Literature DB >> 27586855

All together now: findings from a PCORI workshop to align patient-reported outcomes in the electronic health record.

Roxanne E Jensen1,2, Claire F Snyder3,4,5, Ethan Basch6,7, Lori Frank7, Albert W Wu3,4.   

Abstract

In recent years, patient-reported outcomes have become increasingly collected and integrated into electronic health records. However, there are few cross-cutting recommendations and limited guidance available in this rapidly developing research area. Our goal is to report key findings from a 2013 Patient-Centered Outcomes Research Institute workshop on this topic and a summary of actions that followed from the workshop, and present resulting recommendations that address patient, clinical and research/quality improvement barriers to regular use. These findings provide actionable guidance across research and practice settings to promote and sustain widespread adoption of patient-reported outcomes across patient populations, healthcare settings and electronic health record systems.

Entities:  

Keywords:  electronic health records; patient-reported outcomes; quality of care

Mesh:

Year:  2016        PMID: 27586855      PMCID: PMC5549656          DOI: 10.2217/cer-2016-0026

Source DB:  PubMed          Journal:  J Comp Eff Res        ISSN: 2042-6305            Impact factor:   1.744


  17 in total

1.  Logistics of collecting patient-reported outcomes (PROs) in clinical practice: an overview and practical examples.

Authors:  Matthias Rose; Andrea Bezjak
Journal:  Qual Life Res       Date:  2009-01-20       Impact factor: 4.147

Review 2.  Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations.

Authors:  Claire F Snyder; Neil K Aaronson; Ali K Choucair; Thomas E Elliott; Joanne Greenhalgh; Michele Y Halyard; Rachel Hess; Deborah M Miller; Bryce B Reeve; Maria Santana
Journal:  Qual Life Res       Date:  2011-11-03       Impact factor: 4.147

3.  Feasibility and value of PatientViewpoint: a web system for patient-reported outcomes assessment in clinical practice.

Authors:  Claire F Snyder; Amanda L Blackford; Antonio C Wolff; Michael A Carducci; Joseph M Herman; Albert W Wu
Journal:  Psychooncology       Date:  2012-04-30       Impact factor: 3.894

4.  Knowledge bases, clinical decision support systems, and rapid learning in oncology.

Authors:  Peter Paul Yu
Journal:  J Oncol Pract       Date:  2015-02-24       Impact factor: 3.840

5.  Measuring depression levels in HIV-infected patients as part of routine clinical care using the nine-item Patient Health Questionnaire (PHQ-9).

Authors:  P K Crane; L E Gibbons; J H Willig; M J Mugavero; S T Lawrence; J E Schumacher; M S Saag; M M Kitahata; H M Crane
Journal:  AIDS Care       Date:  2010-07

6.  Patient-reported outcomes (PROs): putting the patient perspective in patient-centered outcomes research.

Authors:  Claire F Snyder; Roxanne E Jensen; Jodi B Segal; Albert W Wu
Journal:  Med Care       Date:  2013-08       Impact factor: 2.983

7.  Patient reported outcomes as indicators of pediatric health care quality.

Authors:  Katherine B Bevans; JeanHee Moon; Adam C Carle; Constance A Mara; Jin-Shei Lai; Lindsay DiMarco; Nicole Muller; Donna Woods
Journal:  Acad Pediatr       Date:  2014 Sep-Oct       Impact factor: 3.107

8.  Measure once, cut twice--adding patient-reported outcome measures to the electronic health record for comparative effectiveness research.

Authors:  Albert W Wu; Hadi Kharrazi; L Ebony Boulware; Claire F Snyder
Journal:  J Clin Epidemiol       Date:  2013-08       Impact factor: 6.437

Review 9.  Harmonizing and consolidating the measurement of patient-reported information at health care institutions: a position statement of the Mayo Clinic.

Authors:  David T Eton; Timothy J Beebe; Philip T Hagen; Michele Y Halyard; Victor M Montori; James M Naessens; Jeff A Sloan; Carrie A Thompson; Douglas L Wood
Journal:  Patient Relat Outcome Meas       Date:  2014-02-10

10.  Launching PCORnet, a national patient-centered clinical research network.

Authors:  Rachael L Fleurence; Lesley H Curtis; Robert M Califf; Richard Platt; Joe V Selby; Jeffrey S Brown
Journal:  J Am Med Inform Assoc       Date:  2014-05-12       Impact factor: 4.497

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  8 in total

1.  Physician-Centered Outcomes for Skin Cancer Treatment: A Single-Day Modified Delphi Process to Assess the Importance of Themes in Skin Cancer Management.

Authors:  Anthony M Rossi; Joseph Sobanko; Naomi Lawrence; Jeremy Bordeaux; Todd Cartee; Eric S Armbrecht; Anit Behera; Christian L Baum; Murad Alam; Ian A Maher
Journal:  Dermatol Surg       Date:  2019-07       Impact factor: 3.398

2.  Perceptions of Response Burden Associated with Completion of Patient-Reported Outcome Assessments in Oncology.

Authors:  Thomas M Atkinson; Carolyn E Schwartz; Leah Goldstein; Iliana Garcia; Daniel F Storfer; Yuelin Li; Jie Zhang; Bernard H Bochner; Bruce D Rapkin
Journal:  Value Health       Date:  2018-08-31       Impact factor: 5.725

3.  Patient-Centered Outcomes for Skin Cancer Management: Utilization of a Patient Delphi Process to Identify Important Treatment Themes.

Authors:  Todd V Cartee; Murad Alam; Eric S Armbrecht; Anit Behera; Naomi Lawrence; Jeremy S Bordeaux; Christian L Baum; Anthony Rossi; Ian A Maher
Journal:  Dermatol Surg       Date:  2019-02       Impact factor: 3.398

4.  Responding to signals of mental and behavioral health risk in pragmatic clinical trials: Ethical obligations in a healthcare ecosystem.

Authors:  Joseph Ali; Stephanie R Morain; P Pearl O'Rourke; Benjamin Wilfond; Emily C O'Brien; Christina K Zigler; Karen L Staman; Kevin P Weinfurt; Jeremy Sugarman
Journal:  Contemp Clin Trials       Date:  2022-01-05       Impact factor: 2.226

Review 5.  Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology.

Authors:  Laith Alrubaiy; Hayley A Hutchings; Sarah E Hughes; Thomas Dobbs
Journal:  World J Hepatol       Date:  2022-05-27

6.  Oh, the Places We'll Go: Patient-Reported Outcomes and Electronic Health Records.

Authors:  Sarah G Gensheimer; Albert W Wu; Claire F Snyder
Journal:  Patient       Date:  2018-12       Impact factor: 3.883

7.  It's a long shot, but it just might work! Perspectives on the future of medicine.

Authors:  Paul Wicks; Matthew Hotopf; Vaibhav A Narayan; Ethan Basch; James Weatherall; Muir Gray
Journal:  BMC Med       Date:  2016-11-07       Impact factor: 8.775

Review 8.  Feedback of patient-reported outcomes to healthcare professionals for comparing health service performance: a scoping review.

Authors:  Shaun L Hancock; Olivia F Ryan; Violet Marion; Sharon Kramer; Paulette Kelly; Sibilah Breen; Dominique A Cadilhac
Journal:  BMJ Open       Date:  2020-11-23       Impact factor: 2.692

  8 in total

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