Literature DB >> 27450361

Understanding Effective Delivery of Patient and Family Education in Pediatric OncologyA Systematic Review From the Children's Oncology Group [Formula: see text].

Cheryl C Rodgers1, Catherine M Laing2, Ruth Anne Herring3, Nancy Tena4, Adrianne Leonardelli5, Marilyn Hockenberry1, Verna Hendricks-Ferguson6.   

Abstract

A diagnosis of childhood cancer is a life-changing event for the entire family. Parents must not only deal with the cancer diagnosis but also acquire new knowledge and skills to care safely for their child at home. Best practices for delivery of patient/family education after a new diagnosis of childhood cancer are currently unknown. The purpose of this systematic review was to evaluate the existing body of evidence to determine the current state of knowledge regarding the delivery of education to newly diagnosed pediatric oncology patients and families. Eighty-three articles regarding educational methods, content, influencing factors, and interventions for newly diagnosed pediatric patients with cancer or other chronic illnesses were systematically identified, summarized, and appraised according to the Grading of Recommendations Assessment, Development, and Evaluation criteria. Based on the evidence, 10 recommendations for practice were identified. These recommendations address delivery methods, content, influencing factors, and educational interventions for parents and siblings. Transferring these recommendations into practice may enhance the quality of education delivered by health care providers and received by patients and families following a new diagnosis of childhood cancer.

Entities:  

Keywords:  education; family; new diagnosis; pediatric oncology; systematic review

Mesh:

Year:  2016        PMID: 27450361      PMCID: PMC5235950          DOI: 10.1177/1043454216659449

Source DB:  PubMed          Journal:  J Pediatr Oncol Nurs        ISSN: 1043-4542            Impact factor:   1.636


  84 in total

1.  Pediatric oncology professionals' perceptions of information needs of adolescent patients with cancer.

Authors:  Andrew S Bradlyn; Pamela M Kato; Ivan L Beale; Steve Cole
Journal:  J Pediatr Oncol Nurs       Date:  2004 Nov-Dec       Impact factor: 1.636

Review 2.  Family adjustment to childhood cancer: a systematic review.

Authors:  Kristin A Long; Anna L Marsland
Journal:  Clin Child Fam Psychol Rev       Date:  2011-03

3.  What Is It Like to Be a Child with Type 1 Diabetes Mellitus?

Authors:  Valéria de Cássia Sparapani; Eufemia Jacob; Lucila Castanheira Nascimento
Journal:  Pediatr Nurs       Date:  2015 Jan-Feb

4.  Communication with parents of children with cancer.

Authors:  O B Eden; I Black; G A MacKinlay; A E Emery
Journal:  Palliat Med       Date:  1994       Impact factor: 4.762

5.  What follows newborn screening? An evaluation of a residential education program for parents of infants with newly diagnosed cystic fibrosis.

Authors:  Susan M Sawyer; Judith A Glazner
Journal:  Pediatrics       Date:  2004-08       Impact factor: 7.124

6.  Evaluation of standardized teaching plans for hospitalized pediatric patients: a performance improvement project.

Authors:  Joanne Blagojevic; Sigrid Stephens
Journal:  J Healthc Qual       Date:  2008 May-Jun       Impact factor: 1.095

7.  Development of Home Educational Materials for Families of Preterm Infants.

Authors:  Susan Ronan; Penny Liberatos; Sarah Weingarten; Princess Wells; Jessica Garry; Kathryn O'Brien; Sarah Parker-Bozzuto; Stacy L Schultz; Tracy Nevid
Journal:  Neonatal Netw       Date:  2015

8.  Development and assessment of a home care tracheotomy manual.

Authors:  L Kingston; L Brodsky; M S Volk; J Stanievich
Journal:  Int J Pediatr Otorhinolaryngol       Date:  1995-07       Impact factor: 1.675

9.  The impact of a web-based educational and support intervention on parents' perception of their children's cancer quality of life: an exploratory study.

Authors:  Anna Olafia Sigurdardottir; Erla Kolbrun Svavarsdottir; Mary Kay Rayens; Yevgeniya Gokun
Journal:  J Pediatr Oncol Nurs       Date:  2014-03-19       Impact factor: 1.636

10.  Internet use among low-income persons recently diagnosed with HIV infection.

Authors:  J K Mayben; T P Giordano
Journal:  AIDS Care       Date:  2007-10
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  11 in total

1.  Tablet Computer Use at the Bedside in a New Patient/Family Education Program.

Authors:  Rachel F Fenske
Journal:  J Hosp Librariansh       Date:  2019-05-06

2.  Decision-making in childhood cancer: parents' and adolescents' views and perceptions.

Authors:  Eden G Robertson; Claire E Wakefield; Joanne Shaw; Anne-Sophie Darlington; Brittany C McGill; Richard J Cohn; Joanna E Fardell
Journal:  Support Care Cancer       Date:  2019-03-18       Impact factor: 3.603

3.  Interventions to Promote Oral Medication Adherence in the Pediatric Chronic Illness Population: A Systematic Review From the Children's Oncology Group.

Authors:  Kelly D Coyne; Katherine A Trimble; Ashley Lloyd; Laura Petrando; Jennie Pentz; Kari Van Namen; Andrea Fawcett; Catherine M Laing
Journal:  J Pediatr Oncol Nurs       Date:  2019-04-04       Impact factor: 1.636

4.  Incidence and risk factors of bacterial and fungal infection during induction chemotherapy for high-risk neuroblastoma.

Authors:  Sarah B Whittle; Kaitlin C Williamson; Heidi V Russell
Journal:  Pediatr Hematol Oncol       Date:  2017-12-04       Impact factor: 1.969

5.  A Standardized Education Checklist for Parents of Children Newly Diagnosed With Cancer: A Report From the Children's Oncology Group.

Authors:  Cheryl Rodgers; Vanessa Bertini; Mary Ashe Conway; Ashley Crosty; Angela Filice; Ruth Anne Herring; Julie Isbell; E Anne Lown DrPH; Kristina Miller; Margaret Perry; Paula Sanborn; Nicole Spreen; Nancy Tena; Cindi Winkle; Joan Darling; Abigail Slaven; Jeneane Sullivan; Kathryn M Tomlinson; Kate Windt; Marilyn Hockenberry; Wendy Landier
Journal:  J Pediatr Oncol Nurs       Date:  2018-03-28       Impact factor: 1.636

6.  A Comprehensive Survey of Institutional Patient/Family Educational Practices for Newly Diagnosed Pediatric Oncology Patients.

Authors:  Janice S Withycombe; Rachel Andam-Mejia; Annie Dwyer; Abigail Slaven; Katherine Windt; Wendy Landier
Journal:  J Pediatr Oncol Nurs       Date:  2016-07-07       Impact factor: 1.636

7.  Patient/Family Education for Newly Diagnosed Pediatric Oncology Patients.

Authors:  Wendy Landier; JoAnn Ahern; Lamia P Barakat; Smita Bhatia; Kristin M Bingen; Patricia G Bondurant; Susan L Cohn; Sarah K Dobrozsi; Maureen Haugen; Ruth Anne Herring; Mary C Hooke; Melissa Martin; Kathryn Murphy; Amy R Newman; Cheryl C Rodgers; Kathleen S Ruccione; Jeneane Sullivan; Marianne Weiss; Janice Withycombe; Lise Yasui; Marilyn Hockenberry
Journal:  J Pediatr Oncol Nurs       Date:  2016-07-09       Impact factor: 1.636

8.  Implementing and Evaluating a Standardized New Diagnosis Education Checklist: A Report From the Children's Oncology Group.

Authors:  Elizabeth A Duffy; Teresa Herriage; Lori Ranney; Nancy Tena
Journal:  J Pediatr Oncol Nurs       Date:  2021-05-24       Impact factor: 1.966

9.  Ethical Challenges of Pediatric Cancer Care: Interviews With Nurses in Saudi Arabia.

Authors:  Ghiath Alahmad; Halah Al-Kamli; Haneen Alzahrani
Journal:  Cancer Control       Date:  2020 Jan-Dec       Impact factor: 3.302

10.  Nutrition education and cooking workshops for families of children with cancer: a feasibility study.

Authors:  S Beaulieu-Gagnon; V Bélanger; C Meloche; D Curnier; S Sultan; C Laverdière; D Sinnett; V Marcil
Journal:  BMC Nutr       Date:  2019-11-19
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