Literature DB >> 36016593

A call for action: Recommendations to improve transition to adult care for youth with complex health care needs.

Alene Toulany1, Jan Willem Gorter1, Megan Harrison1.   

Abstract

Youth with complex health care needs, defined as those requiring specialized health care and services for physical, developmental, and/or mental health conditions, are often cared for by paediatricians and paediatric specialists. In Canada, the age at which provincial/territorial funders mandate the transfer of paediatric care to adult services varies, ranging between 16 and 19 years. The current configuration of distinct paediatric and adult care service boundaries is fragmentary, raising barriers to continuity of care during an already vulnerable developmental period. For youth, the lack of care integration across sectors can negatively impact health engagement and jeopardize health outcomes into adulthood. To address these barriers and improve transition outcomes, paediatric and adult care providers, as well as family physicians and other community partners, must collaborate in meaningful ways to develop system-based strategies that streamline and safeguard care for youth transitioning to adult services across tertiary, community, and primary care settings. Flexible age cut-offs for transfer to adult care are recommended, along with considering each youth's developmental stage and capacity as well as patient and family needs and circumstances. Specialized training and education in transitional care issues are needed to build capacity and ensure that health care providers across diverse disciplines and settings are better equipped to accept and care for young people with complex health care needs. © Canadian Paediatric Society 2022. Published by Oxford University Press on behalf of the Canadian Paediatric Society. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.

Entities:  

Keywords:  Adolescent; Adult Care; Chronic Illness; Medical Complexity; Transfer; Transition; Young Adult; Youth

Year:  2022        PMID: 36016593      PMCID: PMC9394635          DOI: 10.1093/pch/pxac047

Source DB:  PubMed          Journal:  Paediatr Child Health        ISSN: 1205-7088            Impact factor:   2.600


  58 in total

1.  Mixed-methods evaluation of a transition and young adult clinic for kidney transplant recipients.

Authors:  Vanessa Michaud; Marie Achille; Fanie Chainey; Véronique Phan; Catherine Girardin; Marie-José Clermont
Journal:  Pediatr Transplant       Date:  2019-05-07

2.  Non-compliance and transfer from paediatric to adult transplant unit.

Authors:  A R Watson
Journal:  Pediatr Nephrol       Date:  2000-06       Impact factor: 3.714

3.  Transition to adult diabetes care in Germany-High risk for acute complications and declining metabolic control during the transition phase.

Authors:  T M Kapellen; S Müther; A Schwandt; J Grulich-Henn; B Schenk; K O Schwab; W Marg; R W Holl
Journal:  Pediatr Diabetes       Date:  2018-04-25       Impact factor: 4.866

4.  Health care transition: youth, family, and provider perspectives.

Authors:  John G Reiss; Robert W Gibson; Leslie R Walker
Journal:  Pediatrics       Date:  2005-01       Impact factor: 7.124

5.  Discontinuity in the transition from pediatric to adult health care for patients with attention-deficit/hyperactivity disorder.

Authors:  C Brendan Montano; Joel Young
Journal:  Postgrad Med       Date:  2012-09       Impact factor: 3.840

Review 6.  Children with medical complexity in Canada.

Authors:  Tammie Dewan; Eyal Cohen
Journal:  Paediatr Child Health       Date:  2013-12       Impact factor: 2.253

7.  Enhancing youth health in primary care: lessons learned from general practitioners.

Authors:  Ann Dadich; Carmen Jarrett; Fiona Robards; David Bennett
Journal:  Health Commun       Date:  2013-10-22

8.  Perceptions of the family physician from adolescents and their caregivers preparing to transition to adult care.

Authors:  Angela Xiao Han; Sandy Rosalie Whitehouse; Steve Tsai; Sandy Hwang; Sally Thorne
Journal:  BMC Fam Pract       Date:  2018-08-23       Impact factor: 2.497

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