Amanda E Tanner1, Morgan M Philbin2, Anna DuVal3, Jonathan Ellen4, Bill Kapogiannis5, J Dennis Fortenberry6. 1. Department of Public Health Education, University of North Carolina Greensboro, Greensboro, NC, USA. Electronic address: aetanner@uncg.edu. 2. HIV Center for Clinical and Behavioral Studies at Columbia University and New York State Psychiatric Institute, New York, NY, USA. 3. Department of Emergency Medicine, Johns Hopkins School of Medicine, Baltimore, MD, USA. 4. Department of Pediatrics, Johns Hopkins School of Medicine, Baltimore, MD and All Children's Hospital, St. Petersburg, FL, USA. 5. Pediatric, Adolescent and Maternal AIDS Branch, Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, Bethesda, MD, USA. 6. Department of Pediatrics, Indiana University School of Medicine, Indianapolis, IN, USA.
Abstract
UNLABELLED: To maximize positive health outcomes for youth with HIV as they transition from youth to adult care, clinical staff need strategies and protocols to help youth maintain clinic engagement and medication adherence. Accordingly, this paper describe transition processes across twelve clinics within the Adolescent Medicine Trials Network for HIV/AIDS Interventions (ATN) to provide lessons learned and inform the development of transition protocols to improve health outcomes as youth shift from adolescent to adult HIV care. DESIGN AND METHODS: During a large multi-method Care Initiative program evaluation, three annual visits were completed at each site from 2010-2012 and conducted 174 semi-structured interviews with clinical and program staff (baseline n=64, year 1 n=56, year 2=54). RESULTS: The results underscore the value of adhering to recent American Academy of Pediatrics (AAP) transition recommendations, including: developing formal transition protocols, preparing youth for transition, facilitating youth's connection to the adult clinic, and identifying necessary strategies for transition evaluation. CONCLUSIONS: Transitioning youth with HIV involves targeting individual-, provider-, and system-level factors. Acknowledging and addressing key barriers is essential for developing streamlined, comprehensive, and context-specific transition protocols. PRACTICE IMPLICATIONS: Adolescent and adult clinic involvement in transition is essential to reduce service fragmentation, provide coordinated and continuous care, and support individual and community level health.
UNLABELLED: To maximize positive health outcomes for youth with HIV as they transition from youth to adult care, clinical staff need strategies and protocols to help youth maintain clinic engagement and medication adherence. Accordingly, this paper describe transition processes across twelve clinics within the Adolescent Medicine Trials Network for HIV/AIDS Interventions (ATN) to provide lessons learned and inform the development of transition protocols to improve health outcomes as youth shift from adolescent to adult HIV care. DESIGN AND METHODS: During a large multi-method Care Initiative program evaluation, three annual visits were completed at each site from 2010-2012 and conducted 174 semi-structured interviews with clinical and program staff (baseline n=64, year 1 n=56, year 2=54). RESULTS: The results underscore the value of adhering to recent American Academy of Pediatrics (AAP) transition recommendations, including: developing formal transition protocols, preparing youth for transition, facilitating youth's connection to the adult clinic, and identifying necessary strategies for transition evaluation. CONCLUSIONS: Transitioning youth with HIV involves targeting individual-, provider-, and system-level factors. Acknowledging and addressing key barriers is essential for developing streamlined, comprehensive, and context-specific transition protocols. PRACTICE IMPLICATIONS: Adolescent and adult clinic involvement in transition is essential to reduce service fragmentation, provide coordinated and continuous care, and support individual and community level health.
Authors: Donna Maturo; Alexis Powell; Hanna Major-Wilson; Kenia Sanchez; Joseph P De Santis; Lawrence B Friedman Journal: J Pediatr Health Care Date: 2010-02-08 Impact factor: 1.812
Authors: Hannah Bundock; Sarah Fidler; Simon Clarke; Deborah Jane Holmes-Walker; Kaye Farrell; Susan McDonald; Gareth Tudor-Williams; Caroline Foster Journal: AIDS Patient Care STDS Date: 2011-07-11 Impact factor: 5.078
Authors: Donald P Oswald; Donna L Gilles; Mariel S Cannady; Donna B Wenzel; Janet H Willis; Joann N Bodurtha Journal: Matern Child Health J Date: 2013-12
Authors: Amanda E Tanner; Morgan M Philbin; Mary A Ott; Anna Duval; Jonathan Ellen; Bill Kapogiannis; J Dennis Fortenberry Journal: J HIV AIDS Soc Serv Date: 2013
Authors: Amanda E Tanner; Morgan M Philbin; Brittany D Chambers; Alice Ma; Sophia Hussen; Samuella Ware; Sonia Lee; J Dennis Fortenberry Journal: J Adolesc Health Date: 2018-06-07 Impact factor: 5.012
Authors: Amanda E Tanner; Morgan M Philbin; Alice Ma; Brittany D Chambers; Sharon Nichols; Sonia Lee; J Dennis Fortenberry Journal: J Adolesc Health Date: 2017-07-25 Impact factor: 5.012
Authors: Amanda E Tanner; Brittany D Chambers; Morgan M Philbin; Samuella Ware; Nneze Eluka; Alice Ma; Elizabeth N Kinnard; J Dennis Fortenberry Journal: Matern Child Health J Date: 2018-09
Authors: Morgan M Philbin; Amanda E Tanner; Alice Ma; Brittany D Chambers; Samuella Ware; Elizabeth N Kinnard; Sophia A Hussen; Sonia Lee; J Dennis Fortenberry Journal: AIDS Patient Care STDS Date: 2017-10 Impact factor: 5.078
Authors: Sophia A Hussen; Rana Chakraborty; Andrea Knezevic; Andres Camacho-Gonzalez; Eugene Huang; Rob Stephenson; Carlos Del Rio Journal: J Int AIDS Soc Date: 2017-09-01 Impact factor: 5.396