw a lab result online I didn’t understand,] I’d pick up the phone and call them asking what it means. (focus group 4, Female) | 8 |
| Concerns about security | They can hack into phones, they can steal my information. I wouldn’t use it. I only use it for music and calls. That’s it. (focus group D, Male) | 3 | There are hackers out to get you…We’re paranoid scared about who is looking in our stuff. (focus group 1, Female) | 26 |