Literature DB >> 25983853

Transition of youth living with HIV from pediatric to adult-oriented healthcare: a review of the literature.

Sophia A Hussen1, Ann Chahroudi2, Ashley Boylan3, Andres F Camacho-Gonzalez2, Stephanie Hackett3, Rana Chakraborty2.   

Abstract

Due to advances in antiretroviral therapy, most HIV-infected children and youth now survive into adulthood. Many experts and professional societies have expressed concern about potential disruptions to care when youth living with HIV transition from pediatric to adult-oriented medical care. However, original research focused on this transition process is rare. The existing literature can be organized into the following categories: pre-transition assessments of anticipated barriers and concerns; studies describing provider practices during the transition period; and post-transition retrospective analyses after transition to adult care. Most studies had small sample sizes and focused on vertically infected youth. Further work is needed to document clinical outcomes after transition and to evaluate transition protocols that are in place at some institutions.

Entities:  

Keywords:  HIV/AIDS; adolescent; pediatric; transition; youth

Year:  2015        PMID: 25983853      PMCID: PMC4433446          DOI: 10.2217/fvl.14.73

Source DB:  PubMed          Journal:  Future Virol        ISSN: 1746-0794            Impact factor:   1.831


  22 in total

Review 1.  Development of a protocol for transitioning adolescents with HIV infection to adult care.

Authors:  Donna Maturo; Alexis Powell; Hanna Major-Wilson; Kenia Sanchez; Joseph P De Santis; Lawrence B Friedman
Journal:  J Pediatr Health Care       Date:  2010-02-08       Impact factor: 1.812

2.  Transition from a pediatric HIV intramural clinical research program to adolescent and adult community-based care services:assessing transition readiness.

Authors:  Lori S Wiener; Melissa Zobel; Haven Battles; Celia Ryder
Journal:  Soc Work Health Care       Date:  2007

3.  Attitudes toward transitioning in youth with perinatally acquired HIV and their family caregivers.

Authors:  Niraj Sharma; Elizabeth Willen; Ana Garcia; Tanvi S Sharma
Journal:  J Assoc Nurses AIDS Care       Date:  2013-07-01       Impact factor: 1.354

4.  Crossing the divide: transition care services for young people with HIV-their views.

Authors:  Hannah Bundock; Sarah Fidler; Simon Clarke; Deborah Jane Holmes-Walker; Kaye Farrell; Susan McDonald; Gareth Tudor-Williams; Caroline Foster
Journal:  AIDS Patient Care STDS       Date:  2011-07-11       Impact factor: 5.078

5.  Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine.

Authors:  R W Blum; D Garell; C H Hodgman; T W Jorissen; N A Okinow; D P Orr; G B Slap
Journal:  J Adolesc Health       Date:  1993-11       Impact factor: 5.012

6.  We never thought this would happen: transitioning care of adolescents with perinatally acquired HIV infection from pediatrics to internal medicine.

Authors:  Tara Vijayan; Andrea L Benin; Krystn Wagner; Sostena Romano; Warren A Andiman
Journal:  AIDS Care       Date:  2009-10

7.  "It's like losing a part of my family": transition expectations of adolescents living with perinatally acquired HIV and their guardians.

Authors:  Cynthia D Fair; Kristen Sullivan; Rachel Dizney; Avra Stackpole
Journal:  AIDS Patient Care STDS       Date:  2012-06-11       Impact factor: 5.078

Review 8.  The state of engagement in HIV care in the United States: from cascade to continuum to control.

Authors:  Michael J Mugavero; K Rivet Amico; Tim Horn; Melanie A Thompson
Journal:  Clin Infect Dis       Date:  2013-06-23       Impact factor: 9.079

9.  Best practices in transitioning youth with HIV: perspectives of pediatric and adult infectious disease care providers.

Authors:  Cynthia D Fair; Kristen Sullivan; Amy Gatto
Journal:  Psychol Health Med       Date:  2010-10       Impact factor: 2.423

10.  Young people in the United Kingdom and Ireland with perinatally acquired HIV: the pediatric legacy for adult services.

Authors:  Caroline Foster; Ali Judd; Pat Tookey; Gareth Tudor-Williams; David Dunn; Delane Shingadia; Karina Butler; Mike Sharland; Di Gibb; Hermione Lyall
Journal:  AIDS Patient Care STDS       Date:  2009-03       Impact factor: 5.078

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  30 in total

1.  Healthcare Transition for Youth Living With HIV: Outcomes from a Prospective Multi-site Study.

Authors:  Amanda E Tanner; Morgan M Philbin; Brittany D Chambers; Alice Ma; Sophia Hussen; Samuella Ware; Sonia Lee; J Dennis Fortenberry
Journal:  J Adolesc Health       Date:  2018-06-07       Impact factor: 5.012

2.  Association of Risk of Viremia, Immunosuppression, Serious Clinical Events, and Mortality With Increasing Age in Perinatally Human Immunodeficiency Virus-Infected Youth.

Authors:  Anne M Neilan; Brad Karalius; Kunjal Patel; Russell B Van Dyke; Mark J Abzug; Allison L Agwu; Paige L Williams; Murli Purswani; Deborah Kacanek; James M Oleske; Sandra K Burchett; Andrew Wiznia; Miriam Chernoff; George R Seage; Andrea L Ciaranello
Journal:  JAMA Pediatr       Date:  2017-05-01       Impact factor: 16.193

Review 3.  Parenting Among Adolescents and Young Adults with Human Immunodeficiency Virus Infection in the United States: Challenges, Unmet Needs, and Opportunities.

Authors:  Kendra Hatfield-Timajchy; Jennifer L Brown; Lisa B Haddad; Rana Chakraborty; Athena P Kourtis
Journal:  AIDS Patient Care STDS       Date:  2016-07       Impact factor: 5.078

4.  Adolescent to Adult HIV Health Care Transition From the Perspective of Adult Providers in the United States.

Authors:  Amanda E Tanner; Morgan M Philbin; Alice Ma; Brittany D Chambers; Sharon Nichols; Sonia Lee; J Dennis Fortenberry
Journal:  J Adolesc Health       Date:  2017-07-25       Impact factor: 5.012

5.  Long term engagement in HIV care among postpartum women with perinatal HIV infection in the United States.

Authors:  Christina M Meade; Sophia A Hussen; Florence Momplaisir; Martina Badell; Stephanie Hackett; Anandi N Sheth
Journal:  AIDS Care       Date:  2017-12-18

6.  Transitioning HIV-Positive Adolescents to Adult Care: Lessons Learned From Twelve Adolescent Medicine Clinics.

Authors:  Amanda E Tanner; Morgan M Philbin; Anna DuVal; Jonathan Ellen; Bill Kapogiannis; J Dennis Fortenberry
Journal:  J Pediatr Nurs       Date:  2016-04-28       Impact factor: 2.145

7.  Transfer is not a transition - voices of Jamaican adolescents with HIV and their health care providers.

Authors:  Flavia DeSouza; Elijah Paintsil; Teisha Brown; Russell Pierre; Danya Keene; Nancy Kim; Celia Christie
Journal:  AIDS Care       Date:  2018-10-20

8.  Adolescent and Adult HIV Providers' Definitions of HIV-Infected Youths' Successful Transition to Adult Care in the United States.

Authors:  Morgan M Philbin; Amanda E Tanner; Alice Ma; Brittany D Chambers; Samuella Ware; Elizabeth N Kinnard; Sophia A Hussen; Sonia Lee; J Dennis Fortenberry
Journal:  AIDS Patient Care STDS       Date:  2017-10       Impact factor: 5.078

Review 9.  Contemporary issues on the epidemiology and antiretroviral adherence of HIV-infected adolescents in sub-Saharan Africa: a narrative review.

Authors:  Olurotimi A Adejumo; Kathleen M Malee; Patrick Ryscavage; Scott J Hunter; Babafemi O Taiwo
Journal:  J Int AIDS Soc       Date:  2015-09-16       Impact factor: 5.396

10.  Health outcomes and the transition experience of HIV-infected adolescents after transfer to adult care in Québec, Canada.

Authors:  Fatima Kakkar; Dimitri Van der Linden; Silvie Valois; Francois Maurice; Marion Onnorouille; Normand Lapointe; Hugo Soudeyns; Valerie Lamarre
Journal:  BMC Pediatr       Date:  2016-07-26       Impact factor: 2.125

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