Literature DB >> 27405399

The consumer-driven development and acceptability testing of a website designed to connect rural cancer patients and their families, carers and health professionals with appropriate information and psychosocial support.

K M Fennell1,2,3,4, D A Turnbull3, N Bidargaddi5,6, J L McWha3, M Davies7, I Olver4.   

Abstract

Websites offer new opportunities to provide health-related information to rural communities. However, how acceptable they are to this population is unknown. This paper describes the consumer-led development of a website that provides rural-specific information on psychosocial care for rural South Australians affected by cancer, and examines its acceptability to users. The Country Cancer Support website was developed with people affected by cancer living in rural South Australia (N = 11), using a Participatory Action Research Framework and evidence-based behaviour change strategies. There were 32,389 visits in the first 3 years. An online survey (N = 111) revealed that users found the website easy to use, helpful and relevant. Most rural cancer patients and supporters (98.11%) believed it had been written by people who understood what they were going through. Patients and supporters for whom it was relevant, reported feeling more motivated and confident in accessing psychosocial support services in their rural area (66.67%) and/or capital city (67.65%) and/or in travelling for medical treatment (75.86%). Many also felt less isolated (73.33%) and/or distressed (53.57%). All health professionals reported gaining new knowledge. This study shows that carefully designed websites can successfully address rural populations' health information needs and increase intentions to access psychosocial support.
© 2016 John Wiley & Sons Ltd.

Entities:  

Keywords:  behaviour change; cancer; eHealth; oncology; participatory action research; rural

Mesh:

Year:  2016        PMID: 27405399     DOI: 10.1111/ecc.12533

Source DB:  PubMed          Journal:  Eur J Cancer Care (Engl)        ISSN: 0961-5423            Impact factor:   2.520


  7 in total

1.  An evaluation of social work services in a cancer accommodation facility for rural South Australians.

Authors:  Bonnie Wiggins; Nadia Corsini; Imogen Ramsey; Suzanne Edwards; Deb Ball; Lesley Cocks; Jo Lill; Greg Sharplin; Carlene Wilson
Journal:  Support Care Cancer       Date:  2017-07-31       Impact factor: 3.603

Review 2.  The role of digital health technology in rural cancer care delivery: A systematic review.

Authors:  Bonny B Morris; Brianna Rossi; Bernard Fuemmeler
Journal:  J Rural Health       Date:  2021-09-04       Impact factor: 5.667

3.  Rural cancer survivors' health information needs post-treatment.

Authors:  Nynikka R Palmer; Nancy E Avis; Nora F Fino; Janet A Tooze; Kathryn E Weaver
Journal:  Patient Educ Couns       Date:  2020-02-27

Review 4.  Best Practices and Lessons Learned for Action Research in eHealth Design and Implementation: Literature Review.

Authors:  Kira Oberschmidt; Christiane Grünloh; Femke Nijboer; Lex van Velsen
Journal:  J Med Internet Res       Date:  2022-01-28       Impact factor: 5.428

5.  Caring for someone with cancer in rural Australia.

Authors:  Kate M Gunn; Melanie Weeks; Kristiaan J J Spronk; Chloe Fletcher; Carlene Wilson
Journal:  Support Care Cancer       Date:  2022-02-14       Impact factor: 3.359

6.  If You Build It, Who Will Come? A Description of User Characteristics and Experiences With the McMaster Optimal Aging Portal.

Authors:  Sarah E Neil-Sztramko; Rawan Farran; Susannah Watson; Anthony J Levinson; John N Lavis; Alfonso Iorio; Maureen Dobbins
Journal:  Gerontol Geriatr Med       Date:  2017-11-08

7.  E-health literacy and associated factors among chronic patients in a low-income country: a cross-sectional survey.

Authors:  Kirubel Biruk Shiferaw; Binyam Chakilu Tilahun; Berhanu Fikadie Endehabtu; Monika Knudsen Gullslett; Shegaw Anagaw Mengiste
Journal:  BMC Med Inform Decis Mak       Date:  2020-08-06       Impact factor: 2.796

  7 in total

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