Literature DB >> 27182207

Renal replacement Therapy and Barriers to choice: using a Mixed Methods approach to explore the Patient's Perspective.

Caroline Jennette1, Vimal Derebail1, Judy Baldwin2, Sandra Cameron3.   

Abstract

Alternatives to in-center hemodialysis as treatment for end-stage renal disease have been shown to increase patient quality of life, decrease co-morbidities and decrease financial strain on both the patient and the health care system. Focus groups (n = 6 groups with 47 participants) and survey data (n = 113) were used to ascertain perceived barriers and facilitators to alternative therapies and psychosocial and educational issues that may affect a patients' choice of modality among patients utilizing in-center dialysis, home dialysis and renal transplantation. Fear emerged as a predominant theme, both at diagnosis and when choosing a modality. Distrust of the medical system, denial and patient experiences with previous modalities were seen as barriers to care. Results imply that interventions addressing fear and providing more comprehensive pre-dialysis education may decrease barriers.

Entities:  

Year:  2009        PMID: 27182207      PMCID: PMC4864018     

Source DB:  PubMed          Journal:  J Nephrol Soc Work        ISSN: 1532-0863


  14 in total

1.  Late referral and modality choice in end-stage renal disease.

Authors:  W C Winkelmayer; R J Glynn; R Levin; W Owen; J Avorn
Journal:  Kidney Int       Date:  2001-10       Impact factor: 10.612

2.  Twenty-five years of experience with out-center hemodialysis.

Authors:  W Arkouche; J Traeger; E Delawari; R Sibaï-Galland; E Abdullah; R Galland; P Leitienne; D Fouque; M Laville
Journal:  Kidney Int       Date:  1999-12       Impact factor: 10.612

Review 3.  Peritoneal dialysis: myths, barriers, and achieving optimum outcomes.

Authors:  Judith Bernardini
Journal:  Nephrol Nurs J       Date:  2004 Sep-Oct       Impact factor: 0.959

4.  Renal replacement therapy choices for pre-dialysis renal patients.

Authors:  Alison E Tweed; Karen Ceaser
Journal:  Br J Nurs       Date:  2005 Jun 23-Jul 13

5.  Impact of initial dialysis modality and modality switches on Medicare expenditures of end-stage renal disease patients.

Authors:  Ya-Chen Tina Shih; Amy Guo; Paul M Just; Salim Mujais
Journal:  Kidney Int       Date:  2005-07       Impact factor: 10.612

6.  Patient education and access of ESRD patients to renal replacement therapies beyond in-center hemodialysis.

Authors:  Rajnish Mehrotra; Douglas Marsh; Edward Vonesh; Vickie Peters; Allen Nissenson
Journal:  Kidney Int       Date:  2005-07       Impact factor: 10.612

7.  Use of focus groups to identify concerns about dialysis. Choice Study.

Authors:  E B Bass; M W Jenckes; N E Fink; K A Cagney; A W Wu; J H Sadler; K B Meyer; A S Levey; N R Powe
Journal:  Med Decis Making       Date:  1999 Jul-Sep       Impact factor: 2.583

8.  Developing a health-related quality-of-life measure for end-stage renal disease: The CHOICE Health Experience Questionnaire.

Authors:  A W Wu; N E Fink; K A Cagney; E B Bass; H R Rubin; K B Meyer; J H Sadler; N R Powe
Journal:  Am J Kidney Dis       Date:  2001-01       Impact factor: 8.860

9.  Patients' perceptions concerning choice among renal replacement therapies: a pilot study.

Authors:  Kandacej Landreneau; Peggy Ward-Smith
Journal:  Nephrol Nurs J       Date:  2006 Jul-Aug       Impact factor: 0.959

10.  Patient ratings of dialysis care with peritoneal dialysis vs hemodialysis.

Authors:  Haya R Rubin; Nancy E Fink; Laura C Plantinga; John H Sadler; Alan S Kliger; Neil R Powe
Journal:  JAMA       Date:  2004-02-11       Impact factor: 56.272

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  6 in total

1.  Experiences of US Nephrologists in the Delivery of Conservative Care to Patients With Advanced Kidney Disease: A National Qualitative Study.

Authors:  Susan P Y Wong; Saritha Boyapati; Ruth A Engelberg; Bjorg Thorsteinsdottir; Janelle S Taylor; Ann M O'Hare
Journal:  Am J Kidney Dis       Date:  2019-09-27       Impact factor: 8.860

Review 2.  The psychosocial needs of patients who have chronic kidney disease without kidney replacement therapy: a thematic synthesis of seven qualitative studies.

Authors:  Christina Seery; Sarah Buchanan
Journal:  J Nephrol       Date:  2022-09-01       Impact factor: 4.393

Review 3.  Barriers to Education and Shared Decision Making in the Chronic Kidney Disease Population: A Narrative Review.

Authors:  Brendan P Cassidy; Leah E Getchell; Lori Harwood; Juliya Hemmett; Louise M Moist
Journal:  Can J Kidney Health Dis       Date:  2018-11-02

4.  Educational Support Around Dialysis Modality Decision Making in Patients With Chronic Kidney Disease: Qualitative Study.

Authors:  Brendan P Cassidy; Lori Harwood; Leah E Getchell; Michael Smith; Shannon L Sibbald; Louise M Moist
Journal:  Can J Kidney Health Dis       Date:  2018-10-08

5.  Patient perspectives on chronic kidney disease and decision-making about treatment. Discourse of participants in the French CKD-REIN cohort study.

Authors:  Lucile Montalescot; Géraldine Dorard; Elodie Speyer; Karine Legrand; Carole Ayav; Christian Combe; Bénédicte Stengel; Aurélie Untas
Journal:  J Nephrol       Date:  2022-06-13       Impact factor: 4.393

6.  Patient-reported factors influencing the choice of their kidney replacement treatment modality.

Authors:  Rianne W de Jong; Vianda S Stel; Axel Rahmel; Mark Murphy; Raymond C Vanholder; Ziad A Massy; Kitty J Jager
Journal:  Nephrol Dial Transplant       Date:  2022-02-25       Impact factor: 5.992

  6 in total

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