Literature DB >> 27133495

Challenges and Opportunities in Using Patient-reported Outcomes in Quality Measurement in Rheumatology.

Elizabeth R Wahl1, Jinoos Yazdany2.   

Abstract

Use of patient-reported outcome measures (PROs) in rheumatology research is widespread, but use of PRO data to evaluate the quality of rheumatologic care delivered is less well established. This article reviews the use of PROs in assessing health care quality, and highlights challenges and opportunities specific to their use in rheumatology quality measurement. It first explores other countries' experiences collecting and evaluating national PRO data to assess quality of care. It describes the current use of PROs as quality measures in rheumatology, and frames an agenda for future work supporting development of meaningful quality measures based on PROs.
Copyright © 2016 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Health care quality; Outcome measures; Patient-reported outcomes; Performance measures; Quality measures; Rheumatology

Mesh:

Year:  2016        PMID: 27133495      PMCID: PMC4853760          DOI: 10.1016/j.rdc.2016.01.008

Source DB:  PubMed          Journal:  Rheum Dis Clin North Am        ISSN: 0889-857X            Impact factor:   2.670


  30 in total

1.  Facilitating Quality Improvement: Pushing the Pendulum Back Toward Process Measures.

Authors:  Karl Y Bilimoria
Journal:  JAMA       Date:  2015-10-06       Impact factor: 56.272

Review 2.  Outcomes research: generating evidence for best practice and policies.

Authors:  Harlan M Krumholz
Journal:  Circulation       Date:  2008-07-15       Impact factor: 29.690

Review 3.  The quality of care. How can it be assessed?

Authors:  A Donabedian
Journal:  JAMA       Date:  1988 Sep 23-30       Impact factor: 56.272

4.  Methods for Developing Patient-Reported Outcome-Based Performance Measures (PRO-PMs).

Authors:  Ethan Basch; John Spertus; R Adams Dudley; Albert Wu; Cynthia Chuahan; Perry Cohen; Mary Lou Smith; Nick Black; Amaris Crawford; Keri Christensen; Kathleen Blake; Christine Goertz
Journal:  Value Health       Date:  2015-05-21       Impact factor: 5.725

Review 5.  Quality of care in the rheumatic diseases: current status and future directions.

Authors:  Jinoos Yazdany; Catherine H MacLean
Journal:  Curr Opin Rheumatol       Date:  2008-03       Impact factor: 5.006

6.  The applications of PROs in clinical practice: what are they, do they work, and why?

Authors:  Joanne Greenhalgh
Journal:  Qual Life Res       Date:  2008-12-23       Impact factor: 4.147

7.  Patient-reported outcomes in the Swedish National Quality Registers.

Authors:  E Nilsson; L Orwelius; M Kristenson
Journal:  J Intern Med       Date:  2015-08-26       Impact factor: 8.989

Review 8.  Systematic review: the evidence that publishing patient care performance data improves quality of care.

Authors:  Constance H Fung; Yee-Wei Lim; Soeren Mattke; Cheryl Damberg; Paul G Shekelle
Journal:  Ann Intern Med       Date:  2008-01-15       Impact factor: 25.391

9.  A quality indicator set for systemic lupus erythematosus.

Authors:  Jinoos Yazdany; Pantelis Panopalis; Joann Zell Gillis; Gabriela Schmajuk; Catherine H MacLean; David Wofsy; Edward Yelin
Journal:  Arthritis Rheum       Date:  2009-03-15

10.  The effectiveness of providing peer benchmarked feedback to hip replacement surgeons based on patient-reported outcome measures--results from the PROFILE (Patient-Reported Outcomes: Feedback Interpretation and Learning Experiment) trial: a cluster randomised controlled study.

Authors:  Maria B Boyce; John P Browne
Journal:  BMJ Open       Date:  2015-07-31       Impact factor: 2.692

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  8 in total

1.  Responsiveness of Patient-Reported Outcomes Measurement Information System Measures in Rheumatoid Arthritis Patients Starting or Switching a Disease-Modifying Antirheumatic Drug.

Authors:  Alyssa Wohlfahrt; Clifton O Bingham; Wendy Marder; Kristine Phillips; Marcy B Bolster; Larry W Moreland; Zhi Zhang; Tuhina Neogi; Yvonne C Lee
Journal:  Arthritis Care Res (Hoboken)       Date:  2019-04       Impact factor: 4.794

Review 2.  Selecting patient-reported outcome measures of health-related quality of life in adult rheumatology: quality and breadth of coverage.

Authors:  Erin Knight; Karen E Schifferdecker; Guy S Eakin; Bryce B Reeve
Journal:  Rheumatol Int       Date:  2022-09-20       Impact factor: 3.580

3.  Latin-American challenges and opportunities in rheumatology.

Authors:  Francisco Airton Castro Rocha
Journal:  Arthritis Res Ther       Date:  2017-02-10       Impact factor: 5.156

4.  Data Management for Applications of Patient Reported Outcomes.

Authors:  E A Bayliss; H A Tabano; T M Gill; K Anzuoni; M Tai-Seale; H G Allore; D A Ganz; S Dublin; A L Gruber-Baldini; A L Adams; K M Mazor
Journal:  EGEMS (Wash DC)       Date:  2018-05-10

5.  Stakeholder Development of an Online Program to Track Arthritis-Related Patient-Reported Outcomes Longitudinally: Live Yes! INSIGHTS.

Authors:  Karen E Schifferdecker; Rebecca L Butcher; Erin Knight; Emily Creek; M Suzanne Schrandt; Laura Marrow; Marie Jaffe; Arlene Vinci; Guy Eakin
Journal:  ACR Open Rheumatol       Date:  2020-11-25

6.  Exploring Pediatric Tele-Rheumatology Practices During COVID-19: A Survey of the PRCOIN Network.

Authors:  Y Ingrid Goh; Danielle R Bullock; Janalee Taylor; Rajdeep Pooni; Tzielan C Lee; Sheetal S Vora; Cagri Yildirim-Toruner; Esi M Morgan; Nancy Pan; Julia G Harris; Andrew Warmin; Kendra Wiegand; Jon M Burnham; Fatima Barbar-Smiley
Journal:  Front Pediatr       Date:  2021-03-04       Impact factor: 3.418

7.  User-centered design and agile development of a novel mobile health application and clinician dashboard to support the collection and reporting of patient-reported outcomes for breast cancer care.

Authors:  Elena Tsangaris; Maria Edelen; Jessica Means; Madelijn Gregorowitsch; Joanna O'Gorman; Rakasa Pattanaik; Laura Dominici; Michael Hassett; Mary Lynch Witkowski; Kristen Schrieber; Elizabeth Frank; Martha Carnie; Andrea Pusic
Journal:  BMJ Surg Interv Health Technol       Date:  2022-04-05

8.  An alternative approach to implementing patient-reported outcome measures.

Authors:  Elizabeth Gibbons; Ray Fitzpatrick
Journal:  Pilot Feasibility Stud       Date:  2018-07-04
  8 in total

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