Laura Coffey1, Orla Mooney2, Simon Dunne2, Linda Sharp3, Aileen Timmons4, Deirdre Desmond1, Eleanor O'Sullivan5, Conrad Timon6, Rachael Gooberman-Hill7, Pamela Gallagher8. 1. Department of Psychology, Maynooth University, Maynooth, Co. Kildare, Ireland. 2. School of Nursing and Human Sciences, Dublin City University, Dublin, Ireland. 3. Institute of Health and Society, Newcastle University, Newcastle, UK. 4. National Cancer Registry Ireland, Cork, Ireland. 5. Cork University Dental School and Hospital, Cork, Ireland. 6. Department of Otolaryngology/Head and Neck Surgery, St. James's Hospital, Dublin, Ireland. 7. School of Clinical Sciences, University of Bristol, Bristol, UK. 8. School of Nursing and Human Sciences, Dublin City University, Dublin, Ireland. pamela.gallagher@dcu.ie.
Abstract
PURPOSE: Self-management interventions improve patient outcomes across a range of long-term conditions but are often limited by low uptake and completion rates. The aim of this paper was to conduct a meta-synthesis of qualitative studies exploring cancer survivors' views and experiences of engaging with adjustment-focused self-management interventions in order to inform the development of future interventions targeting this population. METHODS: Four electronic databases were systematically searched. Studies that used qualitative methods to explore cancer survivors' views and experiences of engaging with adjustment-focused self-management interventions were included. A meta-ethnographic approach was used to synthesize the findings. RESULTS: Thirteen studies met the inclusion criteria. Engaging with adjustment-focused self-management interventions enabled cancer survivors to gain emotional and informational support from peers and/or facilitators in an open, non-judgemental environment, become empowered through enhancing knowledge and skills and regaining confidence and control, and move beyond cancer by accepting illness experiences, reprioritising goals and adopting a positive outlook. However, the extent to which they engaged with, and benefited from, such interventions was mitigated by diverse preferences regarding intervention design, content and delivery. Personal obstacles to engagement included low perceived need, reticence to discuss cancer-related experiences and various practical issues. CONCLUSIONS: Cancer survivors derive a range of benefits from participating in adjustment-focused self-management interventions; potential barriers to engagement should be addressed more comprehensively in intervention marketing, design and delivery. IMPLICATIONS FOR CANCER SURVIVORS: The findings suggest some key considerations for the development and implementation of future adjustment-focused self-management interventions that may help to optimize their appeal and effectiveness among cancer survivors.
PURPOSE: Self-management interventions improve patient outcomes across a range of long-term conditions but are often limited by low uptake and completion rates. The aim of this paper was to conduct a meta-synthesis of qualitative studies exploring cancer survivors' views and experiences of engaging with adjustment-focused self-management interventions in order to inform the development of future interventions targeting this population. METHODS: Four electronic databases were systematically searched. Studies that used qualitative methods to explore cancer survivors' views and experiences of engaging with adjustment-focused self-management interventions were included. A meta-ethnographic approach was used to synthesize the findings. RESULTS: Thirteen studies met the inclusion criteria. Engaging with adjustment-focused self-management interventions enabled cancer survivors to gain emotional and informational support from peers and/or facilitators in an open, non-judgemental environment, become empowered through enhancing knowledge and skills and regaining confidence and control, and move beyond cancer by accepting illness experiences, reprioritising goals and adopting a positive outlook. However, the extent to which they engaged with, and benefited from, such interventions was mitigated by diverse preferences regarding intervention design, content and delivery. Personal obstacles to engagement included low perceived need, reticence to discuss cancer-related experiences and various practical issues. CONCLUSIONS:Cancer survivors derive a range of benefits from participating in adjustment-focused self-management interventions; potential barriers to engagement should be addressed more comprehensively in intervention marketing, design and delivery. IMPLICATIONS FOR CANCER SURVIVORS: The findings suggest some key considerations for the development and implementation of future adjustment-focused self-management interventions that may help to optimize their appeal and effectiveness among cancer survivors.
Authors: Gayathri Embuldeniya; Paula Veinot; Emma Bell; Mary Bell; Joyce Nyhof-Young; Joanna E M Sale; Nicky Britten Journal: Patient Educ Couns Date: 2013-02-28
Authors: B Risendal; A Dwyer; R Seidel; K Lorig; C Katzenmeyer; L Coombs; Y Kellar-Guenther; L Warren; A Franco; M Ory Journal: J Cancer Educ Date: 2014-12 Impact factor: 2.037
Authors: Catherine Evans; Bérengère Saliba-Serre; Marie Préau; Marc-Karim Bendiane; Anthony Gonçalves; Michel Signoli; Anne-Déborah Bouhnik Journal: Support Care Cancer Date: 2022-07-12 Impact factor: 3.359
Authors: Karen L Syrjala; Casey A Walsh; Jean C Yi; Wendy M Leisenring; Emily Jo Rajotte; Jenna Voutsinas; Patricia A Ganz; Linda A Jacobs; Steven C Palmer; Ann Partridge; K Scott Baker Journal: J Cancer Surviv Date: 2021-09-29 Impact factor: 4.062
Authors: Denalee M O'Malley; Stacy N Davis; Katie A Devine; Brittany Sullivan; Alicja Bator; Lynn Clemow; Jeanne M Ferrante; Patricia A Findley; Suzanne M Miller; Shawna V Hudson Journal: Psychooncology Date: 2019-10-18 Impact factor: 3.894
Authors: Nicholas Clarke; Simon Dunne; Laura Coffey; Linda Sharp; Deirdre Desmond; Jean O'Conner; Eleanor O'Sullivan; Conrad Timon; Claire Cullen; Pamela Gallagher Journal: J Cancer Surviv Date: 2021-01-09 Impact factor: 4.442
Authors: Denalee M O'Malley; Stacy N Davis; Rahwana Amare; Bianca Sanabria; Brittany Sullivan; Katie A Devine; Jeanne M Ferrante; Patricia A Findley; Suzanne M Miller; Shawna V Hudson Journal: J Cancer Educ Date: 2020-10-07 Impact factor: 1.771
Authors: Dominik Ose; Eva C Winkler; Sarah Berger; Ines Baudendistel; Martina Kamradt; Felicitas Eckrich; Joachim Szecsenyi Journal: Patient Prefer Adherence Date: 2017-04-10 Impact factor: 2.711