Literature DB >> 27510456

Supportive Care: Communication Strategies to Improve Cultural Competence in Shared Decision Making.

Edwina A Brown1, Hilary L Bekker2, Sara N Davison3, Jonathan Koffman4, Jane O Schell5.   

Abstract

Historic migration and the ever-increasing current migration into Western countries have greatly changed the ethnic and cultural patterns of patient populations. Because health care beliefs of minority groups may follow their religion and country of origin, inevitable conflict can arise with decision making at the end of life. The principles of truth telling and patient autonomy are embedded in the framework of Anglo-American medical ethics. In contrast, in many parts of the world, the cultural norm is protection of the patient from the truth, decision making by the family, and a tradition of familial piety, where it is dishonorable not to do as much as possible for parents. The challenge for health care professionals is to understand how culture has enormous potential to influence patients' responses to medical issues, such as healing and suffering, as well as the physician-patient relationship. Our paper provides a framework of communication strategies that enhance crosscultural competency within nephrology teams. Shared decision making also enables clinicians to be culturally competent communicators by providing a model where clinicians and patients jointly consider best clinical evidence in light of a patient's specific health characteristics and values when choosing health care. The development of decision aids to include cultural awareness could avoid conflict proactively, more productively address it when it occurs, and enable decision making within the framework of the patient and family cultural beliefs.
Copyright © 2016 by the American Society of Nephrology.

Entities:  

Keywords:  Communication; Cultural Competency; Decision Support Techniques; Ethics; Ethnic Groups; Humans; Medical; Minority Groups; Physician-Patient Relations; advanced kidney disease; chronic kidney disease; decision-making; end of life

Mesh:

Year:  2016        PMID: 27510456      PMCID: PMC5053803          DOI: 10.2215/CJN.13661215

Source DB:  PubMed          Journal:  Clin J Am Soc Nephrol        ISSN: 1555-9041            Impact factor:   8.237


  33 in total

Review 1.  A systematic review of evidence for end-of-life communication interventions: Who do they target, how are they structured and do they work?

Authors:  Adam Walczak; Phyllis N Butow; Stella Bu; Josephine M Clayton
Journal:  Patient Educ Couns       Date:  2015-08-17

Review 2.  Cultural aspects of communication in cancer care.

Authors:  Antonella Surbone
Journal:  Support Care Cancer       Date:  2008-01-15       Impact factor: 3.603

Review 3.  Health literacy: emerging evidence and applications in kidney disease care.

Authors:  Leigh Anne Dageforde; Kerri L Cavanaugh
Journal:  Adv Chronic Kidney Dis       Date:  2013-07       Impact factor: 3.620

4.  Racial variations in end-of-life care.

Authors:  F P Hopp; S A Duffy
Journal:  J Am Geriatr Soc       Date:  2000-06       Impact factor: 5.562

Review 5.  Cultural targeting and tailoring of shared decision making technology: a theoretical framework for improving the effectiveness of patient decision aids in culturally diverse groups.

Authors:  Dana L Alden; John Friend; Marilyn Schapira; Anne Stiggelbout
Journal:  Soc Sci Med       Date:  2014-01-15       Impact factor: 4.634

6.  Negotiating cross-cultural issues at the end of life: "You got to go where he lives".

Authors:  M Kagawa-Singer; L J Blackhall
Journal:  JAMA       Date:  2001-12-19       Impact factor: 56.272

7.  Geographic variation in black-white differences in end-of-life care for patients with ESRD.

Authors:  Bernadette A Thomas; Rudolph A Rodriguez; Edward J Boyko; Cassianne Robinson-Cohen; Annette L Fitzpatrick; Ann M O'Hare
Journal:  Clin J Am Soc Nephrol       Date:  2013-04-11       Impact factor: 8.237

8.  Knowledge of and attitudes towards palliative care and hospice services among patients with advanced chronic kidney disease.

Authors:  Sara N Davison; Gian S Jhangri; Jonathan Koffman
Journal:  BMJ Support Palliat Care       Date:  2014-06-10       Impact factor: 3.568

Review 9.  Culture and end of life care: a scoping exercise in seven European countries.

Authors:  Marjolein Gysels; Natalie Evans; Arantza Meñaca; Erin Andrew; Franco Toscani; Sylvia Finetti; H Roeline Pasman; Irene Higginson; Richard Harding; Robert Pool
Journal:  PLoS One       Date:  2012-04-03       Impact factor: 3.240

10.  Patient Acceptability of the Yorkshire Dialysis Decision Aid (YoDDA) Booklet: A Prospective Non-Randomized Comparison Study Across 6 Predialysis Services.

Authors:  Anna E Winterbottom; Teresa Gavaruzzi; Andrew Mooney; Martin Wilkie; Simon J Davies; Dennis Crane; Ken Tupling; Paul D Baxter; David M Meads; Nigel Mathers; Hilary L Bekker
Journal:  Perit Dial Int       Date:  2015-10-01       Impact factor: 1.756

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  18 in total

1.  Qualitative Interviews Exploring Palliative Care Perspectives of Latinos on Dialysis.

Authors:  Lilia Cervantes; Jacqueline Jones; Stuart Linas; Stacy Fischer
Journal:  Clin J Am Soc Nephrol       Date:  2017-04-12       Impact factor: 8.237

2.  Supportive Care: Meeting the Needs of Patients with Advanced Chronic Kidney Disease.

Authors:  Sara N Davison; Alvin H Moss
Journal:  Clin J Am Soc Nephrol       Date:  2016-10-07       Impact factor: 8.237

3.  Time to Improve Informed Consent for Dialysis: An International Perspective.

Authors:  Frank Brennan; Cameron Stewart; Hannah Burgess; Sara N Davison; Alvin H Moss; Fliss E M Murtagh; Michael Germain; Shelley Tranter; Mark Brown
Journal:  Clin J Am Soc Nephrol       Date:  2017-04-04       Impact factor: 8.237

4.  Development of an online patient decision aid for kidney failure treatment modality decisions.

Authors:  Noel Engels; Paul B van der Nat; Jet W Ankersmid; Janine C M Prick; Ellen Parent; Regina The; Asako Takahashi; Hans A J Bart; Cornelia F van Uden-Kraan; Anne M Stiggelbout; Willem J W Bos; Marinus A van den Dorpel
Journal:  BMC Nephrol       Date:  2022-07-06       Impact factor: 2.585

Review 5.  Supportive Care: Integration of Patient-Centered Kidney Care to Manage Symptoms and Geriatric Syndromes.

Authors:  Sara N Davison; Sarbjit Vanita Jassal
Journal:  Clin J Am Soc Nephrol       Date:  2016-08-10       Impact factor: 8.237

6.  Supportive Care: Time to Change Our Prognostic Tools and Their Use in CKD.

Authors:  Cécile Couchoud; Brenda Hemmelgarn; Peter Kotanko; Michael J Germain; Olivier Moranne; Sara N Davison
Journal:  Clin J Am Soc Nephrol       Date:  2016-08-10       Impact factor: 8.237

7.  Perceptions of the impact of COVID-19 on healthcare communication in a nationally representative cross-sectional survey of family caregivers.

Authors:  Reed W R Bratches; Noah Z Freundlich; J Nicholas Dionne-Odom; A James O'Malley; Paul J Barr
Journal:  BMJ Open       Date:  2022-04-13       Impact factor: 3.006

8.  Emotional Impact of Illness and Care on Patients with Advanced Kidney Disease.

Authors:  Ann M O'Hare; Claire Richards; Jackie Szarka; Lynne V McFarland; Whitney Showalter; Elizabeth K Vig; Rebecca L Sudore; Susan T Crowley; Ranak Trivedi; Janelle S Taylor
Journal:  Clin J Am Soc Nephrol       Date:  2018-07-06       Impact factor: 8.237

Review 9.  Supportive Care: Economic Considerations in Advanced Kidney Disease.

Authors:  Rachael L Morton; Manjula Kurella Tamura; Joanna Coast; Sara N Davison
Journal:  Clin J Am Soc Nephrol       Date:  2016-08-10       Impact factor: 8.237

10.  Parents' attitudes towards topical fluoride and vaccines for children: Are these distinct or overlapping phenomena?

Authors:  Richard M Carpiano; Donald L Chi
Journal:  Prev Med Rep       Date:  2018-03-06
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