Tanjala S Purnell1,2,3, Thomas J Lynch4, Lee Bone5,6,7, Jodi B Segal5,8, Crystal Evans7, Daniel R Longo9, John F P Bridges5,6. 1. Department of Epidemiology, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA. tpurnel1@jhmi.edu. 2. Department of Surgery, Johns Hopkins School of Medicine, Baltimore, MD, 21205, USA. tpurnel1@jhmi.edu. 3. Center for Health Services and Outcomes Research, Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA. tpurnel1@jhmi.edu. 4. Armstrong Institute for Patient Safety and Quality, Johns Hopkins School of Medicine, Baltimore, USA. 5. Center for Health Services and Outcomes Research, Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA. 6. Department of Health Behavior and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, USA. 7. Community Research Advisory Council, Research Participant and Community Partnerships Core, Johns Hopkins Institute for Clinical and Translational Research, Johns Hopkins School of Medicine, Baltimore, USA. 8. Department of Medicine, Johns Hopkins School of Medicine, Baltimore, MD, USA. 9. Department of Family Medicine and Population Health, Virginia Commonwealth University, Richmond, VA, USA.
Abstract
OBJECTIVE: Type 2 diabetes (T2D) is a leading cause of morbidity and mortality that disproportionately affects adults living in urban areas in the USA. Our goal was to actively engage community members in research to identify strategies to improve T2D self-management in an urban community in Baltimore, MD. METHODS: We partnered with the Johns Hopkins Community Research Advisory Council to establish our stakeholder advisory board-the Diabetes Action Board (DAB). In response to input from DAB members regarding the best approaches for conducting community-centered T2D research, we conducted three 90-min focus groups of local adults living with T2D to identify ways to improve self-management. DAB members were involved in each stage of the research, including development of the protocol and materials, participant recruitment, and interpretation and dissemination of findings. RESULTS: In total, 24 adults with self-reported T2D (75 % participation rate; 79 % female) residing in the local area participated in focus groups. Participants reported that barriers within their daily home and work environments, inadequate neighborhood resources, and suboptimal healthcare quality hindered their self-management. Reported strategies that may help to improve self-management included social support from family members, providers, and community members; improved access to healthy food; and wide availability of free or low-cost T2D educational materials and classes within the local area. CONCLUSION: Our study demonstrates a successful mechanism for engaging community members in the design, implementation, and dissemination of T2D research. This research approach was beneficial for building a sustainable partnership to support future work in the local community.
OBJECTIVE:Type 2 diabetes (T2D) is a leading cause of morbidity and mortality that disproportionately affects adults living in urban areas in the USA. Our goal was to actively engage community members in research to identify strategies to improve T2D self-management in an urban community in Baltimore, MD. METHODS: We partnered with the Johns Hopkins Community Research Advisory Council to establish our stakeholder advisory board-the Diabetes Action Board (DAB). In response to input from DAB members regarding the best approaches for conducting community-centered T2D research, we conducted three 90-min focus groups of local adults living with T2D to identify ways to improve self-management. DAB members were involved in each stage of the research, including development of the protocol and materials, participant recruitment, and interpretation and dissemination of findings. RESULTS: In total, 24 adults with self-reported T2D (75 % participation rate; 79 % female) residing in the local area participated in focus groups. Participants reported that barriers within their daily home and work environments, inadequate neighborhood resources, and suboptimal healthcare quality hindered their self-management. Reported strategies that may help to improve self-management included social support from family members, providers, and community members; improved access to healthy food; and wide availability of free or low-cost T2D educational materials and classes within the local area. CONCLUSION: Our study demonstrates a successful mechanism for engaging community members in the design, implementation, and dissemination of T2D research. This research approach was beneficial for building a sustainable partnership to support future work in the local community.
Authors: Kaveh G Shojania; Sumant R Ranji; Kathryn M McDonald; Jeremy M Grimshaw; Vandana Sundaram; Robert J Rushakoff; Douglas K Owens Journal: JAMA Date: 2006-07-26 Impact factor: 56.272
Authors: Sherita Hill Golden; Arleen Brown; Jane A Cauley; Marshall H Chin; Tiffany L Gary-Webb; Catherine Kim; Julie Ann Sosa; Anne E Sumner; Blair Anton Journal: J Clin Endocrinol Metab Date: 2012-06-22 Impact factor: 5.958
Authors: Silvio E Inzucchi; Richard M Bergenstal; John B Buse; Michaela Diamant; Ele Ferrannini; Michael Nauck; Anne L Peters; Apostolos Tsapas; Richard Wender; David R Matthews Journal: Diabetes Care Date: 2012-04-19 Impact factor: 19.112
Authors: Amber E Johnson; L Ebony Boulware; Cheryl A M Anderson; Tatpong Chit-ua-aree; Kimberly Kahan; LaPricia Lewis Boyér; Yang Liu; Deidra C Crews Journal: BMC Nephrol Date: 2014-12-06 Impact factor: 2.388
Authors: Allison H Oakes; Vincent S Garmo; Lee R Bone; Daniel R Longo; Jodi B Segal; John F P Bridges Journal: Patient Date: 2017-12 Impact factor: 3.883
Authors: Jaein Seo; B Douglas Smith; Elihu Estey; Ernest Voyard; Bernadette O' Donoghue; John F P Bridges Journal: Curr Med Res Opin Date: 2018-04-27 Impact factor: 2.580
Authors: Pearl A McElfish; Christopher R Long; Aaron J Scott; Jonell S Hudson; Lauren Haggard-Duff; Angel Holland; Thomas K Schulz; Ralph O Wilmoth; James P Selig Journal: J Prim Care Community Health Date: 2020 Jan-Dec