Literature DB >> 27055496

Reflections and Recommendations for Conducting In-Depth Interviews With People With Dementia.

Elizabeth K Cridland1, Lyn Phillipson1, Christopher Brennan-Horley1, Kate Swaffer1.   

Abstract

Despite the importance and advantages of including people with dementia in research, there are various challenges for researchers and participants to their involvement. This article draws on the literature and experiences of a diverse group of authors, including a person with dementia, to provide recommendations about conducting research with people with dementia. Particular attention is given to in-depth interviews as a qualitative technique. More specifically, topics discussed include interview guide preparation, recruitment, obtaining consent/assent, conducting effective interviews, analysis and interpretation of data, effective communication of research findings, and reflections and recommendations for maintaining researcher and participant health. Given the current obstacles to participation in research of people with dementia, this is a timely article providing useful insights to promote improved outcomes using in-depth interviews.

Entities:  

Keywords:  Australia; confidentiality/privacy; data collection and management; dementia; exploratory methods; qualitative interviews; relationships, research; research, participation

Year:  2016        PMID: 27055496     DOI: 10.1177/1049732316637065

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  10 in total

1.  Expectations and Concerns of Older Adults With Cognitive Impairment About Their Relationship With Medical Providers: A Call for Therapeutic Alliances.

Authors:  Elena Portacolone; Kenneth E Covinsky; Julene K Johnson; Jodi Halpern
Journal:  Qual Health Res       Date:  2020-06-20

2.  Visiting Out-of-Home Places When Living With Dementia: A Cross-Sectional Observational Study: Visiter des lieux hors du domicile lorsque l'on vit avec une démence: étude transversale observationnelle.

Authors:  Isabel Margot-Cattin; Catherine Ludwig; Nicolas Kühne; Gunilla Eriksson; André Berchtold; Louise Nygard; Anders Kottorp
Journal:  Can J Occup Ther       Date:  2021-03-22       Impact factor: 1.614

3.  Exergaming Platform for Older Adults Residing in Long-Term Care Homes: User-Centered Design, Development, and Usability Study.

Authors:  Charlene H Chu; Renée K Biss; Amanda My Linh Quan; Henrique Matulis; Lara Cooper
Journal:  JMIR Serious Games       Date:  2021-03-09       Impact factor: 4.143

4.  Safe Enough to Share: Setting the Dementia Agenda Online.

Authors:  Amanda Lazar; Emma Dixon
Journal:  CSCW Conf Comput Support Coop Work       Date:  2019-11

5.  Emotional Safety in the Context of Dementia: A Multiperspective Qualitative Study.

Authors:  Silke Kuske; Sandra Olivia Borgmann; Florian Wolf; Christian Bleck
Journal:  J Alzheimers Dis       Date:  2021       Impact factor: 4.472

6.  A Case Study of Co-production Within a Mental Health Recovery College Dementia Course: Perspectives of A Person With Dementia, Their Family Supporter and Mental Health Staff.

Authors:  Juniper West; Linda Birt; Danielle Wilson; Elspeth Mathie; Fiona Poland
Journal:  Front Rehabil Sci       Date:  2022-06-22

7.  Supporting the involvement of older adults with complex needs in evaluation of outcomes in long-term care at home programmes.

Authors:  Lyn Phillipson; Ann-Marie Towers; James Caiels; Louisa Smith
Journal:  Health Expect       Date:  2022-04-19       Impact factor: 3.318

8.  Ageing, dementia and the future - ambivalent futurework in rehabilitation-focused dementia care.

Authors:  Jette Thuesen; Lea Graff
Journal:  Dementia (London)       Date:  2022-08-03

9.  Optimizing hospital-to-home transitions for older persons in rural communities: a participatory, multimethod study protocol.

Authors:  Mary T Fox; Souraya Sidani; Jeffrey I Butler; Mark W Skinner; Marilyn Macdonald; Evelyne Durocher; Kathleen F Hunter; Adrian Wagg; Lori E Weeks; Ann MacLeod; Sherry Dahlke
Journal:  Implement Sci Commun       Date:  2021-07-22

10.  Living with dementia with Lewy bodies: an interpretative phenomenological analysis.

Authors:  Victoria Larsson; Axel Holmbom-Larsen; Gustav Torisson; Eva Lena Strandberg; Elisabet Londos
Journal:  BMJ Open       Date:  2019-01-29       Impact factor: 2.692

  10 in total

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