K S Burgdorf1, N Felsted2, S Mikkelsen3, M H Nielsen4, L W Thørner4, O B Pedersen5, E Sørensen4, K R Nielsen6, M T Bruun7, T Werge2, C Erikstrup3, T Hansen2, H Ullum4. 1. Department of Clinical Immunology, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark. Electronic address: kristoffer.soelvsten.burgdorf@regionh.dk. 2. Institute of Biological Psychiatry, Mental Health Centre Sct. Hans, Copenhagen University Hospital, Roskilde, Denmark. 3. Department of Clinical Immunology, Aarhus University Hospital, Aarhus, Denmark. 4. Department of Clinical Immunology, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark. 5. Department of Clinical Immunology, Naestved Hospital, Naestved, Denmark. 6. Department of Clinical Immunology, Aalborg University Hospital, Aalborg, Denmark. 7. Department of Clinical Immunology, Odense University Hospital, Odense, Denmark.
Abstract
OBJECTIVES: The Danish Blood Donor Study (DBDS) is a prospective, population-based study and biobank. Since 2010, 100,000 Danish blood donors have been included in the study. Prior to July 2015 all participating donors had to complete a paper-based questionnaire. Here we describe the establishment of a digital tablet-based questionnaire platform implemented in blood bank sites across Denmark. METHODS: The digital questionnaire was developed using the open source survey software tool LimeSurvey. The participants accesses the questionnaire online with a standard SSL encrypted HTTP connection using their personal civil registration numbers. The questionnaire is placed at a front-end web server and a collection server retrieves the completed questionnaires. Data from blood samples, register data, genetic data and verification of signed informed consent are then transferred to and merged with the questionnaire data in the DBDS database. RESULTS: The digital platform enables personalized questionnaires, presenting only questions relevant to the specific donor by hiding unneeded follow-up questions on screening question results. New versions of questionnaires are immediately available at all blood collection facilities when new projects are initiated. CONCLUSION: The digital platform is a faster, cost-effective and more flexible solution to collect valid data from participating donors compared to paper-based questionnaires. The overall system can be used around the world by the use of Internet connection, but the level of security depends on the sensitivity of the data to be collected.
OBJECTIVES: The Danish Blood Donor Study (DBDS) is a prospective, population-based study and biobank. Since 2010, 100,000 Danish blood donors have been included in the study. Prior to July 2015 all participating donors had to complete a paper-based questionnaire. Here we describe the establishment of a digital tablet-based questionnaire platform implemented in blood bank sites across Denmark. METHODS: The digital questionnaire was developed using the open source survey software tool LimeSurvey. The participants accesses the questionnaire online with a standard SSL encrypted HTTP connection using their personal civil registration numbers. The questionnaire is placed at a front-end web server and a collection server retrieves the completed questionnaires. Data from blood samples, register data, genetic data and verification of signed informed consent are then transferred to and merged with the questionnaire data in the DBDS database. RESULTS: The digital platform enables personalized questionnaires, presenting only questions relevant to the specific donor by hiding unneeded follow-up questions on screening question results. New versions of questionnaires are immediately available at all blood collection facilities when new projects are initiated. CONCLUSION: The digital platform is a faster, cost-effective and more flexible solution to collect valid data from participating donors compared to paper-based questionnaires. The overall system can be used around the world by the use of Internet connection, but the level of security depends on the sensitivity of the data to be collected.
Authors: Ole B Pedersen; Gregor B E Jemec; Mattias A S Henning; Kristina S Ibler; Isabella Loft; Sisse R Ostrowski; Christian Erikstrup; Kaspar R Nielsen; Mie T Bruun; Henrik Ullum; Maria Didriksen; Khoa M Dinh Journal: Qual Life Res Date: 2022-02-22 Impact factor: 4.147
Authors: Mattias A S Henning; Kristina S Ibler; Isabella Loft; Henrik Ullum; Christian Erikstrup; Kaspar R Nielsen; Mie Topholm Bruun; Henrik Hjalgrim; Erik Sørensen; Kristoffer S Burgdorf; Susan Mikkelsen; Thomas F Hansen; Ole B Pedersen; Gregor B E Jemec Journal: Acta Derm Venereol Date: 2021-04-26 Impact factor: 3.875
Authors: Rune Kjærsgaard Andersen; Isabella Charlotte Loft; Kristoffer Burgdorf; Christian Erikstrup; Ole B Pedersen; Gregor B E Jemec Journal: Acta Derm Venereol Date: 2021-01-20 Impact factor: 3.875
Authors: Kristoffer Sølvsten Burgdorf; Jacob Simonsen; Anna Sundby; Klaus Rostgaard; Ole Birger Pedersen; Erik Sørensen; Kaspar René Nielsen; Mie Topholm Bruun; Morten Frisch; Gustaf Edgren; Christian Erikstrup; Henrik Hjalgrim; Henrik Ullum Journal: PLoS One Date: 2017-02-09 Impact factor: 3.240
Authors: Thomas Folkmann Hansen; Louise K Hoeffding; Lisette Kogelman; Thilde Marie Haspang; Henrik Ullum; Erik Sørensen; Christian Erikstrup; Ole Birger Pedersen; Kaspar René Nielsen; Henrik Hjalgrim; Helene M Paarup; Thomas Werge; Kristoffer Burgdorf Journal: BMC Neurol Date: 2018-10-16 Impact factor: 2.474
Authors: Thomas Folkmann Hansen; Karina Banasik; Christian Erikstrup; Ole Birger Pedersen; David Westergaard; Piotr Jaroslaw Chmura; Kaspar Nielsen; Lise Thørner; Henrik Hjalgrim; Helene Paarup; Margit Anita Hørup Larsen; Mikkel Petersen; Poul Jennum; Steffen Andersen; Mette Nyegaard; Gregor Borut Ernst Jemec; Jes Olesen; Thomas Werge; Pär I Johansson; Erik Sørensen; Søren Brunak; Henrik Ullum; Kristoffer Sølvsten Burgdorf Journal: BMJ Open Date: 2019-06-09 Impact factor: 2.692
Authors: Eric J Earley; Maria Didriksen; Bryan R Spencer; Joseph E Kiss; Christian Erikstrup; Ole B Pedersen; Erik Sørensen; Kristoffer S Burgdorf; Steven H Kleinman; Alan E Mast; Michael P Busch; Henrik Ullum; Grier P Page Journal: Sleep Date: 2021-04-09 Impact factor: 5.849