Literature DB >> 27489297

Stronger and More Vulnerable: A Balanced View of the Impacts of the NICU Experience on Parents.

Annie Janvier1, John Lantos2, Judy Aschner3, Keith Barrington1, Beau Batton4, Daniel Batton4, Siri Fuglem Berg5, Brian Carter6, Deborah Campbell3, Felicia Cohn7, Anne Drapkin Lyerly8, Dan Ellsbury9, Avroy Fanaroff10, Jonathan Fanaroff10, Kristy Fanaroff10, Sophie Gravel1, Marlyse Haward11, Stefan Kutzsche12, Neil Marlow13, Martha Montello14, Nathalie Maitre15, Joshua T Morris16, Odd G Paulsen17, Trisha Prentice18, Alan R Spitzer9.   

Abstract

For parents, the experience of having an infant in the NICU is often psychologically traumatic. No parent can be fully prepared for the extreme stress and range of emotions of caring for a critically ill newborn. As health care providers familiar with the NICU, we thought that we understood the impact of the NICU on parents. But we were not prepared to see the children in our own families as NICU patients. Here are some of the lessons our NICU experience has taught us. We offer these lessons in the hope of helping health professionals consider a balanced view of the NICU's impact on families.
Copyright © 2016 by the American Academy of Pediatrics.

Entities:  

Mesh:

Year:  2016        PMID: 27489297     DOI: 10.1542/peds.2016-0655

Source DB:  PubMed          Journal:  Pediatrics        ISSN: 0031-4005            Impact factor:   7.124


  15 in total

1.  Next generation sequencing in neonatology: what does it mean for the next generation?

Authors:  Annie Janvier; Keith Barrington; John Lantos
Journal:  Hum Genet       Date:  2022-03-29       Impact factor: 4.132

2.  Infant illness severity and perinatal post-traumatic stress disorder after discharge from the neonatal intensive care unit.

Authors:  Kathryn J Malin; Teresa S Johnson; Sarah McAndrew; Jacqueline Westerdahl; Jonathan Leuthner; Joanne Lagatta
Journal:  Early Hum Dev       Date:  2019-11-20       Impact factor: 2.079

3.  Parents' experiences of decision making for rapid genomic sequencing in intensive care.

Authors:  Fiona Lynch; Amy Nisselle; Zornitza Stark; Clara L Gaff; Belinda McClaren
Journal:  Eur J Hum Genet       Date:  2021-08-23       Impact factor: 4.246

4.  Cognitive disorders in childhood epilepsy: a comparative longitudinal study using administrative healthcare data.

Authors:  Anna-Lisa Sorg; Rüdiger von Kries; Ingo Borggraefe
Journal:  J Neurol       Date:  2022-02-15       Impact factor: 6.682

Review 5.  Trauma-informed care in the newborn intensive care unit: promoting safety, security and connectedness.

Authors:  M R Sanders; S L Hall
Journal:  J Perinatol       Date:  2017-08-17       Impact factor: 2.521

6.  Perspectives of time: a qualitative study of the experiences of parents of critically ill newborns in the neonatal nursery in North Queensland interviewed several years after the admission.

Authors:  Susan Ireland; Robin A Ray; Sarah Larkins; Lynn Woodward
Journal:  BMJ Open       Date:  2019-05-14       Impact factor: 2.692

7.  Negativity about the outcomes of extreme prematurity a persistent problem - a survey of health care professionals across the North Queensland region.

Authors:  Susan Ireland; Sarah Larkins; Robin Ray; Lynn Woodward
Journal:  Matern Health Neonatol Perinatol       Date:  2020-04-28

8.  Music Is Life-Follow-Up Qualitative Study on Parental Experiences of Creative Music Therapy in the Neonatal Period.

Authors:  Friederike Barbara Haslbeck; Lars Schmidli; Hans Ulrich Bucher; Dirk Bassler
Journal:  Int J Environ Res Public Health       Date:  2021-06-21       Impact factor: 3.390

9.  Parents experiencing NICU visit restrictions due to COVID-19 pandemic.

Authors:  Stefano Bembich; Antonella Tripani; Simona Mastromarino; Giovanna Di Risio; Elena Castelpietra; Francesco M Risso
Journal:  Acta Paediatr       Date:  2020-10-28       Impact factor: 4.056

10.  My child's legacy: a mixed methods study of bereaved parents and providers' opinions about collaboration with NICU teams in quality improvement initiatives.

Authors:  Claude Julie Bourque; Sonia Dahan; Ginette Mantha; Martin Reichherzer; Annie Janvier
Journal:  BMJ Open       Date:  2020-09-06       Impact factor: 2.692

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