Literature DB >> 26999505

CAREST--Multilingual Regional Integration for Health Promotion and Research on Sickle Cell Disease and Thalassemia.

Jennifer Knight-Madden1, Marc Romana1, Rinaldo Villaescusa1, Marvin Reid1, Maryse Etienne-Julan1, Laurence Boutin1, Gisèle Elana1, Narcisse Elenga1, Gillian Wheeler1, Ketty Lee1, Rosa Nieves1, Althea Jones Lecointe1, Marie-Laure Lalanne-Mistrih1, Gylna Loko1, Lisiane Keclard-Christophe1, Marie-Dominique Hardy-Dessources1.   

Abstract

Sickle cell disease (SCD) is a significant problem in the Caribbean, where many individuals have African and Asian forebears. However, reliable prevalence data and specific health care programs for SCD are often missing in this region. Closer collaboration between Caribbean territories initiated in 2006 to set up strategies to promote better equity in the health care system for SCD patients led to the formation of CAREST: the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia. We present the effectiveness of collaborations established by CAREST to promote SCD newborn screening programs and early childhood care, to facilitate health worker training and approaches for prevention and treatment of SCD complications, and to carry out inter-Caribbean research studies.

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Year:  2016        PMID: 26999505      PMCID: PMC4985101          DOI: 10.2105/AJPH.2016.303078

Source DB:  PubMed          Journal:  Am J Public Health        ISSN: 0090-0036            Impact factor:   9.308


  9 in total

1.  Frequency of pain crises in sickle cell anemia and its relationship with the sympatho-vagal balance, blood viscosity and inflammation.

Authors:  Danitza Nebor; Andre Bowers; Marie-Dominique Hardy-Dessources; Jennifer Knight-Madden; Marc Romana; Harvey Reid; Jean-Claude Barthélémy; Vanessa Cumming; Olivier Hue; Jacques Elion; Marvin Reid; Philippe Connes
Journal:  Haematologica       Date:  2011-07-12       Impact factor: 9.941

2.  Hydroxyurea treatment in children with sickle cell anemia in Central America and the Caribbean countries.

Authors:  Eva Svarch; Sergio Machín; Rosa María Nieves; Ana Gladys Mancia de Reyes; Marta Navarrete; Hilze Rodríguez
Journal:  Pediatr Blood Cancer       Date:  2006-07       Impact factor: 3.167

3.  Natural antiband 3 antibodies in patients with sickle cell disease.

Authors:  Rinaldo Villaescusa; Ada Amalia Arce; Marie-Laure Lalanne-Mistrih; Yann Lamarre; Régine Hierso; Carlos Hernández; Marie-Dominique Hardy-Dessources
Journal:  C R Biol       Date:  2012-10-12       Impact factor: 1.583

Review 4.  Newborn screening for sickle cell disease and other hemoglobinopathies.

Authors: 
Journal:  Natl Inst Health Consens Dev Conf Consens Statement       Date:  1987 Apr 6-8

5.  Relationship between acute chest syndrome and the sympatho-vagal balance in adults with hemoglobin SS disease; a case control study.

Authors:  Jennifer M Knight-Madden; Philippe Connes; Andre Bowers; Danitza Nebor; Marie-Dominique Hardy-Dessources; Marc Romana; Harvey Reid; Aurélien P Pichon; Jean-Claude Barthélémy; Vanessa B Cumming; Jacques Elion; Marvin Reid
Journal:  Clin Hemorheol Microcirc       Date:  2013-01-01       Impact factor: 2.375

6.  Newborn sickle cell disease screening: the Jamaican experience (1995-2006).

Authors:  L King; R Fraser; M Forbes; M Grindley; S Ali; M Reid
Journal:  J Med Screen       Date:  2007       Impact factor: 2.136

7.  Universal newborn screening for haemoglobinopathies in Guadeloupe (French West Indies): a 27-year experience.

Authors:  Christian Saint-Martin; Marc Romana; Alix Bibrac; Karine Brudey; Vanessa Tarer; Lydia Divialle-Doumdo; Marie Petras; Lisiane Keclard-Christophe; Sandrine Lamothe; Cédric Broquere; Maryse Etienne-Julan
Journal:  J Med Screen       Date:  2013-10-21       Impact factor: 2.136

8.  Plasma concentration of platelet-derived microparticles is related to painful vaso-occlusive phenotype severity in sickle cell anemia.

Authors:  Danitza Nebor; Andre Bowers; Philippe Connes; Marie-Dominique Hardy-Dessources; Jennifer Knight-Madden; Vanessa Cumming; Marvin Reid; Marc Romana
Journal:  PLoS One       Date:  2014-01-24       Impact factor: 3.240

9.  Clinical findings associated with homozygous sickle cell disease in the Barbadian population--do we need a national SCD registry?

Authors:  Kim R Quimby; Stephen Moe; Ian Sealy; Christopher Nicholls; Ian R Hambleton; R Clive Landis
Journal:  BMC Res Notes       Date:  2014-02-22
  9 in total
  2 in total

1.  Newborn Screening for Sickle Cell Disease in St. Vincent and the Grenadines: Results of a Pilot Newborn Screening Program.

Authors:  Shelly-Ann Williams; Beneka Browne-Ferdinand; Ynolde Smart; Kristen Morella; Susan G Reed; Julie Kanter
Journal:  Glob Pediatr Health       Date:  2017-11-03

2.  Increased Prevalence of Alloimmunization in Sickle Cell Disease? Should We Restore Blood Donation in French Guiana?

Authors:  Salomé Conrath; Vincent Vantilcke; Mickael Parisot; Françoise Maire; Pierre Selles; Narcisse Elenga
Journal:  Front Med (Lausanne)       Date:  2021-06-11
  2 in total

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