P Sundaresan1, C G Milross2,3, M R Stockler2,4, D S J Costa5, M T King2,5. 1. Central Clinical School, Sydney Medical School, University of Sydney, Sydney, NSW, Australia. purnima.sundaresan@sydney.edu.au. 2. Central Clinical School, Sydney Medical School, University of Sydney, Sydney, NSW, Australia. 3. Chris O'Brien Life House, Sydney, NSW, Australia. 4. Clinical Trials Centre, National Health and Medical Research Centre, Sydney, NSW, Australia. 5. Psycho-Oncology Cooperative Research Group (PoCoG), University of Sydney, Sydney, NSW, Australia.
Abstract
AIMS: Current patient-reported measures (PROMs) do not specifically address radiotherapy (RT) related inconvenience. We conducted, as per guidelines of the European Organization for Research and Treatment of Cancer (EORTC), the initial (issue generation) phase of development of a RT inconvenience PROM. Specifically, we aimed to develop a conceptual framework for RT inconvenience and generate a comprehensive list of issues pertaining to it. METHODS: We reviewed existing PROMs and literature and gathered qualitative and quantitative data from consumers and health professionals, in order to generate a comprehensive list of issues pertaining to RT inconvenience. A framework for the consideration of RT inconvenience was defined and used to ensure all possible issues were explored and to list the issues into conceptual domains. RESULTS: Qualitative data from 26 consumers and 30 health professionals, and quantitative data from 1191 consumers and 253 health professionals resulted in the identification of 38 issues grouped into five conceptual domains: (1) inconvenience of RT opportunity, (2) inconvenience of decision-making, (3) inconvenience of treatment, (4) inconvenience of side effects, and (5) inconvenience of follow-up. CONCLUSIONS: This list of RT inconvenience issues will, in future work, be operationalized into a set of items for pretesting and then large-scale field testing as per the EORTC guidelines.
AIMS: Current patient-reported measures (PROMs) do not specifically address radiotherapy (RT) related inconvenience. We conducted, as per guidelines of the European Organization for Research and Treatment of Cancer (EORTC), the initial (issue generation) phase of development of a RT inconvenience PROM. Specifically, we aimed to develop a conceptual framework for RT inconvenience and generate a comprehensive list of issues pertaining to it. METHODS: We reviewed existing PROMs and literature and gathered qualitative and quantitative data from consumers and health professionals, in order to generate a comprehensive list of issues pertaining to RT inconvenience. A framework for the consideration of RT inconvenience was defined and used to ensure all possible issues were explored and to list the issues into conceptual domains. RESULTS: Qualitative data from 26 consumers and 30 health professionals, and quantitative data from 1191 consumers and 253 health professionals resulted in the identification of 38 issues grouped into five conceptual domains: (1) inconvenience of RT opportunity, (2) inconvenience of decision-making, (3) inconvenience of treatment, (4) inconvenience of side effects, and (5) inconvenience of follow-up. CONCLUSIONS: This list of RT inconvenience issues will, in future work, be operationalized into a set of items for pretesting and then large-scale field testing as per the EORTC guidelines.
Authors: Puma Sundaresan; Madeleine T King; Martin R Stockler; Daniel Sj Costa; Christopher G Milross Journal: J Med Imaging Radiat Oncol Date: 2015-06-15 Impact factor: 1.735
Authors: Puma Sundaresan; Christopher G Milross; Andrea Smith; Alison Evans; Martin R Stockler; Madeleine T King Journal: J Med Imaging Radiat Oncol Date: 2014-06-19 Impact factor: 1.735
Authors: Meryl Brod; Mette Hammer; Nana Kragh; Suzanne Lessard; Donald M Bushnell Journal: Health Qual Life Outcomes Date: 2010-02-05 Impact factor: 3.186
Authors: Meryl Brod; Mette Hammer; Torsten Christensen; Suzanne Lessard; Donald M Bushnell Journal: Health Qual Life Outcomes Date: 2009-09-09 Impact factor: 3.186