Literature DB >> 27473639

Engaging patients and consumers in research evidence: Applying the conceptual model of patient and family engagement.

Kristin L Carman1, Thomas A Workman2.   

Abstract

OBJECTIVE: This essay discusses applying the Conceptual Framework for Patient and Family Engagement to partnerships with patients and consumers to increase their use of research evidence in healthcare decisions. The framework's foundational principles hold that engagement occurs on a continuum across all levels of healthcare-from direct care to policymaking-with patients and healthcare professionals working in full partnership and sharing responsibility for achieving a safe, high-quality, efficient, and patient-centered healthcare system. DISCUSSION: Research evidence can serve as a critical decision-making tool in partnerships between patients and health professionals. However, as the framework suggests, without patient and consumer engagement in the design, planning, interpretation, and dissemination of research findings, it is unlikely that the broader consumer population will find research evidence useful, much less use it, to guide their healthcare decisions. Understanding what factors influence patient and consumer engagement can lead to effective strategies that enable meaningful partnerships between patients and researchers.
CONCLUSION: Understanding patient and consumer perspectives of research evidence is critical to engaging them in meaningful partnerships that produce actionable research findings that they can in turn use in partnership with health professionals to improve their own health and the healthcare system as a whole.
Copyright © 2016 The Authors. Published by Elsevier Ireland Ltd.. All rights reserved.

Entities:  

Keywords:  Engaged research; Medical decision making; Patient and family engagement; Patient partnership; Research evidence

Mesh:

Year:  2016        PMID: 27473639     DOI: 10.1016/j.pec.2016.07.009

Source DB:  PubMed          Journal:  Patient Educ Couns        ISSN: 0738-3991


  22 in total

1.  Former NICU Families Describe Gaps in Family-Centered Care.

Authors:  Krista Sigurdson; Jochen Profit; Ravi Dhurjati; Christine Morton; Melissa Scala; Lelis Vernon; Ashley Randolph; Jessica T Phan; Linda S Franck
Journal:  Qual Health Res       Date:  2020-07-25

2.  Engaging older patients with cancer and their caregivers as partners in cancer research.

Authors:  Nikesha J Gilmore; Beverly Canin; Mary Whitehead; Margaret Sedenquist; Lorraine Griggs; Lynn Finch; Valerie Grossman; Valerie Targia; Megan Wells; Charles Kamen; Marie Flannery; Allison Magnuson; Sandy Plumb; Spencer Obrecht; Lisa M Lowenstein; Gilberto Lopez; Jainy Anderson; Jeffrey Berenberg; Victor Vogel; James Bearden; William Dale; Supriya G Mohile
Journal:  Cancer       Date:  2019-08-16       Impact factor: 6.860

3.  Engaging the Patient's Perspective in Clinical Trials Research.

Authors:  Brooke Hefele; Sinéad M Langan; Karen Pollins; Joel M Gelfand
Journal:  J Invest Dermatol       Date:  2019-03-14       Impact factor: 8.551

4.  Implementation of Patient and Family Advisory Councils in Primary Care Practices in a Large, Integrated Health System.

Authors:  Anita D Misra-Hebert; Susannah Rose; Colleen Clayton; Kevin Phipps; Scott Dynda; Maureen Duffy; Julie Rish
Journal:  J Gen Intern Med       Date:  2019-02       Impact factor: 5.128

Review 5.  Assessing Meaningful Community Engagement: A Conceptual Model to Advance Health Equity through Transformed Systems for Health: Organizing Committee for Assessing Meaningful Community Engagement in Health & Health Care Programs & Policies.

Authors:  Sergio Aguilar-Gaxiola; Syed M Ahmed; Ayodola Anise; Atum Azzahir; Kellan E Baker; Anna Cupito; Milton Eder; Tekisha Dwan Everette; Kim Erwin; Maret Felzien; Elmer Freeman; David Gibbs; Ella Greene-Moton; Sinsi Hernández-Cancio; Ann Hwang; Felica Jones; Grant Jones; Marita Jones; Dmitry Khodyakov; J Lloyd Michener; Bobby Milstein; Debra S Oto-Kent; Michael Orban; Burt Pusch; Mona Shah; Monique Shaw; Julie Tarrant; Nina Wallerstein; John M Westfall; Asia Williams; Richard Zaldivar
Journal:  NAM Perspect       Date:  2022-02-14

6.  Developing a Theory of Change model of service user and caregiver involvement in mental health system strengthening in primary health care in rural Ethiopia.

Authors:  Sisay Abayneh; Heidi Lempp; Atalay Alem; Brandon A Kohrt; Abebaw Fekadu; Charlotte Hanlon
Journal:  Int J Ment Health Syst       Date:  2020-07-23

Review 7.  Considerations for the Design and Implementation of COVID-19 Contact Tracing Apps: Scoping Review.

Authors:  Esli Osmanlliu; Edmond Rafie; Sylvain Bédard; Jesseca Paquette; Genevieve Gore; Marie-Pascale Pomey
Journal:  JMIR Mhealth Uhealth       Date:  2021-06-09       Impact factor: 4.773

Review 8.  Unpacking Partnership, Engagement, and Collaboration Research to Inform Implementation Strategies Development: Theoretical Frameworks and Emerging Methodologies.

Authors:  Keng-Yen Huang; Simona C Kwon; Sabrina Cheng; Dimitra Kamboukos; Donna Shelley; Laurie M Brotman; Sue A Kaplan; Ogedegbe Olugbenga; Kimberly Hoagwood
Journal:  Front Public Health       Date:  2018-07-11

Review 9.  Patient engagement in hospital health service planning and improvement: a scoping review.

Authors:  Laurel Liang; Albina Cako; Robin Urquhart; Sharon E Straus; Walter P Wodchis; G Ross Baker; Anna R Gagliardi
Journal:  BMJ Open       Date:  2018-01-30       Impact factor: 2.692

10.  Public engagement in the development of the National Health Insurance: a study involving patients from a central hospital in South Africa.

Authors:  Lizeka Amanda Tandwa; Ames Dhai
Journal:  BMC Public Health       Date:  2020-07-31       Impact factor: 3.295

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.