Literature DB >> 27535900

Promises and pitfalls of data sharing in qualitative research.

Alexander C Tsai1, Brandon A Kohrt2, Lynn T Matthews3, Theresa S Betancourt4, Jooyoung K Lee5, Andrew V Papachristos6, Sheri D Weiser7, Shari L Dworkin8.   

Abstract

The movement for research transparency has gained irresistible momentum over the past decade. Although qualitative research is rarely published in the high-impact journals that have adopted, or are most likely to adopt, data sharing policies, qualitative researchers who publish work in these and similar venues will likely encounter questions about data sharing within the next few years. The fundamental ways in which qualitative and quantitative data differ should be considered when assessing the extent to which qualitative and mixed methods researchers should be expected to adhere to data sharing policies developed with quantitative studies in mind. We outline several of the most critical concerns below, while also suggesting possible modifications that may help to reduce the probability of unintended adverse consequences and to ensure that the sharing of qualitative data is consistent with ethical standards in research.
Copyright © 2016 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Confidentiality; Data sharing; Ethnography; Mixed methods; Qualitative research; Reproducibility; Transparency

Mesh:

Year:  2016        PMID: 27535900      PMCID: PMC5491836          DOI: 10.1016/j.socscimed.2016.08.004

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  47 in total

1.  Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups.

Authors:  Allison Tong; Peter Sainsbury; Jonathan Craig
Journal:  Int J Qual Health Care       Date:  2007-09-14       Impact factor: 2.038

Review 2.  Reproducible epidemiologic research.

Authors:  Roger D Peng; Francesca Dominici; Scott L Zeger
Journal:  Am J Epidemiol       Date:  2006-03-01       Impact factor: 4.897

3.  Social science. Promoting transparency in social science research.

Authors:  E Miguel; C Camerer; K Casey; J Cohen; K M Esterling; A Gerber; R Glennerster; D P Green; M Humphreys; G Imbens; D Laitin; T Madon; L Nelson; B A Nosek; M Petersen; R Sedlmayr; J P Simmons; U Simonsohn; M Van der Laan
Journal:  Science       Date:  2014-01-03       Impact factor: 47.728

4.  Preparing for responsible sharing of clinical trial data.

Authors:  Michelle M Mello; Jeffrey K Francer; Marc Wilenzick; Patricia Teden; Barbara E Bierer; Mark Barnes
Journal:  N Engl J Med       Date:  2013-10-21       Impact factor: 91.245

Review 5.  The Nurses' Health Study: lifestyle and health among women.

Authors:  Graham A Colditz; Susan E Hankinson
Journal:  Nat Rev Cancer       Date:  2005-05       Impact factor: 60.716

6.  HIV infection and sexually transmitted infections among men who have sex with men in Senegal.

Authors:  Abdoulaye Sidibe Wade; Coumba Toure Kane; Pape Amadou Niang Diallo; Abdou Khoudia Diop; Khady Gueye; Souleymane Mboup; Ibrahima Ndoye; Emmanuel Lagarde
Journal:  AIDS       Date:  2005-12-02       Impact factor: 4.177

7.  Food insufficiency, depression, and the modifying role of social support: Evidence from a population-based, prospective cohort of pregnant women in peri-urban South Africa.

Authors:  Alexander C Tsai; Mark Tomlinson; W Scott Comulada; Mary Jane Rotheram-Borus
Journal:  Soc Sci Med       Date:  2016-01-08       Impact factor: 4.634

8.  The imperative to share clinical study reports: recommendations from the Tamiflu experience.

Authors:  Peter Doshi; Tom Jefferson; Chris Del Mar
Journal:  PLoS Med       Date:  2012-04-10       Impact factor: 11.069

9.  Restoring Study 329: efficacy and harms of paroxetine and imipramine in treatment of major depression in adolescence.

Authors:  Joanna Le Noury; John M Nardo; David Healy; Jon Jureidini; Melissa Raven; Catalin Tufanaru; Elia Abi-Jaoude
Journal:  BMJ       Date:  2015-09-16

10.  "I Do Feel Like a Scientist at Times": A Qualitative Study of the Acceptability of Molecular Point-Of-Care Testing for Chlamydia and Gonorrhoea to Primary Care Professionals in a Remote High STI Burden Setting.

Authors:  Lisa Natoli; Rebecca J Guy; Mark Shephard; Louise Causer; Steven G Badman; Belinda Hengel; Annie Tangey; James Ward; Tony Coburn; David Anderson; John Kaldor; Lisa Maher
Journal:  PLoS One       Date:  2015-12-29       Impact factor: 3.240

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  10 in total

1.  Detection of risk for depression among adolescents in diverse global settings: protocol for the IDEA qualitative study in Brazil, Nepal, Nigeria and the UK.

Authors:  Syed Shabab Wahid; Gloria A Pedersen; Katherine Ottman; Abigail Burgess; Kamal Gautam; Thais Martini; Anna Viduani; Olufisayo Momodu; Crystal Lam; Helen L Fisher; Christian Kieling; Abiodun O Adewuya; Valeria Mondelli; Brandon A Kohrt
Journal:  BMJ Open       Date:  2020-07-28       Impact factor: 2.692

2.  Are we ready to share qualitative research data? Knowledge and preparedness among qualitative researchers, IRB Members, and data repository curators.

Authors:  Jessica Mozersky; Heidi Walsh; Meredith Parsons; Tristan McIntosh; Kari Baldwin; James M DuBois
Journal:  IASSIST Q       Date:  2020-01-08

3.  Research Participant Views regarding Qualitative Data Sharing.

Authors:  Jessica Mozersky; Meredith Parsons; Heidi Walsh; Kari Baldwin; Tristan McIntosh; James M DuBois
Journal:  Ethics Hum Res       Date:  2020-03

4.  Elucidating adolescent aspirational models for the design of public mental health interventions: a mixed-method study in rural Nepal.

Authors:  Sauharda Rai; Safar Bikram Adhikari; Nanda Raj Acharya; Bonnie N Kaiser; Brandon A Kohrt
Journal:  Child Adolesc Psychiatry Ment Health       Date:  2017-12-21       Impact factor: 3.033

5.  Doing implementation research on health governance: a frontline researcher's reflexive account of field-level challenges and their management.

Authors:  Gupteswar Patel; Surekha Garimella; Kerry Scott; Shinjini Mondal; Asha George; Kabir Sheikh
Journal:  Int J Equity Health       Date:  2017-11-15

6.  Protocol for a longitudinal study to evaluate the use of tenofovir-based PrEP for safer conception and pregnancy among women in South Africa.

Authors:  Lynn T Matthews; Manjeetha Jaggernath; Yolandie Kriel; Patricia M Smith; Kasey O'Neil; Jessica E Haberer; Craig Hendrix; Jared M Baeten; Norma C Ware; Kathleen Wirth; Christina Psaros; David R Bangsberg; Jennifer A Smit
Journal:  BMJ Open       Date:  2019-07-26       Impact factor: 2.692

7.  Qualitative Data Sharing: Participant Understanding, Motivation, and Consent.

Authors:  Alicia VandeVusse; Jennifer Mueller; Sebastian Karcher
Journal:  Qual Health Res       Date:  2021-12-01

8.  Barriers and facilitators to qualitative data sharing in the United States: A survey of qualitative researchers.

Authors:  Jessica Mozersky; Tristan McIntosh; Heidi A Walsh; Meredith V Parsons; Melody Goodman; James M DuBois
Journal:  PLoS One       Date:  2021-12-31       Impact factor: 3.240

9.  Incentivising research data sharing: a scoping review.

Authors:  Helen Buckley Woods; Stephen Pinfield
Journal:  Wellcome Open Res       Date:  2022-04-06

10.  A study protocol of qualitative data sharing practices in clinical trials in the UK and Ireland: towards the production of good practice guidance.

Authors:  Catherine Houghton; Megan McCarthy; Katie Gillies; Nikki Rousseau; Julia Wade; Carrol Gamble; Elaine Toomey; Karen Matvienko-Sikar; Matthew Sydes; Maura Dowling; Val Bryant; Linda Biesty
Journal:  HRB Open Res       Date:  2021-06-22
  10 in total

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