Literature DB >> 27113094

Unmet Needs for Psychosocial Care in Hematologic Malignancies and Hematopoietic Cell Transplant.

Anna Barata1,2, William A Wood3, Sung Won Choi4, Heather S L Jim5.   

Abstract

Individuals diagnosed with hematologic malignancies experience significant unmet psychological, physical, informational, financial, and spiritual needs. The goal of the current review is to summarize and highlight recent research focused on these issues in the diagnosis and treatment periods and beyond. The review also describes the needs of adolescent and young adult (AYA) and pediatric patients. While a large body of research has reported on unmet needs among adult hematologic cancer patients, there is far less data regarding the challenges confronted by AYA and pediatric populations. Available data suggests that among all age groups, hematopoietic cell transplantation (HCT) is a risk factor for greater unmet needs. Recommendations for screening and evidence-based interventions to prevent or ameliorate unmet needs are provided. Future research is needed to develop additional evidence-based psychosocial interventions with a focus on hematologic cancer.

Entities:  

Keywords:  Adolescent; Child; Health services needs and demand; Hematologic neoplasms; Hematopoietic stem cell transplantation; Quality of life

Mesh:

Substances:

Year:  2016        PMID: 27113094     DOI: 10.1007/s11899-016-0328-z

Source DB:  PubMed          Journal:  Curr Hematol Malig Rep        ISSN: 1558-8211            Impact factor:   3.952


  106 in total

1.  A multimethod assessment of psychosocial functioning and late effects in survivors of childhood cancer and hematopoietic cell transplant.

Authors:  Kristin Bingen; Rose Lucey Schroedl; Lynnette Anderson; Debra Schmidt; Jennifer Hoag; Heather Christiansen; Mary Jo Kupst
Journal:  J Pediatr Hematol Oncol       Date:  2012-01       Impact factor: 1.289

2.  Children's psychological distress during pediatric HSCT: parent and child perspectives.

Authors:  Grace Chang; Sara J Ratichek; Christopher Recklitis; Karen Syrjala; Sunita K Patel; Lynnette Harris; Angie Mae Rodday; Hocine Tighiouart; Susan K Parsons
Journal:  Pediatr Blood Cancer       Date:  2011-05-25       Impact factor: 3.167

3.  Well-being and posttraumatic growth in unrelated donor marrow transplant survivors: a nine-year longitudinal study.

Authors:  Benjamin Tallman; Kari Shaw; Jessica Schultz; Elizabeth Altmaier
Journal:  Rehabil Psychol       Date:  2010-05

4.  Depression and hopelessness in patients with acute leukemia: the psychological impact of an acute and life-threatening disorder.

Authors:  Galina Gheihman; Camilla Zimmermann; Amy Deckert; Peter Fitzgerald; Ashley Mischitelle; Anne Rydall; Aaron Schimmer; Lucia Gagliese; Chris Lo; Gary Rodin
Journal:  Psychooncology       Date:  2015-09-18       Impact factor: 3.894

5.  Patients' supportive care needs beyond the end of cancer treatment: a prospective, longitudinal survey.

Authors:  Jo Armes; Maggie Crowe; Lynne Colbourne; Helen Morgan; Trevor Murrells; Catherine Oakley; Nigel Palmer; Emma Ream; Annie Young; Alison Richardson
Journal:  J Clin Oncol       Date:  2009-11-02       Impact factor: 44.544

6.  Are fatigue, depression and anxiety associated with labour market participation among patients diagnosed with haematological malignancies? A prospective study.

Authors:  Trine A Horsboel; Ute Bültmann; Claus V Nielsen; Bendt Nielsen; Niels T Andersen; Annette de Thurah
Journal:  Psychooncology       Date:  2014-08-30       Impact factor: 3.894

7.  Liminal reproductive experiences after therapies for hematological malignancy.

Authors:  Lesley E Halliday; Maureen A Boughton; Ian Kerridge
Journal:  Qual Health Res       Date:  2014-09-12

8.  Psychosocial factors predicting survival after allogeneic stem cell transplant.

Authors:  Brindha Pillay; Stuart J Lee; Lynda Katona; Sue Burney; Sharon Avery
Journal:  Support Care Cancer       Date:  2014-04-16       Impact factor: 3.603

Review 9.  Social well-being among adolescents and young adults with cancer: A systematic review.

Authors:  Echo L Warner; Erin E Kent; Kelly M Trevino; Helen M Parsons; Bradley J Zebrack; Anne C Kirchhoff
Journal:  Cancer       Date:  2016-02-05       Impact factor: 6.860

10.  Development and Evaluation of an Educational E-Tool to Help Patients With Non-Hodgkin's Lymphoma Manage Their Personal Care Pathway.

Authors:  Jozette Jc Stienen; Petronella B Ottevanger; Lianne Wennekes; Helena M Dekker; Richard Wm van der Maazen; Caroline Mpw Mandigers; Johan Hjm van Krieken; Nicole Ma Blijlevens; Rosella Pmg Hermens
Journal:  JMIR Res Protoc       Date:  2015-01-09
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  27 in total

1.  Who Enrolls in an Online Cancer Survivorship Program? Reach of the INSPIRE Randomized Controlled Trial for Hematopoietic Cell Transplantation Survivors.

Authors:  Jean C Yi; Brie Sullivan; Wendy M Leisenring; Navneet S Majhail; Heather Jim; Alison Loren; Joseph Uberti; Victoria Whalen; Mary E D Flowers; Stephanie J Lee; Katie Maynard; Karen L Syrjala
Journal:  Biol Blood Marrow Transplant       Date:  2020-06-26       Impact factor: 5.742

2.  Sharing Clinical Notes with Hospitalized Patients via an Acute Care Portal.

Authors:  Lisa V Grossman; Ruth Masterson Creber; Susan Restaino; David K Vawdrey
Journal:  AMIA Annu Symp Proc       Date:  2018-04-16

Review 3.  Anxiety, depression, and mental health-related quality of life in survivors of pediatric allogeneic hematopoietic stem cell transplantation: a systematic review.

Authors:  Tal Schechter; Jason D Pole; Giancarlo Di Giuseppe; Nirav Thacker
Journal:  Bone Marrow Transplant       Date:  2020-01-24       Impact factor: 5.483

4.  The experience of financial stress among emerging adult cancer survivors.

Authors:  Sugandha K Gupta; Mary Carol Mazza; Michael A Hoyt; Tracey A Revenson
Journal:  J Psychosoc Oncol       Date:  2020-01-25

Review 5.  Palliative care during and following allogeneic hematopoietic stem cell transplantation.

Authors:  Sandra A Mitchell
Journal:  Curr Opin Support Palliat Care       Date:  2018-03       Impact factor: 2.302

6.  Psychosocial risk predicts high readmission rates for hematopoietic cell transplant recipients.

Authors:  Daniel R Richardson; Ying Huang; Heather L McGinty; Patrick Elder; Joanna Newlin; Cyndi Kirkendall; Leslie Andritsos; Don Benson; William Blum; Yvonne Efebera; Sam Penza; Craig Hofmeister; Samantha Jaglowski; Rebecca Klisovic; Sumithira Vasu; Basem William; Steven Devine; Ashley E Rosko
Journal:  Bone Marrow Transplant       Date:  2018-02-14       Impact factor: 5.483

7.  BMT Roadmap: A User-Centered Design Health Information Technology Tool to Promote Patient-Centered Care in Pediatric Hematopoietic Cell Transplantation.

Authors:  Lyndsey Runaas; David Hanauer; Molly Maher; Evan Bischoff; Alex Fauer; Tiffany Hoang; Anna Munaco; Roshun Sankaran; Rahael Gupta; Sajjad Seyedsalehi; Amy Cohn; Larry An; Muneesh Tewari; Sung Won Choi
Journal:  Biol Blood Marrow Transplant       Date:  2017-01-27       Impact factor: 5.742

Review 8.  Complementary and Integrative Medicine in Hematologic Malignancies: Questions and Challenges.

Authors:  Moshe Frenkel; Kenneth Sapire
Journal:  Curr Oncol Rep       Date:  2017-10-14       Impact factor: 5.075

9.  Haematopoietic stem cell transplantation survivorship and quality of life: is it a small world after all?

Authors:  Lisa Brice; Nicole Gilroy; Gemma Dyer; Masura Kabir; Matt Greenwood; Stephen Larsen; John Moore; John Kwan; Mark Hertzberg; Louisa Brown; Megan Hogg; Gillian Huang; Jeff Tan; Christopher Ward; David Gottlieb; Ian Kerridge
Journal:  Support Care Cancer       Date:  2016-10-03       Impact factor: 3.603

10.  Meeting the Information and Support Needs of Blood Cancer Patients and Caregivers: A Longitudinal Study of a Model of Patient-Centered Information Delivery.

Authors:  Katherine Treiman; Caroline Husick; Nikie Sarris-Esquivel; Maria Sae-Hau; Meredith Barnhart; Kate Disare; Catherine Gupta; Michael Halpern; Kara Suvada; Elisa Weiss
Journal:  J Cancer Educ       Date:  2021-06       Impact factor: 2.037

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