Literature DB >> 27094729

Exploring lesbian, gay and bisexual patients' accounts of their experiences of cancer care in the UK.

J Fish1, I Williamson2.   

Abstract

Despite greater recognition of rights and responsibilities around the care of cancer patients who identify as lesbian, gay or bisexual (LGB) within healthcare systems in the United Kingdom, recent quantitative evidence suggests that they experience poorer care than heterosexual counterparts and qualitative findings are limited. Therefore, in the present study, we present an analysis of the accounts of fifteen British LGB cancer patients (diagnosed with different forms of the disease) of the care received. Data were collected through in-depth individual interviews and analysed using thematic analysis. Three of the emerging themes are discussed. These include an examination of what we conceptualise as the 'awkward choreography around disclosure' opportunities and dilemmas for LGB patients, we describe 'making sense of sub-optimal care' which included instances of overt discrimination but was more frequently manifested through micro-aggressions and heteronormative systems and practices, and explore accounts of 'alienation from usual psychosocial cancer support'. We employ Meyer's Minority Stress Theory (2003) as a lens to interrogate the data and explore the ways in which actual or anticipated prejudice affected their experiences of treatment and support. We close with recommendations to enhance LGB-affirmative cancer care including enhanced training of healthcare professionals and explicit articulation of institutional commitment to LGB equality.
© 2016 John Wiley & Sons Ltd.

Entities:  

Keywords:  cancer; minority stress; patient experience; qualitative methods; sexual orientation; supportive care

Mesh:

Year:  2016        PMID: 27094729     DOI: 10.1111/ecc.12501

Source DB:  PubMed          Journal:  Eur J Cancer Care (Engl)        ISSN: 0961-5423            Impact factor:   2.520


  11 in total

1.  Encouraging patients to disclose their lesbian, gay, bisexual, or transgender (LGBT) status: oncology health care providers' perspectives.

Authors:  Smita C Banerjee; Jessica M Staley; Koshy Alexander; Chasity B Walters; Patricia A Parker
Journal:  Transl Behav Med       Date:  2020-10-08       Impact factor: 3.046

2.  Knowing to Ask and Feeling Safe to Tell - Understanding the Influences of HCP-Patient Interactions in Cancer Care for LGBTQ+ Children and Young People.

Authors:  Tamsin Gannon; Bob Phillips; Daniel Saunders; Alison May Berner
Journal:  Front Oncol       Date:  2022-06-24       Impact factor: 5.738

3.  Sexual orientation disclosure in health care: a systematic review.

Authors:  Hannah Brooks; Carrie D Llewellyn; Tom Nadarzynski; Fernando Castilho Pelloso; Felipe De Souza Guilherme; Alex Pollard; Christina J Jones
Journal:  Br J Gen Pract       Date:  2018-01-29       Impact factor: 5.386

Review 4.  Cancer in Sexual and Gender Minority Patients: Are We Addressing Their Needs?

Authors:  Elizabeth J Cathcart-Rake
Journal:  Curr Oncol Rep       Date:  2018-09-13       Impact factor: 5.075

5.  The Experiences of Gay and Bisexual Men Post-Prostate Cancer Treatment: A Meta-Synthesis of Qualitative Studies.

Authors:  Obrey Alexis; Aaron James Worsley
Journal:  Am J Mens Health       Date:  2018-08-16

Review 6.  Co-producing knowledge of lesbian, gay, bisexual, trans and intersex (LGBTI) health-care inequalities via rapid reviews of grey literature in 27 EU Member States.

Authors:  Nigel Sherriff; Laetitia Zeeman; Nick McGlynn; Nuno Pinto; Katrin Hugendubel; Massimo Mirandola; Lorenzo Gios; Ruth Davis; Valeria Donisi; Francesco Farinella; Francesco Amaddeo; Caroline Costongs; Kath Browne
Journal:  Health Expect       Date:  2019-06-22       Impact factor: 3.377

7.  A Systematic Review of Sexual Minority Women's Experiences of Health Care in the UK.

Authors:  Catherine Meads; Ros Hunt; Adam Martin; Justin Varney
Journal:  Int J Environ Res Public Health       Date:  2019-08-21       Impact factor: 3.390

Review 8.  The Politics of LGBT+ Health Inequality: Conclusions from a UK Scoping Review.

Authors:  Elizabeth McDermott; Rosie Nelson; Harri Weeks
Journal:  Int J Environ Res Public Health       Date:  2021-01-19       Impact factor: 3.390

9.  An evaluation of self-perceived knowledge, attitudes and behaviours of UK oncologists about LGBTQ+ patients with cancer.

Authors:  Alison May Berner; Daniel Johnathan Hughes; Hannah Tharmalingam; Tom Baker; Benjamin Heyworth; Susana Banerjee; Daniel Saunders
Journal:  ESMO Open       Date:  2020-11

10.  A Systematic Review of the Health and Healthcare Inequalities for People with Intersex Variance.

Authors:  Laetitia Zeeman; Kay Aranda
Journal:  Int J Environ Res Public Health       Date:  2020-09-08       Impact factor: 3.390

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