Literature DB >> 27501323

Moving Parkinson care to the home.

E Ray Dorsey1,2, Floris P Vlaanderen3, Lucien Jlpg Engelen4, Karl Kieburtz5,6, William Zhu6, Kevin M Biglan5,6, Marjan J Faber3, Bastiaan R Bloem7.   

Abstract

In many ways, the care of individuals with Parkinson disease does not meet their needs. Despite the documented benefits of receiving care from clinicians with Parkinson disease expertise, many patients (if not most) do not. Moreover, current care models frequently require older individuals with impaired mobility, cognition, and driving ability to be driven by overburdened caregivers to large, complex urban medical centers. Moving care to the patient's home would make Parkinson disease care more patient-centered. Demographic factors, including aging populations, and social factors, such as the splintering of the extended family, will increase the need for home-based care. Technological advances, especially the ability to assess and deliver care remotely, will enable the transition of care back to the home. However, despite its promise, this next generation of home-based care will have to overcome barriers, including outdated insurance models and a technological divide. Once these barriers are addressed, home-based care will increase access to high quality care for the growing number of individuals with Parkinson disease.
© 2016 International Parkinson and Movement Disorder Society. © 2016 International Parkinson and Movement Disorder Society.

Entities:  

Keywords:  Parkinson disease; e-health; health care delivery; home; self-management; telehealth

Mesh:

Year:  2016        PMID: 27501323      PMCID: PMC5014631          DOI: 10.1002/mds.26744

Source DB:  PubMed          Journal:  Mov Disord        ISSN: 0885-3185            Impact factor:   10.338


  43 in total

1.  Detecting and monitoring the symptoms of Parkinson's disease using smartphones: A pilot study.

Authors:  S Arora; V Venkataraman; A Zhan; S Donohue; K M Biglan; E R Dorsey; M A Little
Journal:  Parkinsonism Relat Disord       Date:  2015-03-07       Impact factor: 4.891

2.  Effectiveness of multidisciplinary care for Parkinson's disease: a randomized, controlled trial.

Authors:  Marjolein A van der Marck; Bastiaan R Bloem; George F Borm; Sebastiaan Overeem; Marten Munneke; Mark Guttman
Journal:  Mov Disord       Date:  2012-11-19       Impact factor: 10.338

3.  Caring for the majority.

Authors:  E Ray Dorsey; Allison W Willis
Journal:  Mov Disord       Date:  2013-02-11       Impact factor: 10.338

4.  Revolutionising management of chronic disease: the ParkinsonNet approach.

Authors:  Bastiaan R Bloem; Marten Munneke
Journal:  BMJ       Date:  2014-03-19

Review 5.  Parkinson disease and driving: an evidence-based review.

Authors:  Alexander M Crizzle; Sherrilene Classen; Ergun Y Uc
Journal:  Neurology       Date:  2012-11-13       Impact factor: 9.910

6.  Factors contributing to caregivers' stress and burden in Parkinson's disease.

Authors:  D Santos-García; R de la Fuente-Fernández
Journal:  Acta Neurol Scand       Date:  2014-09-12       Impact factor: 3.209

7.  Care Coordination/Home Telehealth: the systematic implementation of health informatics, home telehealth, and disease management to support the care of veteran patients with chronic conditions.

Authors:  Adam Darkins; Patricia Ryan; Rita Kobb; Linda Foster; Ellen Edmonson; Bonnie Wakefield; Anne E Lancaster
Journal:  Telemed J E Health       Date:  2008-12       Impact factor: 3.536

8.  Move for change part I: a European survey evaluating the impact of the EPDA Charter for People with Parkinson's disease.

Authors:  B R Bloem; F Stocchi
Journal:  Eur J Neurol       Date:  2011-10-04       Impact factor: 6.089

9.  Capturing patients' experiences to change Parkinson's disease care delivery: a multicenter study.

Authors:  Martijn van der Eijk; Marjan J Faber; Bart Post; Michael S Okun; Peter Schmidt; Marten Munneke; Bastiaan R Bloem
Journal:  J Neurol       Date:  2015-08-21       Impact factor: 4.849

10.  Move for Change Part II: a European survey evaluating the impact of the EPDA Charter for people with Parkinson's disease.

Authors:  F Stocchi; B R Bloem
Journal:  Eur J Neurol       Date:  2012-10-03       Impact factor: 6.089

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  37 in total

Review 1.  The Promise of Telemedicine for Movement Disorders: an Interdisciplinary Approach.

Authors:  H Ben-Pazi; P Browne; P Chan; E Cubo; M Guttman; A Hassan; J Hatcher-Martin; Z Mari; E Moukheiber; N U Okubadejo; A Shalash
Journal:  Curr Neurol Neurosci Rep       Date:  2018-04-13       Impact factor: 5.081

2.  Virtual visits for Parkinson disease: A multicenter noncontrolled cohort.

Authors:  Ryan E Korn; Aparna Wagle Shukla; Maya Katz; H Tait Keenan; Steven Goldenthal; Peggy Auinger; William Zhu; Michael Dodge; Kyle Rizer; Meredith A Achey; Erica Byrd; Richard Barbano; Irene Richard; Kelly L Andrzejewski; Heidi B Schwarz; E Ray Dorsey; Kevin M Biglan; Gail Kang; Sulada Kanchana; Ramon Rodriguez; Caroline M Tanner; Nicholas B Galifianakis
Journal:  Neurol Clin Pract       Date:  2017-08

3.  Parkinson's disease and Covid-19: The effect and use of telemedicine.

Authors:  Aleksandra M Podlewska; Daniel J van Wamelen
Journal:  Int Rev Neurobiol       Date:  2022-07-14       Impact factor: 4.280

4.  Co-Designing an Integrated Care Network with People Living with Parkinson's Disease: A Heterogeneous Social Network of People, Resources and Technologies.

Authors:  Amélie Gauthier-Beaupré; Emely Poitras; Sylvie Grosjean; Tiago A Mestre
Journal:  J Pers Med       Date:  2022-06-19

5.  Telemonitoring via Questionnaires Reduces Outpatient Healthcare Consumption in Parkinson's Disease.

Authors:  Anke Wijers; Laura Hochstenbach; Gerrit Tissingh
Journal:  Mov Disord Clin Pract       Date:  2021-07-19

6.  Supervised versus unsupervised technology-based levodopa monitoring in Parkinson's disease: an intrasubject comparison.

Authors:  Giovanna Lopane; Sabato Mellone; Mattia Corzani; Lorenzo Chiari; Pietro Cortelli; Giovanna Calandra-Buonaura; Manuela Contin
Journal:  J Neurol       Date:  2018-03-29       Impact factor: 4.849

7.  Next Generation House Call.

Authors:  Jamie L Adams; Christopher G Tarolli; E Ray Dorsey
Journal:  Cerebrum       Date:  2017-01-01

8.  Telehealth Management of Parkinson's Disease Using Wearable Sensors: An Exploratory Study.

Authors:  Dustin A Heldman; Denzil A Harris; Timothy Felong; Kelly L Andrzejewski; E Ray Dorsey; Joseph P Giuffrida; Barry Goldberg; Michelle A Burack
Journal:  Digit Biomark       Date:  2017-05-12

9.  Cost-Effectiveness of Device-Aided Therapies in Parkinson's Disease: A Structured Review.

Authors:  Katarzyna Smilowska; Daniel J van Wamelen; Tomasz Pietrzykowski; Alexander Calvano; Carmen Rodriguez-Blazquez; Pablo Martinez-Martin; Per Odin; K Ray Chaudhuri
Journal:  J Parkinsons Dis       Date:  2021       Impact factor: 5.568

10.  Home Health Management of Parkinson Disease Deep Brain Stimulation: A Randomized Clinical Trial.

Authors:  Gordon Duffley; Barbara J Lutz; Aniko Szabo; Adrienne Wright; Christopher W Hess; Adolfo Ramirez-Zamora; Pamela Zeilman; Shannon Chiu; Kelly D Foote; Michael S Okun; Christopher R Butson
Journal:  JAMA Neurol       Date:  2021-08-01       Impact factor: 29.907

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