Literature DB >> 27665200

Fund my treatment!: A call for ethics-focused social science research into the use of crowdfunding for medical care.

Jeremy Snyder1, Annalise Mathers2, Valorie A Crooks3.   

Abstract

Crowdfunding involves raising money from large groups of individuals, often through the use of websites dedicated to this purpose. Crowdfunding campaigns aimed at raising money to pay for expenses related to receiving medical treatment are receiving increased media attention and there is evidence that medical crowdfunding websites are heavily used. Nonetheless, virtually no scholarly attention has been paid to these medical crowdfunding campaigns and there is no systematic evidence about how widely they are used and for what reasons, and what effects they have on the provision of medical care and individuals' relationships to their health systems. Ethical concerns have been raised in relation to these campaigns, focusing on issues for campaigners and donors such as exposure to fraudulent campaigns, loss of privacy, and fairness in how medical crowdfunding funds are distributed. Medical crowdfunding websites themselves have not been systematically studied, despite their significant influence on how these campaigns are developed and promoted. In this paper, we identify three very broad and pressing ethical questions regarding medical crowdfunding for social scientists to address and offer some preliminary insights into key issues informing future answers to each: Who benefits the most from medical crowdfunding and how does medical crowdfunding affect access to medical care; How does medical crowdfunding affect our understanding of the causes of inadequate access to medical care; and How are campaigner and donor privacy affected by website design? Our observations indicate the need for increased scholarly attention to the ethical and practical effects of medical crowdfunding for campaigners, recipients, donors, and the health system as a whole.
Copyright © 2016 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Equity; Ethics; Medical crowdfunding; Privacy

Mesh:

Year:  2016        PMID: 27665200     DOI: 10.1016/j.socscimed.2016.09.024

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  19 in total

Review 1.  Appealing to the crowd: ethical justifications in Canadian medical crowdfunding campaigns.

Authors:  Jeremy Snyder; Valorie A Crooks; Annalise Mathers; Peter Chow-White
Journal:  J Med Ethics       Date:  2017-01-30       Impact factor: 2.903

2.  Research data management in health and biomedical citizen science: practices and prospects.

Authors:  Ann Borda; Kathleen Gray; Yuqing Fu
Journal:  JAMIA Open       Date:  2019-12-09

3.  Understanding the Dimensions of Medical Crowdfunding: A Visual Analytics Approach.

Authors:  Jie Ren; Viju Raghupathi; Wullianallur Raghupathi
Journal:  J Med Internet Res       Date:  2020-07-03       Impact factor: 5.428

4.  Inequalities in Crowdfunding for Transgender Health Care.

Authors:  Chris A Barcelos; Stephanie L Budge
Journal:  Transgend Health       Date:  2019-03-06

5.  Media portrayal of illness-related medical crowdfunding: A content analysis of newspaper articles in the United States and Canada.

Authors:  Blake Murdoch; Alessandro R Marcon; Daniel Downie; Timothy Caulfield
Journal:  PLoS One       Date:  2019-04-23       Impact factor: 3.240

6.  Spatially exploring the intersection of socioeconomic status and Canadian cancer-related medical crowdfunding campaigns.

Authors:  Alysha van Duynhoven; Anthony Lee; Ross Michel; Jeremy Snyder; Valorie Crooks; Peter Chow-White; Nadine Schuurman
Journal:  BMJ Open       Date:  2019-06-20       Impact factor: 2.692

7.  A cross-sectional study of social inequities in medical crowdfunding campaigns in the United States.

Authors:  Nora Kenworthy; Zhihang Dong; Anne Montgomery; Emily Fuller; Lauren Berliner
Journal:  PLoS One       Date:  2020-03-05       Impact factor: 3.240

8.  Crowdfunding abortion: an exploratory thematic analysis of fundraising for a stigmatized medical procedure.

Authors:  Marco Antonio Zenone; Jeremy Snyder
Journal:  BMC Womens Health       Date:  2020-05-04       Impact factor: 2.809

9.  Crowdfunding and global health disparities: an exploratory conceptual and empirical analysis.

Authors:  Nora J Kenworthy
Journal:  Global Health       Date:  2019-11-28       Impact factor: 4.185

10.  Exploring Patient-Reported Costs Related to Hepatitis C on the Medical Crowdfunding Page GoFundMe®.

Authors:  T Joseph Mattingly; Karen Li; Arnold Ng; Tieu-Long Ton-Nu; Jennifer Owens
Journal:  Pharmacoecon Open       Date:  2020-09-30
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