| Literature DB >> 32134984 |
Nora Kenworthy1, Zhihang Dong2, Anne Montgomery3, Emily Fuller4, Lauren Berliner5.
Abstract
Americans are increasingly relying on crowdfunding to pay for the costs of healthcare. In medical crowdfunding (MCF), online platforms allow individuals to appeal to social networks to request donations for health and medical needs. Users are often told that success depends on how they organize and share their campaigns to increase social network engagement. However, experts have cautioned that MCF could exacerbate health and social disparities by amplifying the choices (and biases) of the crowd and leveraging these to determine who has access to financial support for healthcare. To date, research on potential axes of disparity in MCF, and their impacts on fundraising outcomes, has been limited. To answer these questions, this paper presents an exploratory cross-sectional study of a randomized sample of 637 MCF campaigns on the popular platform GoFundMe, for which the race, gender, age, and relationships of campaigners and campaign recipients were categorized alongside campaign characteristics and outcomes. Using both descriptive and inferential statistics, the analysis examines race, gender, and age disparities in MCF use, and tests how these are associated with differential campaign outcomes. The results show systemic disparities in MCF use and outcomes: people of color (and black women in particular) are under-represented; there is significant evidence of an additional digital care labor burden on women organizers of campaigns; and marginalized race and gender groups are associated with poorer fundraising outcomes. Outcomes are only minimally associated with campaign characteristics under users' control, such as photos, videos, and updates. These results corroborate widespread concerns with how technology fuels health inequities, and how crowdfunding may be creating an unequal and biased marketplace for those seeking financial support to access healthcare. Further research and better data access are needed to explore these dynamics more deeply and inform policy for this largely unregulated industry.Entities:
Year: 2020 PMID: 32134984 PMCID: PMC7058302 DOI: 10.1371/journal.pone.0229760
Source DB: PubMed Journal: PLoS One ISSN: 1932-6203 Impact factor: 3.240
MCF campaign outcomes, social engagement, and other characteristics.
| Mean | Std. Dev | Min | Max | |
|---|---|---|---|---|
| 14753.06 | 25278.14 | 150.00 | 300000.00 | |
| 3731.04 | 5812.46 | 0.00 | 45000.00 | |
| 41.75 | 58.10 | 0 | 864.50 | |
| 43.05 | 66.19 | 0 | 883 | |
| 83.73 | 67.68 | 0 | 718.50 | |
| 588.19 | 1008.97 | 0 | 10480.00 | |
| 1.12 | 2.01 | 0 | 16 | |
| 7.80 | 47.12 | 0 | 1200 | |
| 3.89 | 9.35 | 1 | 191 | |
| .07 | .45 | 0 | 6 | |
| 316.92 | 380.85 | 0 | 3600 | |
| 41.42 | 64.10 | 0 | 919 | |
| 458.14 | 307.25 | 30 | 1950 |
Descriptive statistics of MCF campaigns from a randomized sample of 637 US medical crowdfunding campaigns on the site Gofundme.com.
Characteristics of crowdfunding campaigners and recipients.
| N | Percent | |
|---|---|---|
| | 130 | 20.41% |
| | 59 | 9.26% |
| | 142 | 22.29% |
| | 107 | 16.8% |
| | 3 | .47% |
| | 196 | 30.77% |
| | 300 | 47.10% |
| | 318 | 49.92% |
| | 1 | .16% |
| | 18 | 2.83% |
| | 41 | 32.28% |
| | 85 | 66.93% |
| | 1 | .79% |
| | 0 | |
| | 86 | 16.86% |
| | 400 | 78.43% |
| | 0 | |
| | 24 | 4.71% |
| | 495 | 77.71% |
| | 52 | 8.16% |
| | 66 | 10.36% |
| | 24 | 3.77% |
| | 524 | 82.26% |
| | 113 | 17.74% |
Demographic characteristics of crowdfunding campaigners and recipients, including gender, race, and age, as well as relationship between campaigner and recipient, if specified in the campaign.
Means comparison of demographic characteristics between crowdfunding and US population at large.
| N | Percent | US Population at large (%)a | Comparison of means (X2) | P value | |
|---|---|---|---|---|---|
| | 300 | 48.54% | 49.2% | .107 | .744 |
| | 318 | 51.46% | 50.8% | ||
| | 41 | 32.54% | 49.2% | 13.993 | .000 |
| | 85 | 67.46% | 50.8% | ||
| | 86 | 17.70% | 49.2% | 192.998 | .000 |
| | 400 | 82.30% | 50.8% | ||
| | 495 | 80.75% | 73% | 18.980 | .000 |
| | 52 | 8.48% | 12.7% | ||
| | 66 | 10.77% | 14.3% | ||
| | 524 | 82.26% | 77.1% | 9.608 | .002 |
| | 113 | 17.74% | 22.9% |
Means comparison between demographics of crowdfunding campaigners and recipients and US population at large. Unknown and genderqueer cases removed for the purposes of this analysis.
*** = < .001
** = < .01
* = < .05
aSource for US population data: US Census Bureau, American Community Survey[72].
Cross-tabular description of recipient race and gender (n = 554).
| Man | Woman | Genderqueer | ||
|---|---|---|---|---|
| Count | 210 | 237 | 0 | |
| Count | 27 | 19 | 1 | |
| Count | 34 | 26 | 0 | |
| 271 | 282 | 1 |
Cross-tabular descriptive statistics of MCF recipients by race and gender, with expected counts based on US population estimates by race and gender.
aSource for US population data: US Census Bureau, American Community Survey[72].
Linear regression of demographic effects on average donation amount.
| Estimate | 95% Confidence Interval | P-value | |
|---|---|---|---|
| (Intercept) | 66.494 | (-22.131, 155.119) | 0.142 |
| Self (Reference) | |||
| Parent | 13.086 | (-10.148, 36.320) | 0.270 |
| Immediate Family Member | 7.151 | (-8.761, 23.063) | 0.379 |
| Unmarried Partner | 14.864 | (-60.774, 90.502) | 0.700 |
| Friend or Distant Relative | 13.03 | (-4.143, 30.204) | 0.139 |
| Unknown Relationship | 6.264 | (-9.003, 21.530) | 0.422 |
| Male (Reference) | |||
| Female | -2.738 | (-13.310, 7.833) | 0.612 |
| Genderqueer | 27.074 | (-103.654, 157.802) | 0.685 |
| White (Reference) | |||
| Black | -22.223 | (-42.266, -2.179) | 0.030 |
| Non-Black POC | -12.1 | (-29.693, 5.493) | 0.178 |
| Adult (Reference) | |||
| Child | -18.124 | (-33.655, -2.593) | 0.022 |
| Log of Number of Residents in State | 1.287 | (-4.155, 6.730) | 0.643 |
Linear regression analyzing the relationship between gender, age, race, and campaigner-recipient relationship and average donation amount to MCF campaigns.
*** = < .001
** = < .01
* = < .05
Poisson regression of demographic effects on number of donations.
| Estimate | 95% Confidence Interval | P-value | |
|---|---|---|---|
| (Intercept) | 3.358 | (3.321, 3.395) | <0.001 |
| Self (Reference) | |||
| Parent | 0.341 | (0.285,0.396) | <0.001 |
| Immediate Family Member | 0.580 | (0.540, 0.647) | <0.001 |
| Unmarried Partner | 0.098 | (-0.107,0.302) | 0.350 |
| Friend or Distant Relative | 0.375 | (0.331,0.420) | <0.001 |
| Male (Reference) | |||
| Female | -0.027 | (-0.050, -0.003) | 0.026 |
| Genderqueer | -1.508 | (-2.310, -0.706) | <0.001 |
| Unknown | -0.237 | (-0.316, -0.158) | <0.001 |
| Adult (Reference) | |||
| Child | 0.280 | (0.248, 0.311) | <0.001 |
| White (Reference) | |||
| Black | -0.058 | (-0.104, -0.012) | 0.013 |
| Non-Black POC | -0.179 | (-0.222, -0.135) | <0.001 |
Poisson regression analyzing the relationship between gender, age, race, and campaigner-recipient relationship and number of donations to MCF campaigns.
*** = < .001
** = < .01
* = < .05
Poisson regression of demographic effects on number of facebook friends.
| Estimate | 95% Confidence Interval | P-value | |
|---|---|---|---|
| (Intercept) | 6.374 | (6.365, 6.383) | <0.001 |
| Self (Reference) | |||
| Parent | -0.480 | (-0.497, -0.462) | <0.001 |
| Immediate Family Member | -0.084 | (-0.094, -0.073) | <0.001 |
| Unmarried Partner | -0.124 | (-0.175, -0.074) | <0.001 |
| Friend or Distant Relative | -0.117 | (-0.128, -0.105) | <0.001 |
| Male (Reference) | |||
| Female | -0.126 | (-0.133, -0.119) | <0.001 |
| Genderqueer | -2.922 | (-3.269, -2.576) | <0.001 |
| Unknown | -0.362 | (-0.384, -0.339) | <0.001 |
| Adult (Reference) | |||
| Child | -0.004 | (-0.014, 0.006) | 0.427 |
| White (Reference) | |||
| Black | -0.014 | (0.002, 0.027) | 0.028 |
| Non-Black POC | -0.096 | (-0.107, -0.084) | <0.001 |
Poisson regression analyzing the relationship between gender, age, race, and campaigner-recipient relationship and number of Facebook friends.
*** = < .001
** = < .01
* = < .05
Poisson regression of demographic and social network effects on number of donations.
| Estimate | 95% Confidence Interval | P-value | |
|---|---|---|---|
| (Intercept) | 3.264 | (3.225, 3.303) | <0.001 |
| Self (Reference) | |||
| Parent | 0.380 | (0.324, 0.435) | <0.001 |
| Immediate Family Member | 0.592 | (0.551, 0.632) | <0.001 |
| Unmarried Partner | 0.113 | (-0.091, 0.318) | 0.224 |
| Friend or Distant Relative | 0.386 | (0.341, 0.431) | <0.001 |
| Male (Reference) | |||
| Female | -0.011 | (-0.035, 0.012) | 0.351 |
| Genderqueer | -1.423 | (-2.221, -0.617) | <0.001 |
| Unknown | -0.209 | (-0.288, -0.130) | <0.001 |
| Adult (Reference) | |||
| Child | 0.274 | (0.243, 0.306) | <0.001 |
| White (Reference) | |||
| Black | -0.058 | (-0.104, 0.012) | 0.013 |
| Non-Black POC | -0.171 | (-0.214, -0.129) | <0.001 |
| 1.456e-4 | (1.279e-4, 1.630e-4) | <0.001 |
Poisson regression analyzing the relationship between gender, age, race, campaigner-recipient relationship, number of Facebook friends and number of campaign donations. e-4 = 0.0001
*** = < .001
** = < .01
* = < .05