Literature DB >> 27134613

Personal Health Records: Beneficial or Burdensome for Patients and Healthcare Providers?

Melissa Lester1, Samuel Boateng2, Jana Studeny3, Alberto Coustasse2.   

Abstract

Personal health records (PHRs) have been mandated to be made available to patients to provide increased access to medical care information, encourage participation in healthcare decision making, and enable correction of errors within medical records. The purpose of this study was to analyze the usefulness of PHRs from the perspectives of patients and providers. The methodology of this qualitative study was a literature review using 34 articles. PHRs are powerful tools for patients and healthcare providers. Better healthcare results and correction of medical records have been shown to be positive outcomes of the use of PHRs. PHRs have also been shown to be difficult for patients to use and understand, and providers had concerns about correct information transferring to the portals and patients eliminating information from the record. Concerns regarding patient understanding of medical records, legal liability, and the response time required of providers were also identified. For the PHR to succeed in the US healthcare system, assurance that the information will be protected, useful, and easily accessed is necessary.

Entities:  

Keywords:  electronic health records; healthcare decisions; meaningful use; personal health records (PHRs)

Mesh:

Year:  2016        PMID: 27134613      PMCID: PMC4832132     

Source DB:  PubMed          Journal:  Perspect Health Inf Manag        ISSN: 1559-4122


  24 in total

1.  Effects of health literacy on health status and health service utilization amongst the elderly.

Authors:  Young Ik Cho; Shoou-Yih D Lee; Ahsan M Arozullah; Kathleen S Crittenden
Journal:  Soc Sci Med       Date:  2008-03-04       Impact factor: 4.634

2.  Evaluation of patient-centered electronic health record to overcome digital divide.

Authors:  E Kim; A Mayani; S Modi; Y Kim; C Soh
Journal:  Conf Proc IEEE Eng Med Biol Soc       Date:  2005

3.  Personal health records: meaningful use, but for whom?

Authors:  Joseph Kannry; Pratharna Beuria; Emily Wang; Julie Nissim
Journal:  Mt Sinai J Med       Date:  2012 Sep-Oct

4.  Usage patterns of a personal health record by elderly and disabled users.

Authors:  Eung-Hun Kim; Anna Stolyar; William B Lober; Anne L Herbaugh; Sally E Shinstrom; Brenda K Zierler; Cheong B Soh; Youngmin Kim
Journal:  AMIA Annu Symp Proc       Date:  2007-10-11

5.  Factors affecting usage of a personal health record (PHR) to manage health.

Authors:  Jessica Taha; Sara J Czaja; Joseph Sharit; Daniel G Morrow
Journal:  Psychol Aging       Date:  2013-12

Review 6.  Personal health records as portal to the electronic medical record.

Authors:  Jennifer E Cahill; Mark R Gilbert; Terri S Armstrong
Journal:  J Neurooncol       Date:  2014-01-30       Impact factor: 4.130

7.  A cross-sectional study of barriers to personal health record use among patients attending a safety-net clinic.

Authors:  Joan F Hilton; Lynsey Barkoff; Olivia Chang; Lindsay Halperin; Neda Ratanawongsa; Urmimala Sarkar; Yan Leykin; Ricardo F Muñoz; David H Thom; James S Kahn
Journal:  PLoS One       Date:  2012-02-20       Impact factor: 3.240

8.  Acceptability of a personally controlled health record in a community-based setting: implications for policy and design.

Authors:  Elissa R Weitzman; Liljana Kaci; Kenneth D Mandl
Journal:  J Med Internet Res       Date:  2009-04-29       Impact factor: 5.428

9.  The personal health record paradox: health care professionals' perspectives and the information ecology of personal health record systems in organizational and clinical settings.

Authors:  Kim M Nazi
Journal:  J Med Internet Res       Date:  2013-04-04       Impact factor: 5.428

10.  Integrated personal health records: transformative tools for consumer-centric care.

Authors:  Don Detmer; Meryl Bloomrosen; Brian Raymond; Paul Tang
Journal:  BMC Med Inform Decis Mak       Date:  2008-10-06       Impact factor: 2.796

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  10 in total

1.  Factors Associated with Reducing Disparities in Electronic Personal Heath Records Use Among Non-Hispanic White and Hispanic Adults.

Authors:  Hao Wang; Sydney E Manning; Amy F Ho; Usha Sambamoorthi
Journal:  J Racial Ethn Health Disparities       Date:  2022-04-27

2.  Exploration of the Personal Health Record as a Tool for Spinal Cord Injury Health Self-Management and Coordination of Care.

Authors:  Manon Maitland Schladen; Inger H Ljungberg; J Austin Underwood; Suzanne L Groah
Journal:  Top Spinal Cord Inj Rehabil       Date:  2017

3.  Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review.

Authors:  Zahra Niazkhani; Esmaeel Toni; Mojgan Cheshmekaboodi; Andrew Georgiou; Habibollah Pirnejad
Journal:  BMC Med Inform Decis Mak       Date:  2020-07-08       Impact factor: 2.796

4.  Usefulness and Usability of a Personal Health Record and Survivorship Care Plan for Colorectal Cancer Survivors: Survey Study.

Authors:  Will L Tarver; Bruce W Robb; David A Haggstrom
Journal:  JMIR Cancer       Date:  2019-08-20

Review 5.  How the Use of a Patient-Accessible Health Record Contributes to Patient-Centered Care: Scoping Review.

Authors:  Janine Benjamins; Annemien Haveman-Nies; Marian Gunnink; Annemieke Goudkuil; Emely de Vet
Journal:  J Med Internet Res       Date:  2021-01-11       Impact factor: 5.428

Review 6.  Capturing the Impact of Patient Portals Based on the Quadruple Aim and Benefits Evaluation Frameworks: Scoping Review.

Authors:  Melita Avdagovska; Devidas Menon; Tania Stafinski
Journal:  J Med Internet Res       Date:  2020-12-08       Impact factor: 5.428

7.  Patient empowerment through a user-centered design of an electronic personal health record: a qualitative study of user requirements in chronic kidney disease.

Authors:  Esmaeel Toni; Habibollah Pirnejad; Khadijeh Makhdoomi; Azam Mivefroshan; Zahra Niazkhani
Journal:  BMC Med Inform Decis Mak       Date:  2021-11-24       Impact factor: 2.796

8.  Characteristics of personal health information management groups: findings from an online survey using Amazon's mTurk.

Authors:  Sujin Kim; Jeffrey T Huber
Journal:  J Med Libr Assoc       Date:  2017-10-01

9.  Phelan-McDermid syndrome data network: Integrating patient reported outcomes with clinical notes and curated genetic reports.

Authors:  Cartik Kothari; Maxime Wack; Claire Hassen-Khodja; Sean Finan; Guergana Savova; Megan O'Boyle; Geraldine Bliss; Andria Cornell; Elizabeth J Horn; Rebecca Davis; Jacquelyn Jacobs; Isaac Kohane; Paul Avillach
Journal:  Am J Med Genet B Neuropsychiatr Genet       Date:  2017-09-01       Impact factor: 3.568

10.  The Use of Mobile Personal Health Records for Hemoglobin A1c Regulation in Patients With Diabetes: Retrospective Observational Study.

Authors:  Dongjin Seo; Yu Rang Park; Yura Lee; Ji Young Kim; Joong-Yeol Park; Jae-Ho Lee
Journal:  J Med Internet Res       Date:  2020-06-02       Impact factor: 5.428

  10 in total

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