Literature DB >> 27614592

Measurable Outcomes After Transfer From Pediatric to Adult Providers in Youth With Chronic Illness.

Bethany Coyne1, Sara C Hallowell2, Mary Thompson3.   

Abstract

Children with chronic medical conditions are requiring transition services to prepare for transfer of care. There has been little data on what qualifies as a successful transition or how to measure this goal. The purpose of this review was to identify measurable patient-level outcomes for transitioning youth with chronic illness from pediatric to adult health care. An integrative literature search was conducted using CINAHL and OVID Medline. Key words included transition to adult care and health transition. Research articles published between 2002 and 2015 and reported on measurable patient-level outcomes in youth with chronic illnesses were included. The initial search yielded 556 articles and 19 articles were selected. Most of the research reporting on outcomes after transfer is nonexperimental using secondary data. Additionally, there is inconsistency in the use of term transition. In the specific outcomes identified, there is little uniformity in measurement both in terms of timing and standardization of measurement. Further research is needed on outcomes after transfer that includes standardized measures and time intervals in order to evaluate successful transition services. This research is essential for health care providers who are instrumental in supporting young people during this high risk period. Copyright Â
© 2016 Society for Adolescent Health and Medicine. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Adolescence; Chronic illness; Outcomes; Transfer; Transition; Young adult

Mesh:

Year:  2016        PMID: 27614592     DOI: 10.1016/j.jadohealth.2016.07.006

Source DB:  PubMed          Journal:  J Adolesc Health        ISSN: 1054-139X            Impact factor:   5.012


  14 in total

1.  Current management of transition of young people affected by rare renal conditions in the ERKNet.

Authors:  Martin Kreuzer; Jens Drube; Jenny Prüfe; Franz Schaefer; Lars Pape
Journal:  Eur J Hum Genet       Date:  2019-07-30       Impact factor: 4.246

Review 2.  A call for action: Recommendations to improve transition to adult care for youth with complex health care needs.

Authors:  Alene Toulany; Jan Willem Gorter; Megan Harrison
Journal:  Paediatr Child Health       Date:  2022-08-22       Impact factor: 2.600

3.  Programmes to support transitions in care for children and youth with complex care needs and their families: a scoping review protocol.

Authors:  Shelley Doucet; Janet A Curran; Sydney Breneol; Alison Luke; Emilie Dionne; Rima Azar; Amy E Reid; Shelley McKibbon; Amanda R Horsman; Krystal Binns
Journal:  BMJ Open       Date:  2020-06-21       Impact factor: 2.692

4.  Defining Coordinated Care for People with Rare Conditions: A Scoping Review.

Authors:  Holly Walton; Emma Hudson; Amy Simpson; Angus I G Ramsay; Joe Kai; Stephen Morris; Alastair G Sutcliffe; Naomi J Fulop
Journal:  Int J Integr Care       Date:  2020-06-25       Impact factor: 5.120

5.  Estimation of age of transition from paediatric to adult healthcare for young people with long term conditions using linked routinely collected healthcare data.

Authors:  Stuart Jarvis; Gerry Richardson; Kate Flemming; Lorna Fraser
Journal:  Int J Popul Data Sci       Date:  2021-11-04

6.  Patterns of Healthcare Use and Medication Adherence among Youth with Systemic Lupus Erythematosus during Transfer from Pediatric to Adult Care.

Authors:  Joyce C Chang; Andrea M Knight; Erica F Lawson
Journal:  J Rheumatol       Date:  2020-02-01       Impact factor: 4.666

7.  Are the health needs of young people with cerebral palsy met during transition from child to adult health care?

Authors:  F Solanke; A Colver; H McConachie
Journal:  Child Care Health Dev       Date:  2018-01-28       Impact factor: 2.508

8.  A longitudinal, observational study of the features of transitional healthcare associated with better outcomes for young people with long-term conditions.

Authors:  A Colver; H McConachie; A Le Couteur; G Dovey-Pearce; K D Mann; J E McDonagh; M S Pearce; L Vale; H Merrick; J R Parr
Journal:  BMC Med       Date:  2018-07-23       Impact factor: 8.775

9.  Randomised controlled trial of a person-centred transition programme for adolescents with type 1 diabetes (STEPSTONES-DIAB): a study protocol.

Authors:  Anna Lena Brorsson; Ewa-Lena Bratt; Philip Moons; Anna Ek; Elisabeth Jelleryd; Torun Torbjörnsdotter; Carina Sparud-Lundin
Journal:  BMJ Open       Date:  2020-04-14       Impact factor: 2.692

10.  Pragmatic trial evaluating the effectiveness of a patient navigator to decrease emergency room utilisation in transition age youth with chronic conditions: the Transition Navigator Trial protocol.

Authors:  Susan Samuel; Gina Dimitropoulos; Kyleigh Schraeder; Scott Klarenbach; Alberto Nettel-Aguirre; Greg Guilcher; Daniele Pacaud; Jorge Pinzon; Eddy Lang; Gail Andrew; Lonnie Zwaigenbaum; Shannon Scott; Kerry McBrien; Lorraine Hamiwka; Andrew Mackie
Journal:  BMJ Open       Date:  2019-12-10       Impact factor: 2.692

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