Literature DB >> 27224629

Promoting participation of people with dementia in research.

Goiz-Eder Aspe Juaristi1, Karen Harrison Dening2.   

Abstract

Dementia is a neurodegenerative disorder that can have a severe effect on the quality of life of individuals with the condition, and can place considerable strain on informal carers and healthcare systems. Research is required to identify ways to prevent or delay the onset of dementia. The government is committed to dementia research, yet funding for dementia research is eclipsed by funding for research into other conditions. Moreover, dementia research can only progress if individuals with the condition participate in research studies. This article discusses barriers associated with research into dementia and describes a UK government initiative, Join Dementia Research, which supports research participation for people with dementia.

Entities:  

Keywords:  dementia; neurodegenerative disorder; older people; participation in research; research

Mesh:

Year:  2016        PMID: 27224629     DOI: 10.7748/ns.30.39.38.s43

Source DB:  PubMed          Journal:  Nurs Stand        ISSN: 0029-6570


  3 in total

1.  Planning Ahead for Dementia Research Participation: Insights from a Survey of Older Australians and Implications for Ethics, Law and Practice.

Authors:  Nola Ries; Elise Mansfield; Rob Sanson-Fisher
Journal:  J Bioeth Inq       Date:  2019-07-11       Impact factor: 1.352

2.  Non-Invasive Solutions to Identify Distinctions Between Healthy and Mild Cognitive Impairments Participants.

Authors:  Eaman A Alharbi; Janelle M Jones; Akram Alomainy
Journal:  IEEE J Transl Eng Health Med       Date:  2022-05-16

3.  Measuring Quality of Life in Carers of People With Dementia: Development and Psychometric Evaluation of Scales measuring the Impact of DEmentia on CARers (SIDECAR).

Authors:  Mike C Horton; Jan Oyebode; Linda Clare; Molly Megson; Leanne Shearsmith; Carol Brayne; Paul Kind; Zoe Hoare; Hareth Al Janabi; Val Hewison; Alan Tennant; Penny Wright
Journal:  Gerontologist       Date:  2021-04-03
  3 in total

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