Literature DB >> 19884548

Patients' supportive care needs beyond the end of cancer treatment: a prospective, longitudinal survey.

Jo Armes1, Maggie Crowe, Lynne Colbourne, Helen Morgan, Trevor Murrells, Catherine Oakley, Nigel Palmer, Emma Ream, Annie Young, Alison Richardson.   

Abstract

PURPOSE: To estimate prevalence and severity of patients' self-perceived supportive care needs in the immediate post-treatment phase and identify predictors of unmet need. PATIENTS AND METHODS: A multicenter, prospective, longitudinal survey was conducted. Sixty-six centers recruited patients for 12 weeks. Patients receiving treatment for the following cancers were recruited: breast, prostate, colorectal, and gynecologic cancer and non-Hodgkin's lymphoma. Measures of supportive care needs, anxiety and depression, fear of recurrence, and positive and negative affect were completed at the end of treatment (T0) and 6 months later (T1).
RESULTS: Of 1,850 patients given questionnaire packs, 1,425 (79%) returned questionnaires at T0, and 1,152 (62%) returned questionnaires at T1. Mean age was 61 years; and most respondents were female (69%) and had breast cancer (57%). Most patients had no or few moderate or severe unmet supportive care needs. However, 30% reported more than five unmet needs at baseline, and for 60% of these patients, the situation did not improve. At both assessments, the most frequently endorsed unmet needs were psychological needs and fear of recurrence. Logistic regression revealed several statistically significant predictors of unmet need, including receipt of hormone treatment, negative affect, and experiencing an unrelated significant event between assessments.
CONCLUSION: Most patients do not express unmet needs for supportive care after treatment. Thirty percent reported more than five moderate or severe unmet needs at both assessments. Unmet needs were predicted by hormone treatment, negative mood, and experiencing a significant event. Our results suggest that there is a proportion of survivors with unmet needs who might benefit from the targeted application of psychosocial resources.

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Mesh:

Year:  2009        PMID: 19884548     DOI: 10.1200/JCO.2009.22.5151

Source DB:  PubMed          Journal:  J Clin Oncol        ISSN: 0732-183X            Impact factor:   44.544


  169 in total

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Authors:  Susan Hall; Nicola Gray; Susan Browne; Sue Ziebland; Neil C Campbell
Journal:  Support Care Cancer       Date:  2012-03-09       Impact factor: 3.603

2.  Quality of life and perceived educational needs among older cancer survivors.

Authors:  Maura C Schlairet; Melissa J Benton
Journal:  J Cancer Educ       Date:  2012-03       Impact factor: 2.037

3.  Who provides psychosocial follow-up care for post-treatment cancer survivors? A survey of medical oncologists and primary care physicians.

Authors:  Laura P Forsythe; Catherine M Alfano; Corinne R Leach; Patricia A Ganz; Michael E Stefanek; Julia H Rowland
Journal:  J Clin Oncol       Date:  2012-07-09       Impact factor: 44.544

Review 4.  Fear of cancer recurrence: a theoretical review and novel cognitive processing formulation.

Authors:  Joanna E Fardell; Belinda Thewes; Jane Turner; Jemma Gilchrist; Louise Sharpe; Allan 'Ben' Smith; Afaf Girgis; Phyllis Butow
Journal:  J Cancer Surviv       Date:  2016-01-19       Impact factor: 4.442

5.  Optimizing patient-reported outcome and risk factor reporting from cancer survivors: a randomized trial of four different survey methods among colorectal cancer survivors.

Authors:  Heather Spencer Feigelson; Carmit K McMullen; Sarah Madrid; Andrew T Sterrett; J David Powers; Erica Blum-Barnett; Pamala A Pawloski; Jeanette Y Ziegenfuss; Virginia P Quinn; David E Arterburn; Douglas A Corley
Journal:  J Cancer Surviv       Date:  2017-01-13       Impact factor: 4.442

6.  The course of anxiety, depression and unmet needs in survivors of diffuse large B cell lymphoma and multiple myeloma in the early survivorship period.

Authors:  Devesh Oberoi; Victoria White; John Seymour; H Miles Prince; Simon Harrison; Michael Jefford; Ingrid Winship; David Hill; Damien Bolton; Anne Kay; Jeremy Millar; Nicole Wong Doo; Graham Giles
Journal:  J Cancer Surviv       Date:  2017-01-31       Impact factor: 4.442

7.  Cancer survivorship and the young breast cancer patient: addressing the important issues.

Authors:  Ann H Partridge
Journal:  Oncologist       Date:  2013

8.  Initial evaluation of the validity and reliability of the culturally adapted Spanish CaSUN (S-CaSUN).

Authors:  Dinorah Martinez Tyson; Patricia Medina-Ramirez; Coralia Vázquez-Otero; Clement K Gwede; Margarita Bobonis Babilonia; Susan C McMillan
Journal:  J Cancer Surviv       Date:  2018-04-05       Impact factor: 4.442

9.  Evaluation of the efficacy and usability of NCI's Facing Forward booklet in the cancer community setting.

Authors:  Joanne S Buzaglo; Suzanne M Miller; Jeffery Kendall; Annette L Stanton; Kuang-Yi Wen; John Scarpato; Fang Zhu; Jennifer Lyle; Julia Rowland
Journal:  J Cancer Surviv       Date:  2012-12-11       Impact factor: 4.442

Review 10.  Unmet psychosocial needs in haematological cancer: a systematic review.

Authors:  B Swash; N Hulbert-Williams; R Bramwell
Journal:  Support Care Cancer       Date:  2014-01-25       Impact factor: 3.603

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