Literature DB >> 27313190

Lessons learned: Engaging culturally diverse families in neurodevelopmental disorders intervention research.

Allison B Ratto1,2,3, Bruno J Anthony4,5,6, Cara Pugliese1,3, Rocio Mendez4, Jonathan Safer-Lichtenstein4, Katerina M Dudley1,3, Nicole F Kahn4, Lauren Kenworthy1,2,3, Matthew Biel4,7, Jillian L Martucci1,3, Laura G Anthony1,2,3.   

Abstract

Low-income and ethnic minority families continue to face critical disparities in access to diagnostic and treatment services for neurodevelopmental conditions, such as autism spectrum disorder and attention deficit hyperactivity disorder. Despite the growing cultural diversity of the United States, ethnic minority children and families continue to be substantially underrepresented across research on neurodevelopmental disorders, and there is a particularly concerning lack of research on the treatment of these conditions in low-income and ethnic minority communities. Of note, there are currently no published studies on adapting autism spectrum disorder treatment for low-income Latino communities and relatively few studies documenting adapted treatments for children with attention deficit hyperactivity disorder in these communities. This article describes methodological considerations and adaptations made to research procedures using a Diffusion of Innovation framework in order to effectively recruit and engage low-income, ethnic minority, particularly Latino, families of children with neurodevelopmental disorders, in a comparative effectiveness trial of two school-based interventions for executive dysfunction.

Entities:  

Keywords:  attention deficit hyperactivity disorder; autism spectrum disorders; family functioning and support; interventions; psychosocial/behavioral

Mesh:

Year:  2016        PMID: 27313190      PMCID: PMC5159318          DOI: 10.1177/1362361316650394

Source DB:  PubMed          Journal:  Autism        ISSN: 1362-3613


  44 in total

1.  Latina Mothers Caring for a Son or Daughter with Autism or Schizophrenia: Similarities, Differences and the Relationship Between Co-Residency and Maternal Well-Being.

Authors:  Sandy Magaña; Subharati Ghosh
Journal:  J Fam Soc Work       Date:  2010-05-01

Review 2.  Evidence-based psychosocial treatments for ethnic minority youth.

Authors:  Stanley J Huey; Antonio J Polo
Journal:  J Clin Child Adolesc Psychol       Date:  2008-01

3.  Use of lay opinion leaders to promote diffusion of health innovations in a community programme: lessons learned from the North Karelia project.

Authors:  P Puska; K Koskela; A McAlister; H Mäyränen; A Smolander; S Moisio; L Viri; V Korpelainen; E M Rogers
Journal:  Bull World Health Organ       Date:  1986       Impact factor: 9.408

Review 4.  Difference or disorder? Cultural issues in understanding neurodevelopmental disorders.

Authors:  Courtenay Frazier Norbury; Alison Sparks
Journal:  Dev Psychol       Date:  2012-03-05

5.  Sources of parenting information in low SES mothers.

Authors:  Samantha B Berkule-Silberman; Benard P Dreyer; Harris S Huberman; Perri E Klass; Alan L Mendelsohn
Journal:  Clin Pediatr (Phila)       Date:  2010-01-28       Impact factor: 1.168

6.  "When Will Your Program Be Available in Spanish?" Adapting an Early Parenting Intervention for Latino Families.

Authors:  Jean E Dumas; Ximena Arriaga; Angela Moreland Begle; Zayra Longoria
Journal:  Cogn Behav Pract       Date:  2010-05-01

7.  Bridging the research-to-practice gap in autism intervention: an application of diffusion of innovation theory.

Authors:  Hilary E Dingfelder; David S Mandell
Journal:  J Autism Dev Disord       Date:  2011-05

8.  Remediating organizational functioning in children with ADHD: immediate and long-term effects from a randomized controlled trial.

Authors:  Howard Abikoff; Richard Gallagher; Karen C Wells; Desiree W Murray; Lei Huang; Feihan Lu; Eva Petkova
Journal:  J Consult Clin Psychol       Date:  2012-08-13

Review 9.  A review of cultural adaptations of screening tools for autism spectrum disorders.

Authors:  Sandra Soto; Keri Linas; Diane Jacobstein; Matthew Biel; Talia Migdal; Bruno J Anthony
Journal:  Autism       Date:  2014-07-09

10.  Underdiagnosis and referral bias of autism in ethnic minorities.

Authors:  Sander Begeer; Saloua El Bouk; Wafaa Boussaid; Mark Meerum Terwogt; Hans M Koot
Journal:  J Autism Dev Disord       Date:  2008-07-04
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  7 in total

1.  Assessment of Language Abilities in Minority Adolescents and Young Adults With Autism Spectrum Disorder and Extensive Special Education Needs: A Pilot Study.

Authors:  Teresa M Girolamo; Mabel L Rice; Steven F Warren
Journal:  Am J Speech Lang Pathol       Date:  2020-04-23       Impact factor: 2.408

2.  It's time for a change!: The appreciative inquiry/bootcamp translation to address disparities in the Latino community with autism spectrum disorders.

Authors:  Eric J Moody; Bryn Harris; Linda Zittleman; Donald E Nease; John M Westfall
Journal:  Cultur Divers Ethnic Minor Psychol       Date:  2019-01

3.  Training clinicians to deliver group CBT to manage anxiety in youth with ASD: Results of a multisite trial.

Authors:  Judy Reaven; Eric J Moody; Laura Grofer Klinger; Amy Keefer; Amie Duncan; Sarah O'Kelley; Allison Meyer; Susan Hepburn; Audrey Blakeley-Smith
Journal:  J Consult Clin Psychol       Date:  2018-03

4.  Parents matter: Parent acceptance of school-based executive functions interventions relates to improved child outcomes.

Authors:  Leah B Rothschild; Allison B Ratto; Lauren Kenworthy; Kristina K Hardy; Alyssa Verbalis; Cara Pugliese; John F Strang; Jonathan Safer-Lichtenstein; Bruno J Anthony; Laura G Anthony; Madison M Guter; David A F Haaga
Journal:  J Clin Psychol       Date:  2022-01-08

5.  Characterizing Enrollment in Observational Studies of Duchenne Muscular Dystrophy by Race and Ethnicity.

Authors:  Alison M Barnard; Samuel L Riehl; Rebecca J Willcocks; Glenn A Walter; Amber M Angell; Krista Vandenborne
Journal:  J Neuromuscul Dis       Date:  2020

6.  Perceived and Observed Treatment Gains Following PEERS: A Preliminary Study with Latinx Adolescents with ASD.

Authors:  Elina Veytsman; Elizabeth Baker; Ann Marie Martin; Tricia Choy; Jan Blacher; Katherine Stavropoulos
Journal:  J Autism Dev Disord       Date:  2022-02-14

7.  A community-engaged approach to examining barriers and facilitators to accessing autism services in Korean immigrant families.

Authors:  Vanessa C Fong; Bo Sang Lee; Grace Iarocci
Journal:  Autism       Date:  2021-07-21
  7 in total

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