Seok Ohr1, Sarah Jeong2, Peter Saul3. 1. Multicultural Health Service, Hunter New England Local Health District (HNELHD), Newcastle, NSW, Australia. 2. The School of Nursing & Midwifery, The University of Newcastle, Ourimbah, NSW, Australia. 3. John Hunter Hospital, New Lambton Heights, NSW, Australia.
Abstract
AIMS AND OBJECTIVES: To explore specific cultural and religious beliefs and values concerning death and dying, truth telling, and advance care planning, and the preferences for end-of-life care among older persons from culturally and linguistically diverse backgrounds. BACKGROUND: Whilst literature indicates that culture impacts on end-of-life decision-making significantly, there is limited evidence on the topic. DESIGN: A cross-sectional survey. METHODS: A total of 171 community older persons who make regular visits to 17 day care centres expressed in a questionnaire their; (1) beliefs about death and dying, truth telling, and advance care planning, and (2) preferences for end-of-life care. RESULTS: More than 92% of respondents believed that dying is a normal part of life, and more than 70% felt comfortable talking about death. Whilst respondents accepted dying as a normal part of life, 64% of Eastern Europeans and 53% of Asia/Pacific groups believed that death should be avoided at all costs. People from the Asia/Pacific group reported the most consensual view against all of the life-prolonging measures. CONCLUSION: Cultural and religious beliefs and values may have an impact on preferences for treatment at end-of-life. The study offers nurses empirical data to help shape conversations about end-of-life care, and thus to enhance their commitment to help people 'die well'. RELEVANCE TO CLINICAL PRACTICE: Information acquisition to extend understanding of each individual before proceeding with documentation of advance care planning is essential and should include retrieval of individuals' cultural and religious beliefs and values, and preferences for care. An institutional system and/or protocol that promote conversations about these among nurses and other healthcare professionals are warranted.
AIMS AND OBJECTIVES: To explore specific cultural and religious beliefs and values concerning death and dying, truth telling, and advance care planning, and the preferences for end-of-life care among older persons from culturally and linguistically diverse backgrounds. BACKGROUND: Whilst literature indicates that culture impacts on end-of-life decision-making significantly, there is limited evidence on the topic. DESIGN: A cross-sectional survey. METHODS: A total of 171 community older persons who make regular visits to 17 day care centres expressed in a questionnaire their; (1) beliefs about death and dying, truth telling, and advance care planning, and (2) preferences for end-of-life care. RESULTS: More than 92% of respondents believed that dying is a normal part of life, and more than 70% felt comfortable talking about death. Whilst respondents accepted dying as a normal part of life, 64% of Eastern Europeans and 53% of Asia/Pacific groups believed that death should be avoided at all costs. People from the Asia/Pacific group reported the most consensual view against all of the life-prolonging measures. CONCLUSION: Cultural and religious beliefs and values may have an impact on preferences for treatment at end-of-life. The study offers nurses empirical data to help shape conversations about end-of-life care, and thus to enhance their commitment to help people 'die well'. RELEVANCE TO CLINICAL PRACTICE: Information acquisition to extend understanding of each individual before proceeding with documentation of advance care planning is essential and should include retrieval of individuals' cultural and religious beliefs and values, and preferences for care. An institutional system and/or protocol that promote conversations about these among nurses and other healthcare professionals are warranted.
Authors: Kirsten Evenblij; H Roeline W Pasman; Agnes van der Heide; Trynke Hoekstra; Bregje D Onwuteaka-Philipsen Journal: BMC Med Date: 2019-02-19 Impact factor: 8.775
Authors: Sarah Jeong; Tomiko Barrett; Se Ok Ohr; Peter Cleasby; Michael David; Sally Chan; Helen Fairlamb; Ryan Davey; Peter Saul Journal: BMC Health Serv Res Date: 2019-05-04 Impact factor: 2.655
Authors: Craig Sinclair; Marcus Sellars; Kimberly Buck; Karen M Detering; Ben P White; Linda Nolte Journal: J Gerontol B Psychol Sci Soc Sci Date: 2021-01-01 Impact factor: 4.077