Literature DB >> 27651072

Exposing the Backstage: Critical Reflections on a Longitudinal Qualitative Study of Residents' Care Networks in Assisted Living.

Candace L Kemp1, Mary M Ball2, Jennifer Craft Morgan1, Patrick J Doyle3, Elisabeth O Burgess1, Joy A Dillard1, Christina E Barmon1, Andrea F Fitzroy1, Victoria E Helmly1, Elizabeth S Avent1, Molly M Perkins2,4.   

Abstract

In this article, we analyze the research experiences associated with a longitudinal qualitative study of residents' care networks in assisted living. Using data from researcher meetings, field notes, and memos, we critically examine our design and decision making and accompanying methodological implications. We focus on one complete wave of data collection involving 28 residents and 114 care network members in four diverse settings followed for 2 years. We identify study features that make our research innovative, but that also represent significant challenges. They include the focus and topic; settings and participants; scope and design complexity; nature, modes, frequency, and duration of data collection; and analytic approach. Each feature has methodological implications, including benefits and challenges pertaining to recruitment, retention, data collection, quality, and management, research team work, researcher roles, ethics, and dissemination. Our analysis demonstrates the value of our approach and of reflecting on and sharing methodological processes for cumulative knowledge building.

Entities:  

Keywords:  caregivers / caretaking; ethnography; families; grounded theory; long-term health care; longitudinal studies; southeastern United States

Mesh:

Year:  2016        PMID: 27651072      PMCID: PMC5860917          DOI: 10.1177/1049732316668817

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  26 in total

1.  "Stuck in the middle with you": the ethics and process of qualitative research with two people in an intimate relationship.

Authors:  Liz Forbat; Jeanette Henderson
Journal:  Qual Health Res       Date:  2003-12

2.  Risk to researchers in qualitative research on sensitive topics: issues and strategies.

Authors:  Virginia Dickson-Swift; Erica L James; Sandra Kippen; Pranee Liamputtong
Journal:  Qual Health Res       Date:  2008-01

3.  Reflexive journaling on emotional research topics: ethical issues for team researchers.

Authors:  Claudia Malacrida
Journal:  Qual Health Res       Date:  2007-12

4.  Dementia and transitioning from assisted living to memory care units: perspectives of administrators in three facility types.

Authors:  Susan G Kelsey; Sarah B Laditka; James N Laditka
Journal:  Gerontologist       Date:  2009-07-24

5.  Ethical components of researcher researched relationships in qualitative interviewing.

Authors:  Jeanette Hewitt
Journal:  Qual Health Res       Date:  2007-10

6.  Convoys of care: theorizing intersections of formal and informal care.

Authors:  Candace L Kemp; Mary M Ball; Molly M Perkins
Journal:  J Aging Stud       Date:  2012-11-15

7.  The facade of stability in assisted living.

Authors:  Leslie A Morgan; Robert L Rubinstein; Ann Christine Frankowski; Rosa Perez; Erin G Roth; Amanda D Peeples; Mary Nemec; J Kevin Eckert; Susan Goldman
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2014-03-18       Impact factor: 4.077

8.  Relational Autonomy in Assisted Living: A Focus on Diverse Care Settings for Older Adults.

Authors:  Molly M Perkins; Mary M Ball; Frank J Whittington; Carole Hollingsworth
Journal:  J Aging Stud       Date:  2012-01-30

9.  Blurring boundaries in qualitative health research on sensitive topics.

Authors:  Virginia Dickson-Swift; Erica L James; Sandra Kippen; Pranee Liamputtong
Journal:  Qual Health Res       Date:  2006-07

10.  Methods and management of the healthy brain study: a large multisite qualitative research project.

Authors:  Sarah B Laditka; Sara J Corwin; James N Laditka; Rui Liu; Daniela B Friedman; Anna E Mathews; Sara Wilcox
Journal:  Gerontologist       Date:  2009-06
View more
  6 in total

1.  Individualization and the Health Care Mosaic in Assisted Living.

Authors:  Candace L Kemp; Mary M Ball; Molly M Perkins
Journal:  Gerontologist       Date:  2019-07-16

2.  Maneuvering Together, Apart, and at Odds: Residents' Care Convoys in Assisted Living.

Authors:  Candace L Kemp; Mary M Ball; Jennifer Craft Morgan; Patrick J Doyle; Elisabeth O Burgess; Molly M Perkins
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2018-04-16       Impact factor: 4.077

3.  Communicative Competence: Responding to Residents' Health Changes in Assisted Living.

Authors:  Candace L Kemp; Mary M Ball; Kendra Jason; Joy Anna Dillard Appel; Andrea F Fitzroy
Journal:  Gerontologist       Date:  2020-05-15

4.  "I'm not terribly lonely": Advancing the understanding of intimacy among older adults.

Authors:  Andrea F Fitzroy; Candace L Kemp; Elisabeth O Burgess
Journal:  J Aging Stud       Date:  2022-02-10

5.  #MoreThanAVisitor: Families as "Essential" Care Partners During COVID-19.

Authors:  Candace L Kemp
Journal:  Gerontologist       Date:  2020-12-09

6.  Limiting and Promoting Resident Self-Care in Assisted Living.

Authors:  Jennifer C Morgan; Candace L Kemp; Christina Barmon; Andrea Fitzroy; Mary M Ball
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2021-09-13       Impact factor: 4.077

  6 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.